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  1. This getting wicked…went 4 days without any attacks…not even a shadow and then today had 4 attacks. No rhyme or reason. So frustrating
  2. Ahh good call. I’ll have to check to make sure. Thx as always!
  3. Thx Jon for the input. I’m not a huge fan of energy drinks myself but we all know when we’re at our wits end we’ll do whatever it takes. I’ll try and find the 5hr shots. The “monster” energy drinks I’m buying right now are sugar free with i belive 145mg caffeine and 2000mg taurine.
  4. Just wondering how many drinks in a day is too many lol have had 2 473ml drinks today and at the moment battling another attack contemplating having another drink
  5. I have been chugging half a monster energy drink before hitting oxygen and the aborts are going fairly well. Pain scale starts at 8-9/10 and decreases to 3-4 within 10-15 minutes and then subsides all together.
  6. Damnit….thought I was getting over my cycle with few shadows here and there and for the past 2 hours been dealing with a bad attack….non rebreather hasn’t helped…tried the car….now back on non rebreather after chugging an energy drink….next is imitrex damnit…..so frustrating
  7. Wow cheap! In Canada (Ontario) at least I found out my provider does in fact have M tanks but they won’t let me pick them up myself. They charge a delivery fee and want to come in home to secure them so they don’t fall since they’re heavy I guess?? I just chose to keep 5 E tanks at the house right now. Insurance pays for 90% of the cost so no big deal
  8. I use frozen clothes and while it’s freezing cold it alleviates the sharpe pains while on o2
  9. *Update* I received my non rebreather mask in the mail and used it today at 10lpm and aborted an attack in about 12-15 minutes. Went through 1/4 of an E tank but small price to pay to abort one!!!
  10. I should have mentioned I was on verapmail basically since 2001 and I was taking 240mg twice daily until about a year ago when my doctor thought it might be ok to start tapering off. I’m down to 40mg twice daily. could this be why the cycle came back? Should I ask to bump up the dosage again. The reason we started the taper was because I was constantly exhausted and had low blood pressure
  11. I got a hold of my dr today and he said years back we tried to break the cycle with a prednisone taper for 10 days. I can’t remember if it worked or not. has anyone tried it? With it without success?
  12. My wife asked for a larger tank this morning when she called and E tanks are their biggest. They obviously don’t treat CH that often. They are more sleep apnea and copd focused.
  13. Thx Shaun. After looking online a long time I found a non rebreather mask tht says will be delivered 1-2 days. For a price obviously but at this point I don’t care about price lol. I also just bought ginger capsules on Amazon and 1 day delivery. Just gotta make it through tonight and hopefully I’ll be good to go. I remember back in early 2001 when my first attacks started I didn’t know any better and would go sit in my car and blast the ac (mainly because it was hot out) but I’m pretty sure that helped back then so worth a shot too if need be….except it’s -3 Celsius today and light snow lol
  14. I was always under the impression I had to breath the o2 through my nose and exhale from mouth?
  15. Thanks everyone. Last night I ended up having 5 that were fairly intense. Seemed to last an hour and then I think I slept for maybe 30-45 min and then woke up with another. Wife and I are exhausted today. I can’t get a non rebreather mask quickly unfortunately. Seems 10 days or so shipping to Canada. I have 20 refills on my generic Imitrex jab but I hate taking them. I was able to have 3 more E tanks delivered this morning so I’ll try and make do with my nasal prongs. I constantly have shadows too this time around which is a first for my cycle. Something about ginger helps with them?
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