Jump to content

drewbie

Advanced Members
  • Content Count

    33
  • Joined

  • Last visited

Community Reputation

20 Excellent

About drewbie

  • Rank
    Advanced Member

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

  1. I'm sorry to hear what a tough time you're going through. You didn't mention in your message anything about oxygen - do you use that as an abortive? The general consensus seems to be that oxygen should be the first line abortive, leaving Imitrex as a backup option. I believe there's plenty of evidence that using lots of Imitrex can worsen and lengthen cycles.
  2. Interesting article: https://www.theguardian.com/lifeandstyle/2021/mar/13/it-blew-my-mind-can-psychedelic-drugs-cure-addiction-depression I guess it could very much work in favour of CHers if psilocybin does become legalised for medical use for mental health disorders. The market for mental health is obviously huge (much bigger than for CH) so anything that brings psylicobin closer to legal prescription is a good thing.
  3. I'm pretty convinced this applies to me. The more I'm working out my brain either with stress or taxing work, the less likely it seems I am to have attacks. In fact I think my cycle started in January partly due to me having wound down over the Xmas break after an intense amount of hard work prior to the holiday period.
  4. Hi everyone. Thanks for checking up on me @spiny, that's really kind. Latest update is that I'm fortunately feeling quite improved on the mental side. I don't feel like I'm living out a 24/7 panic attack! I think I found a reason for why I hit a really low point anxiety wise. I think I mentioned I've started up the ketogenic diet? That was mid last week, and, with the benefit of hindsight, I realise I was being clobbered pretty hard by "keto flu" on Friday and Saturday especially. At the time I'd put the way I felt physically and mentally down to anxiety. However, the fog seemed to
  5. @spinythis did occur to me too. However I was wondering whether it might be the extreme shifting in exposure to sunlight and the outdoors that did it for me. From April to September, I partook in the most extensive period of working out in my life. I'd call myself a road cyclist, and last year the pandemic lockdown restrictions in the UK allowed for me to really up my game. I was out on my bike 5-6 times a week, covering pretty much 6000km outside in that time. I was averaging over 200km a week, 7-10 hours out riding. Then the clocks changed, the weather changed. And I switched to t
  6. Thanks @xxx I think I might speak to my neurologist about this. Seems like it wouldn't be a bad thing to add in quercetin, so will be interesting to see whether I could do that without having to change anything else up.
  7. Thank you all for your kind support and advice. Anxiety is a rocky ride with good days and dreadful days. Yesterday was not a good day for me. Just got to keep fighting. We're all fighting something.
  8. p.s. I'm in the UK and frankly wouldn't know where to begin in getting hold of something like RC seeds. I've looked it up and it's certainly not obvious, and I wouldn't know how to trust any potential source anyway.
  9. Thank you both for your replies, it really does mean a lot to have such a supportive community to offer help and advice. To be honest, I've tried very little in some regard. I haven't really needed to go crazy with meds as my cycles of severe CH attacks have been few and far between. 2009 was first (diagnosed with eCH once cycle was basically over - lasted 4 weeks). 2016 had another cycle, 3 weeks long, with quite a few weeks of lingering pain/discomfort (shadows?). Since then, any sign of a full blown cycle, I've managed to get a nerve block within 2/3 days of suspecting it, and it'
  10. Hi everyone, The regulars around here will no doubt have seen me pop up a few times recently - thanks for being such a supportive community. I've shared in other posts more about the specifics of my diagnosis, symptoms and history in other posts. Truth be told, I've never come to terms with being a CHer and I've suffered pretty crippling anxiety a few times in the past during active cycles. At the moment, I've reached possibly my lowest point ever with regard to my ability to cope psychologically with the beast. It's completely broken me this time. I'm gripped by intense fear p
  11. I agree with @Chris Moore. Surely there's something the CH community can do to help things like this on their way? I just find it completely staggering that, despite the obvious potential of BOL-148, that here we are over 10 years after a successful study, this option remains elusive as a treatment. I find it so damn demoralising that options exist to potentially change lives and yet those things don't reach patients at all, or at least not in legal ways. It's kind of abhorrent, for example, that CH sufferers who benefit from psychedelics have to break the law - a face considerable j
  12. It's probably worth mentioning that a ketogenic diet has shown some very promising results for cluster headache. The keto diet is more than just a diet, though, as it fundamentally shifts your body's biological functioning. I'd have thought that just eliminating certain food groups is something that's going to be a very individual thing - sure, it's going to work for some people but it's unlikely to be a consistently replicable approach. I do find it more believable, however, that shifting one's body into ketosis could be helpful for a greater chunk of sufferers. The success of keto
  13. @xxx with regards to quercetin, I think I may have an issue with that as I take the blood pressure medication candesartan. This is not for high blood pressure but a headache preventative prescribed by my neurologist. My general diagnosis is chronic migraine and eCH, and the candesartan has shown some success, at least on the migraine side. That said, there's still real difficulty in objectively distinguishing between between the root cause of some of my symptoms - I've always been suspicious that the symptoms my neuro says are migrainous might just be persistent CH shadows. I had a long histor
  14. This was actually a pretty interesting thing to read. Surely this isn't unconditionally true?
  15. O2 condensors are essentially pointless for CH. You really do need to fast track getting the right O2 setup. Others on this forum are super helpful and knowledgeable about this.
×
×
  • Create New...