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Found 8 results

  1. Does anyone have a strong support group for Cluster Headaches? I've been trying to see if people are willing to start some type of support group. Maybe via zoom, or Skype call. I know that people that suffer from cluster headaches fall into isolation and it's hard to find other C/H patients. I would like to try and start a weekly zoom call if enough people are willing and discuss things like. Treatments Dealing with pain Depression Anxiety Loss of job Disability Dealing with family and friends Anything related to Cluster Headach
  2. Dear Cluster Busters ( brave people), I must apologize that it took me so long to write you here. In October, I watched a video about a man who suffered immensely from cluster headache and in this video he stated that he tried everything till someone introduced him to OSTEOPATHY. He started going to an Osteopathy Center and in no time his cluster headache was gone. There have been several stories according to him and luckily I have witnessed one myself with my fiance. Please consider Osteopathy, it's worth it. May you have a pain free life
  3. According to the FDA there is a shortage (unavailability, really) of verapamil ER in the U.S. The manufacturer stopped making it recently, I think in February 2019. It looks like it is not available in any strength. This has been a miracle drug for me for cluster and I've run out and am now having a bad time. I'm going to have to try replacing it with regular verapamil. Does anyone know if there is a way to ask FDA to get verapamil ER made by another company, maybe as an orphan drug?
  4. My Name is Michael, I would like to a acknowledge everyone who is suffering with the beast, I pray that my Son or anyone else out there will not go through the HELL I went through. I'll tell you my story, it's going to be about a pity party like no other. However, at the end I did find my cure and I hope you find yours. I was 22 when I was hit with headaches that didn't want to leave. Thank God, I had great insurance. I saw several ENT's - Ear, Nose and Throat Specialists, a Couple of Neurosurgeons, a couple of Chiropractors, an acupuncturist, some gentleman who put a hot iron o
  5. Hi I’m new here and i have never joined or been part of a group or forums. I have the very rare brain disease Moya Moya with TIA’s & strokes as well as chronic migraine, cronic daily headaches and cluster headache, epilepsy, restless leg syndrome and depression. My consultant has exhausted all treatments medical devices and medications and is at a loss. I have been referred to Queens Square London to look at undergoing further brain surgery but this time for the cluster headaches. I am in my 20’s i am exhausted daily - i either sleep and woken up by headaches or I don
  6. Hi, I talked a while ago about the app that we are building right now. This app I build out of personal interest to registrate my own attacks in a good way, and to help other who have these attacks. It will be free to download in the iTunes or Play store. But I need some testers to install the app and try how it goes. It is a very simple app but it would be nice if there are some people that want te check it again so we can start to registrate soon. About the setup of the app: When we have an attack we are unable to startup the computer and edit an excel list, unable to fill-in a
  7. Yesterday afternoon around 3:30 I started to get a cluster headache. I've been running low on Zomig nasal sprays and my insurance is refusing to cover them so I opted for chugging a Red Bull. This has worked from time to time. Anyways, the pain began to increase and after about an hour and a half I threw up several times from the pain. Another half hour went by and the cluster headache subsided and I was able to lie down instead of my usual pacing around the house/rocking back and forth/kicking the mattress. However, The pain behind my eye turned into a different kind of pain, different from t
  8. Yesterday afternoon around 3:30 I started to get a cluster headache. I've been running low on Zomig nasal sprays and my insurance is refusing to cover them so I opted for chugging a Red Bull. This has worked from time to time. Anyways, the pain began to increase and after about an hour and a half I threw up several times from the pain. Another half hour went by and the cluster headache subsided and I was able to lie down instead of my usual pacing around the house/rocking back and forth/kicking the mattress. However, The pain behind my eye turned into a different kind of pain, different from t
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