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jon019

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jon019 last won the day on May 7

jon019 had the most liked content!

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    USA

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  • Cluster Headache Community
    Yes
  • Migraine Community
    Yes

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  1. FDA Launches New Accelerating Rare disease Cures (ARC) Program – Drug Information Update (govdelivery.com)
  2. ...ah, what an appropriate date for our own merry prankster...CHfather, to start the silly ...in honor of the trend, i submit 2 pre-jon generations: ......the clue is "pockets"
  3. ...HA...you've got it already...that there is funny!
  4. ...nope...no emojis....short msg, long msg, any msg!....all pms's, many regular posts, tho i don't post anymore. it is exhausting/frustrating/depressing to type a msg that cannot be sent...
  5. ...help....unable to send PM's....this is all i get every time.
  6. ....DON'T...doesn't work....all you end up with is a droopy face with the same pain...or a droopy face, with the pain on the OTHER side. if you find a doc who is willing to do it...it's the WRONG doc...RUN!
  7. OXYGEN....OXYGEN.....OXYGEN!!!! allowed me ...with an energy drink starter and D3 regimen on-board near complete reprieve.....with a Zomig NS in reserve and very rarely used but damn glad to have...... .....have always thought clusterheads have an elite ability along those lines...forget what's gone...we are sorta like Tiger the next hole after a bogey, Goose Gossage with bases jammed after a third strike the ump missed...or Adam Vinatieri from 49 in OT after missing the previous kick....
  8. ...YUP, job stress and the anguish of CH nearly took my mind....mostly by accident discovered that 20 mins of meditation EVERY day at lunchtime was incredibly refreshing, restorative, and instrumental in "maintaining". no training, no "method" just cleared my mind by concentrating on breathing only. a trained, directed version probably even better....
  9. ....for me when episodic they all started that way...i suppose it's better than BAM... and you are in a cycle. ...get yur ducks in a row. ...OXYGEN? energy drinks? if used: prevent scripts updated? triptan scripts? busting supplies? headache specialist appt/call in? D3 regimen?
  10. ...old stupid joke: Doctor, Doctor, it hurts when i do THIS! Doctor: Don't do THIS! ....the only way to tell is to stop/change....i used to get hit a couple hours after breakfast no matter what i ate. correlation aint causation....ya gonna have to drill down further...
  11. ....all this talk about being sick is making me kind of woozy....
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