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jon019

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Everything posted by jon019

  1. ...hey, if it works it works! more typical for nsaids to help with shadows. you may have nailed it with the allergies connection. anything that causes inflammation, histamine release, vitamin D3 depletion, hormone releases can be triggers for us. my first few yrs antihistamines were helpful....many find help with Benadryl prior to sleep or even daily during certain cycle parts (will make you sleepy). note that while the nasal congestion could be an allergy symptom.....it is also absolutely typical of cluster autonomic symptoms. i used Tiger Balm inhaling to clear sinuses....didn't affect the hit but cleared the awful congestion that makes a hit even more miserable...
  2. ...probably tyramine found in fermented products and/or the 0.5% alcohol that is allowed. one of the few 10 hits i've had was after na wine...hurt so bad i forgot to breathe....
  3. .....was exactly same.....in cycle only as an abort/O2 enhancer....between typical hit times was a trigger. but out of cycle no problems.. ....vasoactive substance that seems to turbo boost caffeine. some find supplements alone helpful... ...none of us do...its the dangdest thing but way common for clusterheads... ....me too...fast, portable, tsa compliant, more caffeine/taurine than many energy drinks w/o the ridiculous gross amount of sugar...
  4. ...cool vibes for a cool cat...
  5. Hello friends, Anyone here have experience with Lexapro anti-depressant as a trigger. just started and getting some fierce shadows. pharmacist said headache a common side effect but CH and "headache" are different animals. i can do those...not so much CH. PM replies fine. Thanks jon
  6. ...yup...sorry X, my response to that stinkin noise would be...
  7. ...try this: Locations | Lincare lots in Mass ...even if they don't accept your insurance go talk to shop mgr...i did self pay half the time..was same cost as insurance copay. Lincare did me right...
  8. ...please do share how you got short term disability....is rare
  9. ...we got a wonky hypothalamus.....google "hypothalamus and immune system"....
  10. ...sorry for the ads, this is a .com so be aware...a bit of confirmation for anti inflammatory we all know. i follow autoimmune info as i have several and believe there is a connection between CH and the immune system....the extent i know not Autoimmune diseases: Ginger supplements may help manage inflammation (medicalnewstoday.com)
  11. Psilocybin Reduces Symptoms, Disability in Major Depression (medscape.com)
  12. Hello. ...my mother was a Special Ed teacher, it is a subject dear to my heart...not the least of it being the times i saw her come home in tears...sometimes joy but usually frustration. no need to bore with details, but it is an underfunded, understaffed, underappreciated, under most everything but the front line folks who give their heart and life and mostly LOVE to the effort... ....i say this not in disagreement with this initiative at all, but to CAUTION to be VERY careful what is proposed/enacted. these kids absolutely need a type of care and instruction beyond what most "regular" classrooms can provide. i wonder if the experience of Covid has advised school districts on the needs of kids outside the "norm". i doubt it...but i don't know. what i do know is that regulating that these kids be classified as "special needs" w/o careful wording, will, in many cases, result in some districts dumping them into classes with developmentally disabled kids far below age normal. kids requiring one on one, sometimes very basic instruction, and frequently repeatedly. ...most anyone in the headache community realizes that it is not a cognitive issue we are dealing with, and placing these kids in the environment i describe will leave them with insufficient attention and instruction based on what is practical and possible. CAREFUL please...... best jon
  13. ...OXYGEN!!?....dump the amitriptyline, worthless
  14. …hiya….thanks for the shout… …dealing with multiple health issues that have put the fire out and i'm tired…as an opinionated know it all it has always been a struggle not to be obnoxious…not always successful, but now find that the effort is beyond my capabilities, and I really don’t want to say stupid stuff to folks that need sharpness of mind and thoughtful contributions. my heart is with you all and always will be… best jon
  15. ....i'd bang some Benadryl...even with the FM. sounds like a "histamine bomb" from an allergic reaction.....more likely leading to a CH vs the other way round. it is almost spring, pollen could be around, check for house mold, new carpet?, new whatever?.... and brush any pets outside before they come in....allergens on fur maybe....
  16. ...only a few cycles with the 1 hr wake ups for me..(O2 always worked better than day time hits!). never could figure what was different to cause this oddity ("normally" 3 daily hits) except sleep being a frequent trigger for most clusterheads (no blissful in cycle naps for 30 yrs for me)....and triggers can be transient. ...have you tried staying on O2 post abort for as long as it took to abort.. ...since CH is likely a wonky hypothalamus...which also controls sleep...a connection to CH is not surprising, and more than a few have found improvement of CH with sleep apnea treatment. worth a doc consult....it never occurred to me at the time...
  17. What Does New Cluster Headache Research Show About Sex Differences? (medscape.org)
  18. ....as the tank got below half full i used to stare at the flow gauge as a form of distraction.... so i could turn up the decreasing flow as the tank approached empty. there indeed was a point where the knob was at 10 (11 if you are a Spinal Tap fan) and flow just steadily decreased anyway...bears monitoring. sometimes when aborting a night time wake up, with no lights, the sound of the hiss was all that was needed. THAT'S too much experience....sigh
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