jon019

...hi SF... ...i see no reason not to try the ap-loratodine....have not seen reported as a trigger. i've tried for multiple allergies with minimal effect on same (sigh) but no effect on CH in or out of cycle.... ....the US version of Benadryl is a favorite for effectiveness for me and many due to excellent anti-histamine effects.....and sleep aid for clusterheads in cycle. i believe nytol original and nytol one-a-night are available SA (??)....these are marketed as sleep aids and contain the same diphenhydramine as US Benadryl (25/50 mg respectively). Perhaps other sleep aid brands with same ingredient. am sure you already know the European brand of Benadryl does not have diphenhydramine... j

....need.new.doc... ...preferably a HA specialist, at worst a open minded pcp who will respond positively to your needs (knowledge of which you may have to supply). nearly every clusterhead knows far more re CH than most docs, including neuros, will ever know. most doctors now have neither the time nor desire to become a student of CH for you, its a rare condition. you are the advocate....

....appears like you done figured it out.....sounds like the burn down Batch occasionally describes as a "self test".

...summer bug out...but that CH monkey is a bitch....

...can relate...i carried a pillow to scream into, took my shoes off and stayed on the carpet.... ....might wanna try a HOT shower on hit spot...cold always made it worse for me, tho breathing cold air just feels damn good. some sit in a hot bath or use hot foot bath...others alternate hot/cold. ya gotta fool that wonky hypothalamus... ...i second the energy drink, powered down fast...need at least 120 mg caffeine and 1000 mg taurine...

.....take up welding "hobby"...many do! i worked 31 yrs in a production facility with an O2 tank in my office, and one in the car. an energy drink on the way to the tank and only gone for as long as a typical "break". depending on the job of course, you maybe could even drag a tank around with you....mine became nearly unnoticed. might have to discuss with HR re "reasonable accommodation"...dunno how that works in CA....

Rocking Rollen was ahead of his time....

FDA Launches New Accelerating Rare disease Cures (ARC) Program – Drug Information Update (govdelivery.com)

...ah, what an appropriate date for our own merry prankster...CHfather, to start the silly ...in honor of the trend, i submit 2 pre-jon generations: ......the clue is "pockets"

....i can dig it!

...HA...you've got it already...that there is funny!

YUP!

...nope...no emojis....short msg, long msg, any msg!....all pms's, many regular posts, tho i don't post anymore. it is exhausting/frustrating/depressing to type a msg that cannot be sent...

...help....unable to send PM's....this is all i get every time.

....DON'T...doesn't work....all you end up with is a droopy face with the same pain...or a droopy face, with the pain on the OTHER side. if you find a doc who is willing to do it...it's the WRONG doc...RUN!

OXYGEN....OXYGEN.....OXYGEN!!!! allowed me ...with an energy drink starter and D3 regimen on-board near complete reprieve.....with a Zomig NS in reserve and very rarely used but damn glad to have...... .....have always thought clusterheads have an elite ability along those lines...forget what's gone...we are sorta like Tiger the next hole after a bogey, Goose Gossage with bases jammed after a third strike the ump missed...or Adam Vinatieri from 49 in OT after missing the previous kick....

...YUP, job stress and the anguish of CH nearly took my mind....mostly by accident discovered that 20 mins of meditation EVERY day at lunchtime was incredibly refreshing, restorative, and instrumental in "maintaining". no training, no "method" just cleared my mind by concentrating on breathing only. a trained, directed version probably even better....

CH warning shot.....

....for me when episodic they all started that way...i suppose it's better than BAM... and you are in a cycle. ...get yur ducks in a row. ...OXYGEN? energy drinks? if used: prevent scripts updated? triptan scripts? busting supplies? headache specialist appt/call in? D3 regimen?

...old stupid joke: Doctor, Doctor, it hurts when i do THIS! Doctor: Don't do THIS! ....the only way to tell is to stop/change....i used to get hit a couple hours after breakfast no matter what i ate. correlation aint causation....ya gonna have to drill down further...

....all this talk about being sick is making me kind of woozy....

yup OXYGEN! 5-8 mins typical abort with an energy drink/heavy caffeine dose "helper". i second the life changer comments.....30 mins is a brutal long time, especially for multi hit days. Zomig nasal spray as last resort abort only...i preferred to ride out the occasional hit(s) when O2 didn't work rather than risk the rebounds from oversue of triptans. ....read the oxygen use files here...important to do it right from the start so you do not get discouraged and figure the very saddest and frequently incorrect phrase in clusterville "O2 doesn't work for me". the basics are: 12-15 lpm flow, a non-rebreather mask, proper technique (hyperventilation reported as most successful, breathe and hold or slow breath worth trying), starting IMMEDIATELY when a hit felt and staying on for 5-10 min after abort, an energy drink/caffeine on way to tank. i kept e tanks at work and in car, m-60 at home. don't let them give you a concentrator... Basic non-busting information - ClusterBuster Files - ClusterBusters 10. - OXYGEN INFORMATION - ClusterBuster Files - ClusterBusters

...these are ducks of questionable character.. ...see them see them beady EYES

.....translate...no cheating! .... or asking Dallas Denny....apologies for the thread jack.... MRDUX MRNOT OSAR CMBDII LIB! MRDUX

Hi Billy...welcome.. ....certainly sounds like your triggers are visual....i wonder if there is such a thing as an Optha-neurologist you could consult? Any thoughts from your current neuro? ....there has been discussion lately re tinted lenses of various hues as a CH treatment. if you pursue the blue screen blockers please be sure to check back in and tell us how well or if that worked. might want to try various settings on your phone...i know my PC has them as they advise "night time" setting so as not to effect sleep. best jonathan