Vipul

Hello Angels, I understand the difference between Trigeminal Neuralgia and Cluster headache. I also understand that this forum is for CH. However, some people's CH does get diagnosed as TN and hence some of you may have more information regarding this. A friend is suffering from Trigeminal neuralgia is is really struggling with the medications (anti convulsants) and the pain. Was wondering if busting works for Trigeminal Neuralgia or if anyone has any knowledge of any alternate treatment/ medicine for this condition. My friend has no faith in traditional elopathic medicine. Any tips would be helpful for her. @CHfather Love Vipul Om Namah Shivaye

My last cycle started as the worst so far at 8, 9 and even 10 and lasted for 2 hours. An hour of relief and was back to crazy levels of pain for another 3 hours. With 5 to 6 attacks a day at 8,9,10 I was searching Google for "painless ways to kill yourself" Thankfully, I reached this forum, where many angels reside and I now laugh at myself for having given up on life. Love and pain free wishes. Vipul

Hi, I feel the same. In fact, I have stopped using my right side, which is the CH effected side for calls. I usually talk on speaker. I am 100% sure that it triggers the start of an attack for me. Love and pain free wishes. Vipul Har Har Mahadev

Hi, Spoke to a 65 year old lady today who had been suffering from Episodic CH for 12 years. She says she now has very minor pain every few months and has not had a full on attack for 2 years. What's she did was a juice diet for 3 weeks to detox and then a regular dose of Lion"s mane and Reishi mushrooms. She strongly suggests I follow her line of advise. Now, is this an unheard of line of alternative treatment or has someone experimented with this here. Love Vipul Har Har Mahadev @CHfather

Hello all, anxious to know any update on this. Love Vipul

Hello, and am so sorry to hear about your condition. From what I've learnt, an lsd busting dose needs to be about half of a regular dose. That would be around 50 to 60 ug. Also you need to do it 3 times 5 days apart. Your brain a few days to be receptive again. RC seeds have worked for me. The D3 regime is worth doing. And ginger works great for shadows. Many swear by high pressure O2. Have no idea how your depression meds may interact with busting. You're in the right place and you will get enough advise to help you thru this. I was where u are just 2 months back. You can bust the beast. Pain free wishes to you. Love Har Har Mahadev

Hi, Read another case study. This guys CH was caused by acute maxillary sinusitis. Exactly what's written in my report??? For some reason my Neurologist didn't feel the need to explore further??? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3795873/

Thanks @Brain on fire and @spiny I did get an MRI but wasn't sure if they covered the sinus area. But have since read the MRI findings again and they did cover the Sinus as well. It mentions a neurovascular conflict of the trigeminal nerve and also mentions a minor sinus issue at the end of the repot. Attaching the MRI findings fyr. Love

Hello, After my 3rd dose of RC seeds I was still getting very minor attacks and so I had a 4th dose. Situation is the same with 1to 2 very minor attacks during the day. Have had 15 pain free nights on the trot. Am very happy but a little concerned as it has not left me completely. Since the last few days, for the first time since the onset of CH,i have a very strange feeling deep inside my right nasal track, the same side of my CH attacks. It actually feels like an injury deep inside. I somehow felt it could be connected with my CH. So looked around on Google and found this https://www.hindawi.com/journals/crinm/2018/5850286/ Cluster-Like Headache Secondary to Sphenoid Sinus Mucocele, case study @CHfather @Brain on fire @spiny @Batch do you suggest ii get a scan to rule this out? Love Om Namah Shivaye

Hi, found this very interesting Ayurveda diagnosis and treatment for cluster headaches. Attached fyr 2191_2194.pdf

Hi Tony, I'm from india and so much more exposed to Ayurveda. My brother was born with very serious egzema all over his body. He was weak and i saw him struggle with it all out childhood. My parents tried everything including Ayurveda oils and medicines but nothing seemed to make any difference in his condition. When he was 18 we met with a Vaid who felt his pulse and cured him in 2 weeks. He then regained his health and joined the Indian army. I went to a Vaid myself for my CH last month. He felt my pulse and said that he was not able to figure out anything as there were some bad medicines in my system. He advised me to stop all medication, wait a month and go back to him. Only then would he know if he could help me. At the time i was on Prednisolone and Verapamil. Have since stopped. I will visit him again and if he is able to help me, i will report back on this page. Ayurveda cannot be overlooked for any sort of treatment. Om Namah Shivaye

Been seeing Wim Holf's interviews and his achievements on you tube. His method seems to be quite simple and he's proved crazy stuff scientifically. Managing to control release of endorphins, dopamine etc in the brain. Wondering if his method could help with CH?

Hello, you've either never had CH or are not being honest. It's impossible that you have a cure and would not help others who are suffering this miserable condition.

Hello, Have been suffering from CH for over a year. Was prescribed a 15 day, reducing dose Prednisolone course each time my cycle started. Have done 4 courses in the last 10 months. Was also permanently on verapamil. I personally feel that the medicines have made things worse as my current attacks are more severe in intensity and duration. Today, i visited a very well known and highly recommended Hakim ( traditional Indian Ayurveda doctor. His normal way of identifying a patient's condition is by feeling your pulse. This is how he diagnosed a diabetic patient who was there before me. He felt my pulse and went blank for a while. Then said that he couldn't figure out anything as there is some very harmful medication in my system coz of which he cannot even figure out my condition. Upon telling him what i was on, I was advised to stop all medication and give a month before seeing him again. Only then would he be able to tell me if he had a cure or not. He apologised as he was not able to help me as of now. Fortunately my prednisolone course ended a couple of days back. Have also stopped verapamil. Will wait a month and will see him again. Meanwhile, i am expecting RC seeds in a couple of days. Waiting eagerly for them and will try busting as advised in this forum by the experts. Will report progress of busting. Lots of pain free wishes to all. Love Om Namah Shivaye