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July_guy

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  1. My neurologist is retiring and the oxygen provider I previously used will no longer help CH patients....Does anyone in the Philly area have any resources they could help me with?
  2. Thanks, everyone. You've given me a lot to go on (and important reassurances). @CHfather that resource is excellent--thanks a ton for compiling. I was skimping in part on the oxygen because I only have an E tank...my oxygen provider doesn't have any larger tanks available currently, which may mean that I need to find a new provider. I'm also beginning to prep for the D3 regimen. How important is it that I get a baseline for 25(OH)D before starting? Is there a specific blood test I ask for that will give me that value? Thanks again!
  3. Hi everyone! After dealing with episodic CH for about ten years, I finally have an oxygen hookup and was able to use it successfully to abort an attack two nights ago. Tonight, however, I found that the oxygen worked in aborting my attack, but that I would wake up 2 hours later with a new headache. I had 3 in total last night. I'm usually a one-headache a night guy, so it seems like the oxygen is merely postponing the headache, rather than truly aborting it. Anyone else had this experience? Am I doing the oxygen wrong? For getting rid of headaches, Sumatriptan 100 mg seems to be the only reliable option this summer, but I'm worried about overusing. Also currently taking 320 mg verapamil each day. Thanks for any and all advice!
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