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MichelleC

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MichelleC last won the day on May 3

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  1. Join the PSYCHEDELIC OUTLAWS: Virtual Book Club in June to meet the author and fascinating characters who are revolutionizing the treatment of chronic pain. Who are the outlaws when regular people use illegal drugs to escape brutal pain, while respected institutions plunder for profits and prestige? Register to join 4 enlightening and entertaining, interactive events. For more information and registration: https://cbbookclub.planningpod.com/
  2. Positive Results: Psilocybin Reduces Cluster Headache Attacks A new extension phase study from Yale led by Dr. Emmanuelle Schindler proves that repeated, low-doses of psilocybin lead to a significant reduction in the number of cluster headache attacks. After doing a 3-dose pulse regimen of low-dose psilocybin, cluster headache attacks went down from a baseline of 18.4 to 9.8 cluster attacks per week. For more information: https://conta.cc/4d8NI22
  3. Hi Larry, While Bob and others greatly appreciated overflowing support that came from everywhere when we shared the news, I think it's best to respect Bob's privacy. Enough people in the community had concerns about his wellbeing that it made sense to share the news, to celebrate and lay questions to rest. Thanks!
  4. Who is joining us at Clusterbusters 2nd U.K./European Conference? We will be meeting in the vibrant city of Glasgow, Scotland for a weekend with speakers including neurologists, patients, and caregivers. There will be safe rooms, treatment workshops, demonstrations, and the opportunity to connect with the cluster community in person. We hope to see you there! Register today! https://cbglasgow2024.planningpod.com/
  5. Please join Clusterbusters at our 2nd U.K./European Conference! The cluster community will gather in person in Glasgow, Scotland for a weekend with speakers including neurologists, patients, and caregivers. The agenda will include safe rooms, treatment workshops, demonstrations, and the chance to share and learn from others' experiences living with cluster headache. We hope to see you there! Register today! https://cbglasgow2024.planningpod.com/
  6. Join Clusterbusters board and staff TOMORROW, March 24 at 12pm ET for an informal chat in honor of #ClusterHeadacheAwarenessDay. Register for this free event: https://conta.cc/42RVIjh
  7. Join Clusterbusters board and staff on March 24 at 12pm ET for an informal chat in honor of #ClusterHeadacheAwarenessDay. (Yes, this is the Sunday after CH Day!) Register for this free event: https://conta.cc/42RVIjh
  8. Attention: Survey closing March 31st! We need your input to help us understand and improve treatments for cluster headache. The Cluster Headache Medication and Psychedelic Use Survey seeks to assess the use and efficacy of medicines, alternative substances, devices, procedures and psychedelic substances people use to treat their cluster headache. We expect this will be one of the largest surveys ever conducted of people with cluster headache. With big data, we hope to find big and better solutions. This survey is for people 18 and older who have been diagnosed with cluster headache. It is an anonymous survey and no personally identifying information is collected. The survey is expected to take 20-45 minutes to complete. The survey must be completed in one sitting (you can’t save and come back to it). The survey is easiest to do on a computer or tablet, but can also be done on mobile devices. The survey is a joint project of Clusterbusters and UTHealth Houston. The results of this survey will be used for research, advocacy, and new treatment development. Please participate in one of the largest cluster headache surveys: https://conta.cc/3NRqa7a
  9. We're counting the days until Clusterbusters 2nd U.K./European Conference! Join the cluster community in the vibrant city of Glasgow for a weekend with speakers including neurologists, patients, and caregivers. The agenda will include safe rooms, treatment workshops, demonstrations, and the chance to share and learn from others' experiences living with cluster headache. Register today! https://cbglasgow2024.planningpod.com/
  10. After his courageous 2 year battle, Clusterbusters is overjoyed to share that Bob Wold has beat cancer.
  11. Join Clusterbusters in raising awareness for cluster headache! Our 9th Annual VIRTUAL #CureForCluster 5k for Cluster Headache Research will be held Saturday, June 22nd, 2024. The #CureForCluster 5k Race Bags are only available to U.S. Residents this year due to rising shipping rates & tariffs. We apologize for the inconvenience. For more information and to register: https://conta.cc/3Dx1mvU
  12. In celebration of Cluster Headache Awareness Day, join our board and staff on MARCH 24 at 12pm ET for an informal chat. (Yes, this is the Sunday after CH Day!) Register for this free event: https://conta.cc/42RVIjh
  13. We can't wait for Clusterbusters 2nd U.K./European Conference! This event is a great opportunity to connect with the cluster community for support, education and advocacy. Join us in the vibrant city of Glasgow for a weekend with speakers including neurologists, patients, and caregivers. The agenda will include safe rooms, treatment workshops, demonstrations, and the chance to share and learn from others' experiences living with cluster headache. Register today! https://cbglasgow2024.planningpod.com/
  14. Alx, I don't know your situation or how much a scholarship might be able to cover, but I do suggest that if you are really interested in attending you apply for a travel scholarship as it's within a day's travel of where you are located. If travel isn't something you can manage, I understand as someone who can't do it myself. But I wanted to make sure you at least were aware that the application was available. Apply HERE. Take care!
  15. Clusterbusters is excited to announce our 9th Annual VIRTUAL #CureforCluster 5k for Cluster Headache Research will be held Saturday, June 22nd, 2024. Cluster headache affects 1 in 1000 people. This virtual 5k allows clusterheads to raise awareness for cluster headaches in their hometowns. This year the #CureforCluster 5k Race Bags will only be available to U.S. Residents due to rising shipping rates and tariffs. We apologize for the inconvenience. For more information and to register: https://conta.cc/3Dx1mvU
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