MichelleC

Hi Larry, While Bob and others greatly appreciated overflowing support that came from everywhere when we shared the news, I think it's best to respect Bob's privacy. Enough people in the community had concerns about his wellbeing that it made sense to share the news, to celebrate and lay questions to rest. Thanks!

Who is joining us at Clusterbusters 2nd U.K./European Conference? We will be meeting in the vibrant city of Glasgow, Scotland for a weekend with speakers including neurologists, patients, and caregivers. There will be safe rooms, treatment workshops, demonstrations, and the opportunity to connect with the cluster community in person. We hope to see you there! Register today! https://cbglasgow2024.planningpod.com/

Please join Clusterbusters at our 2nd U.K./European Conference! The cluster community will gather in person in Glasgow, Scotland for a weekend with speakers including neurologists, patients, and caregivers. The agenda will include safe rooms, treatment workshops, demonstrations, and the chance to share and learn from others' experiences living with cluster headache. We hope to see you there! Register today! https://cbglasgow2024.planningpod.com/

Join Clusterbusters board and staff TOMORROW, March 24 at 12pm ET for an informal chat in honor of #ClusterHeadacheAwarenessDay. Register for this free event: https://conta.cc/42RVIjh

Join Clusterbusters board and staff on March 24 at 12pm ET for an informal chat in honor of #ClusterHeadacheAwarenessDay. (Yes, this is the Sunday after CH Day!) Register for this free event: https://conta.cc/42RVIjh

Attention: Survey closing March 31st! We need your input to help us understand and improve treatments for cluster headache. The Cluster Headache Medication and Psychedelic Use Survey seeks to assess the use and efficacy of medicines, alternative substances, devices, procedures and psychedelic substances people use to treat their cluster headache. We expect this will be one of the largest surveys ever conducted of people with cluster headache. With big data, we hope to find big and better solutions. This survey is for people 18 and older who have been diagnosed with cluster headache. It is an anonymous survey and no personally identifying information is collected. The survey is expected to take 20-45 minutes to complete. The survey must be completed in one sitting (you can’t save and come back to it). The survey is easiest to do on a computer or tablet, but can also be done on mobile devices. The survey is a joint project of Clusterbusters and UTHealth Houston. The results of this survey will be used for research, advocacy, and new treatment development. Please participate in one of the largest cluster headache surveys: https://conta.cc/3NRqa7a

We're counting the days until Clusterbusters 2nd U.K./European Conference! Join the cluster community in the vibrant city of Glasgow for a weekend with speakers including neurologists, patients, and caregivers. The agenda will include safe rooms, treatment workshops, demonstrations, and the chance to share and learn from others' experiences living with cluster headache. Register today! https://cbglasgow2024.planningpod.com/

After his courageous 2 year battle, Clusterbusters is overjoyed to share that Bob Wold has beat cancer.

Join Clusterbusters in raising awareness for cluster headache! Our 9th Annual VIRTUAL #CureForCluster 5k for Cluster Headache Research will be held Saturday, June 22nd, 2024. The #CureForCluster 5k Race Bags are only available to U.S. Residents this year due to rising shipping rates & tariffs. We apologize for the inconvenience. For more information and to register: https://conta.cc/3Dx1mvU

In celebration of Cluster Headache Awareness Day, join our board and staff on MARCH 24 at 12pm ET for an informal chat. (Yes, this is the Sunday after CH Day!) Register for this free event: https://conta.cc/42RVIjh

We can't wait for Clusterbusters 2nd U.K./European Conference! This event is a great opportunity to connect with the cluster community for support, education and advocacy. Join us in the vibrant city of Glasgow for a weekend with speakers including neurologists, patients, and caregivers. The agenda will include safe rooms, treatment workshops, demonstrations, and the chance to share and learn from others' experiences living with cluster headache. Register today! https://cbglasgow2024.planningpod.com/

Alx, I don't know your situation or how much a scholarship might be able to cover, but I do suggest that if you are really interested in attending you apply for a travel scholarship as it's within a day's travel of where you are located. If travel isn't something you can manage, I understand as someone who can't do it myself. But I wanted to make sure you at least were aware that the application was available. Apply HERE. Take care!

Clusterbusters is excited to announce our 9th Annual VIRTUAL #CureforCluster 5k for Cluster Headache Research will be held Saturday, June 22nd, 2024. Cluster headache affects 1 in 1000 people. This virtual 5k allows clusterheads to raise awareness for cluster headaches in their hometowns. This year the #CureforCluster 5k Race Bags will only be available to U.S. Residents due to rising shipping rates and tariffs. We apologize for the inconvenience. For more information and to register: https://conta.cc/3Dx1mvU

Alx, We would love to see you if you are able to make it. Hosting a conference in another location in Europe would require additional funding, as well as very dedicated volunteers. The Scotland location has a number of benefits, and one of those is that our Board Member Ainslie Course lives nearby and oversees the conference including negotiating local deals. Hosting another conference next year will also be dependent on funding. I hope this answered your question.

Clusterbusters is excited to open registration for our 2nd U.K./European conference. This is a great opportunity to support, educate and advocate. Join us for a weekend with speakers including neurologists, patients, and caregivers. The agenda will include safe rooms, treatment workshops, demonstrations, and the opportunity to share experiences and learn from others, collaborate, and have fun in the vibrant city of Glasgow! We look forward to welcoming you! https://cbglasgow2024.planningpod.com/

Have you tried many different medicines for your cluster headache? How effective were they? Have you tried various psychedelics at varying dosages and schedules? How did the psychedelics affect the frequency or intensity of your attacks? If you haven’t already, please take the Cluster Headache Medication and Psychedelic Use Survey. This is intended for people 18 years old and older who have been diagnosed with cluster headache. We want to understand what is working for our community and gain insights to inform advocacy and the development of better treatments. This is an anonymous survey and no personally identifying information is collected. It is extensive and may take 20-45 minutes to complete. The survey must be completed in one sitting (you can’t save and come back to it). The survey is easiest to do on a computer or tablet, but can also be done on mobile devices. This survey is a joint project of Clusterbusters and UTHealth Houston. We thank you for sharing your experiences to help us understand and improve treatments for cluster headache. Please share your cluster headache treatment experience: https://conta.cc/3NRqa7a

To connect with others who understand your experience with cluster headache, check out our virtual support groups and one-on-one support. https://clusterbusters.org/support-groups/ Please consider supporting this and other programs with a one time or recurring donation. https://conta.cc/43RhF1N

Now available for pre-sale! Psychedelic Outlaws: The Movement Revolutionizing Modern Medicine by Joanna Kempner, PhD: How a group of regular citizens debilitated by cluster headache developed their own medicine from home-grown psilocybin mushrooms—producing near-clinical grade protocols, and their fight for recognition in a broken medical system. Pre-order on Amazon: https://a.co/d/eOhGufA Joanna Kempner, Psychedelic Outlaws: https://conta.cc/3RrQs0v

The ClusterBuddies peer-to-peer program connects you with a supportive, empathetic, knowledgeable, and experienced volunteer who understands life with cluster headache and can say, “I've been there too.” If you are a support-seeker and would like to be paired with a support-giver ClusterBuddy, please complete this application form: https://conta.cc/41tWMJy If you are an experienced clusterhead interested in being a support-giver and helping a support-seeker as part of the ClusterBuddy program, please complete this application form: https://conta.cc/3v4avdL Please consider supporting this and other programs with a one time or recurring donation. https://conta.cc/43RhF1N

UT Houston is running a clinical trial of a modified version of Batch’s Vitamin D regimen. For more info, contact nctt.wec@uth.tmc.edu or phone 713-486-7771 https://conta.cc/3N9LVyv High-dose vitamin D plus multivitamin in the prevention of cluster headache: A randomized, double-blind, placebo controlled trial. Who: People with cluster headache (episodic and chronic both welcome!) between 18-70 years old who have cluster headache cycles lasting at least 6 weeks. What: A study to self high-dose Vitamin D (10,000 units per day) plus a multivitamin will reduce the number of attacks over 3 weeks. Where: We are enrolling anywhere in the United States (we will ship you the medication and use your local Labcorp for bloodwork). Why: Many cluster headache patents report that high-dose Vitamin D reduces the number of attacks. There has never been a controlled trial (until now)! How to get more information: Contact The Will Erwin Headache Research Center email: nctt.wec@uth.tmc.edu or phone: 713-486-7771

SAVE THE DATE for Clusterbusters 2nd U.K./European Conference May 31st - June 2nd, 2024. More info coming soon! Contact ainslie@clusterbusters.org with any questions. Please consider supporting this & other programs with a one time or recurring donation. https://clusterbusters.org/donate/

Only a few days left to apply for Headache on the Hill 2024. We hope you join us in DC. Your voice can make a difference! Apply by December 11th at https://qrco.de/hoh2024 Please consider supporting this and other programs with a one time or recurring donation. https://clusterbusters.org/donate/

Please share your experiences with cluster headache. Join in research on psychedelics, medicines, alternative substances and devices in our comprehensive Cluster Headache Medication & Psychedelic Use Survey. The survey is a joint project of Clusterbusters and UTHealth Houston. The survey is open to people 18 years old and older who have been diagnosed with cluster headache. The survey is anonymous and works best on a computer (can also be taken on tablet or mobile device). The results will be used to advance research and advocacy for cluster headache. https://conta.cc/3NRqa7a Please consider supporting this and other programs with a one time or recurring donation. https://clusterbusters.org/donate/

We hope you can join us in DC for the first fully in-person Headache on the Hill 2024 since the pandemic! Your voice can make a difference. Apply by December 11th at https://qrco.de/hoh2024 Register for HOH Q&A webinar on November 29th, 1pm ET: https://conta.cc/3Ria4Fi

We are excited to announce that early registration is OPEN for Clusterbusters 19th Annual U.S. Patient Conference - September 12-15, 2024. Join us for a long weekend of support, education, and family in Rosemont, IL. Sign up with discount code EarlyBird2024 by the end of 2023 and save $25! For more info and to register: https://cbrosemont2024.planningpod.com/