MichelleC

Your voice matters. Our elected representatives in Washington DC need to hear from you. Make your voice heard in support of equitable policies for those impacted by headache disorders. The 18th annual #HeadacheOnTheHill will take place in-person in Washington DC on March 17 & 18, 2025. Headache on the Hill is the only federal advocacy day dedicated to improving the lives of all people impacted by headache disorders in the United States. Together we’ll meet with our elected officials to make our voices heard and impact change. To become a HOH advocate, you must apply by December 15th. Apply today at https://qrco.de/hoh2025 #HOH2025

Happy to see that the event went well! Thanks for sharing photos.

Attention: Cluster headache event in Finland coincides with the Clusterbusters U.S. Conference! Tony Taipale and the Finnish Horton Association are hosting an all-day Horton event on Saturday, 14th September, 2024 at Hotel Arthur in Helsinki. Details and registration here: https://conta.cc/4fLRFen

SXSW 2025 has an open process for public voting in support of the sessions people want to see at the next conference. This voting process just opened and the following proposed sessions need your support to be selected for the conference. This is a low-commitment way to help expand awareness of the powerful healing potential of psychedelics for chronic pain and other physical conditions. Thank you for taking a few minutes to vote for these sessions! Psychedelic Outlaws: Hope, Deceit & Survival: https://panelpicker.sxsw.com/vote/154143 Psychedelics Saved Me | Stories of Physical Healing: https://panelpicker.sxsw.com/vote/149378 Beyond the Mind | Psychedelics to Heal the Body: https://panelpicker.sxsw.com/vote/152846 Go here get started: https://panelpicker.sxsw.com/ Details: All you need to do is create a SXSW account which is quick, easy and free. Your sign-up information is completely confidential. You can then click on the link for each session and cast your vote by clicking the Up-Arrow. (You can also use the search function to look for the session titles.)

The 19th Annual Clusterbusters Conference offers patients, caregivers, and healthcare providers incredible opportunities to meet clusterheads and learn about managing this challenging condition. Our speakers include patients, healthcare providers, caregivers, and subject-matter experts in important concepts such as current treatment knowledge, experiences living with cluster headache, advocacy issues, and ongoing research. In support of improving patient care, this activity has been planned and implemented by Boston University Chobanian & Avedisian School of Medicine and Clusterbusters. Boston University Chobanian & Avedisian School of Medicine is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team. This activity has been approved for AMA PRA Category 1 Credit(s)™. Course Director: Shuhan Zhu, MD We hope you will join us for a long weekend of support, education, and family in Rosemont, IL! For more info including registration, agenda, and learning objectives: https://CBRosemont2024.planningpod.com

SAVE THE DATE - September 24, 2024 Virtual Headache on the Hill Myth: Your opportunity to participate in Headache on the Hill is over this year. Truth: For the first time ever, the Fall virtual Headache on the Hill is a second opportunity to have your voice heard this year! Action: Apply to join the Fall cohort of HOH advocates by July 15th! On September 24th, you have another opportunity to speak truth to power in the halls of Congress from the comfort of your own home! Head to qrco.de/vhoh24 for more information and to apply by July 15th.

Join Clusterbusters, author Joanna Kempner, PhD and guests TONIGHT, Sunday, June 9 at 8pm EST! The 2nd of the 4 sessions will be June 16th as the Psychedelic Outlaws Virtual Book Club continues. For more information and to register: https://cbbookclub.planningpod.com/

Clusterbusters 19th Annual U.S. Patient Conference will be held September 12-15, 2024. It will be an incredible opportunity to join with other clusterheads and learn from experts about how to manage this challenging condition. We hope you will join us for a long weekend of support, education, and family in Rosemont, IL. For more info and to register: https://cbrosemont2024.planningpod.com/

Join Clusterbusters and the Coalition for Headache and Migraine Patients (CHAMP) during June for MHAM. Our aim is to tell the truth about headache diseases and steer people toward different ways that they can take action to improve the lives of people living with these illnesses. Learn how to get involved at https://conta.cc/3V9ZmBJ Share posts so that together we can raise public awareness, address stigma, and build a stronger community of patient advocates.

There is still time to join us for the 2nd Annual U.K./E.U. conference May 31 - June 2 in beautiful Glasgow, Scotland. We are having technical challenges, but you can register at the door and pay with cash. More information here: https://CBGlasgow2024.planningpod.com

New article details how Clusterbusters is sharing what we've learned about psychedelics for pain with people suffering from other conditions. Building awareness and support is how we will increase legal access to psychedelic medicines. https://conta.cc/3wUVtZm

Step 1: Buy the book. Step 2: Upload your receipt to the form linked below. Step 3: Enjoy access to behind the scenes stories and photos from the archives of author Joanna Kempner. https://hachettebookgroup.formstack.com/forms/psychedelicoutlaws_preorderbonus

Join the PSYCHEDELIC OUTLAWS: Virtual Book Club in June to meet the author and fascinating characters who are revolutionizing the treatment of chronic pain. Who are the outlaws when regular people use illegal drugs to escape brutal pain, while respected institutions plunder for profits and prestige? Register to join 4 enlightening and entertaining, interactive events. For more information and registration: https://cbbookclub.planningpod.com/

Positive Results: Psilocybin Reduces Cluster Headache Attacks A new extension phase study from Yale led by Dr. Emmanuelle Schindler proves that repeated, low-doses of psilocybin lead to a significant reduction in the number of cluster headache attacks. After doing a 3-dose pulse regimen of low-dose psilocybin, cluster headache attacks went down from a baseline of 18.4 to 9.8 cluster attacks per week. For more information: https://conta.cc/4d8NI22

Hi Larry, While Bob and others greatly appreciated overflowing support that came from everywhere when we shared the news, I think it's best to respect Bob's privacy. Enough people in the community had concerns about his wellbeing that it made sense to share the news, to celebrate and lay questions to rest. Thanks!

Who is joining us at Clusterbusters 2nd U.K./European Conference? We will be meeting in the vibrant city of Glasgow, Scotland for a weekend with speakers including neurologists, patients, and caregivers. There will be safe rooms, treatment workshops, demonstrations, and the opportunity to connect with the cluster community in person. We hope to see you there! Register today! https://cbglasgow2024.planningpod.com/

Please join Clusterbusters at our 2nd U.K./European Conference! The cluster community will gather in person in Glasgow, Scotland for a weekend with speakers including neurologists, patients, and caregivers. The agenda will include safe rooms, treatment workshops, demonstrations, and the chance to share and learn from others' experiences living with cluster headache. We hope to see you there! Register today! https://cbglasgow2024.planningpod.com/

Join Clusterbusters board and staff TOMORROW, March 24 at 12pm ET for an informal chat in honor of #ClusterHeadacheAwarenessDay. Register for this free event: https://conta.cc/42RVIjh

Join Clusterbusters board and staff on March 24 at 12pm ET for an informal chat in honor of #ClusterHeadacheAwarenessDay. (Yes, this is the Sunday after CH Day!) Register for this free event: https://conta.cc/42RVIjh

Attention: Survey closing March 31st! We need your input to help us understand and improve treatments for cluster headache. The Cluster Headache Medication and Psychedelic Use Survey seeks to assess the use and efficacy of medicines, alternative substances, devices, procedures and psychedelic substances people use to treat their cluster headache. We expect this will be one of the largest surveys ever conducted of people with cluster headache. With big data, we hope to find big and better solutions. This survey is for people 18 and older who have been diagnosed with cluster headache. It is an anonymous survey and no personally identifying information is collected. The survey is expected to take 20-45 minutes to complete. The survey must be completed in one sitting (you can’t save and come back to it). The survey is easiest to do on a computer or tablet, but can also be done on mobile devices. The survey is a joint project of Clusterbusters and UTHealth Houston. The results of this survey will be used for research, advocacy, and new treatment development. Please participate in one of the largest cluster headache surveys: https://conta.cc/3NRqa7a

We're counting the days until Clusterbusters 2nd U.K./European Conference! Join the cluster community in the vibrant city of Glasgow for a weekend with speakers including neurologists, patients, and caregivers. The agenda will include safe rooms, treatment workshops, demonstrations, and the chance to share and learn from others' experiences living with cluster headache. Register today! https://cbglasgow2024.planningpod.com/

After his courageous 2 year battle, Clusterbusters is overjoyed to share that Bob Wold has beat cancer.

Join Clusterbusters in raising awareness for cluster headache! Our 9th Annual VIRTUAL #CureForCluster 5k for Cluster Headache Research will be held Saturday, June 22nd, 2024. The #CureForCluster 5k Race Bags are only available to U.S. Residents this year due to rising shipping rates & tariffs. We apologize for the inconvenience. For more information and to register: https://conta.cc/3Dx1mvU

In celebration of Cluster Headache Awareness Day, join our board and staff on MARCH 24 at 12pm ET for an informal chat. (Yes, this is the Sunday after CH Day!) Register for this free event: https://conta.cc/42RVIjh

We can't wait for Clusterbusters 2nd U.K./European Conference! This event is a great opportunity to connect with the cluster community for support, education and advocacy. Join us in the vibrant city of Glasgow for a weekend with speakers including neurologists, patients, and caregivers. The agenda will include safe rooms, treatment workshops, demonstrations, and the chance to share and learn from others' experiences living with cluster headache. Register today! https://cbglasgow2024.planningpod.com/