Dallas Denny

@Bill H. The new injection is emgality...like most cluster meds it works for some and doesn't for others. Medicare does cover O2 for clusters now and some here have reported success in getting it.......this change was just made in the last 12 to 18 months. @Bejeeber is in the Austin area.....Dr Burish and the Will Erwin institute in Houston are great cluster headache options Yep, if its been 13 years since you've been here it would have been the old orange yabb powered board. DD

Merry Christmas ya'll!!

I'll ad this little jewel that this old fart so identifies with... And I love the sibling harmony of these young ladies...

https://clusterbusters.org/study/ut-houston-batchs-vitamin-d-regimen/?fbclid=IwAR26zK4jCbwyL2LIkcnVOkkj7__c_raUHVbrq08POiltlRiz148Kfsve5wU

@OliWe have a member by the name of Rogier Koning who's had a ongoing project for several years called the nobism app I think....you should be able to glean a lot of info from the responses to his threads. Registrateyourjourney is one of several threads. Dallas Denny

@Bejeeber and to think that we owe all of this to Flash wanting "to get off me tits" as he put it...lmao!

I saw a comment by Flash on his Facebook homepage this morning about a new, soon to be published book about us by Dr Joanna Kempner!! How a group of regular citizens debilitated by excruciating pain developed their own medicine from home-grown psilocybin mushrooms—producing near-clinical grade protocols, and their fight for recognition in a broken medical system Joanna Kempner is the premier expert on the social impact of headache diseases. In Psychedelic Outlaws, she follows a group of people called “Clusterbusters,” a community bound by their experience with cluster headache—a neurological disease so excruciating, its pain is often likened to being shot in the head, repeatedly, multiple times per day. Obtaining a diagnosis can take years and treatments often leave patients worse off than they were before. There's a grim reality behind the disease's nickname, suicide headache. Kempner’s narrative traces this patient movement to its origins to the extraordinary experiments conducted by a man named “Flash” in Aberdeen, Scotland, and then follows it forward, as the idea of using psychedelics for pain begins to gather in the early days of the internet, and then eventually became a full-fledged effort to bring this knowledge to universities. Their story looks at the politics of pain, why some drugs make it to market when others don’t, and our culture’s complicated history with psychedelics.

Hey @Daveengland!! So, I went back and looked at one of your old threads regarding Ketamine.....noticed a comment from you about "shrooms working to relieve the pain".......was this something that you tried, it worked, then stopped working? Where are you located in the UK? Regarding Tom......I just had a chat with him.....sending you a PM... DD

@Daveengland from what I've observed in the Facebook clusterhead communities, dbs seems to be something that ya'lls health system considers much more often than here in the states......I've seen a few UK clusterheads in those groups who've had or are being considered for dbs....I've seen no one report success I'm sorry to say! I've seen several OG posts and comments (Facebook not here) on other threads by Tom in just the past couple of months and that's the first I've seen of him in many years now!! I was under the impression based on his comments that he had some kind of blog or YouTube channel going???

G'mornin @Daveengland!! It has been a spell seen I've seen you here but do remember some of your old threads.....i looked back at one and see that @ clusterheadachesurvivor aka Tom was the last to comment on that thread......as best I can recall ya'll are the only 2 members here over the 14 years we've been that have had dbs....@bejeebers @CHfather??

@spinyI wish girl!! My back just ain't ready for that much traveling yet!!

Well I just snagged this off the Book....not sure what in hell the Boss has been drinking or......lmao!! You go Bob!!!

Thanks for that bit of trivia @eswart!! Timeline sounds about right.....DJ's board went live sometime in 1998! DD

@Axel_BI'm sorry but this is not an acronym that I'm familiar with! Perhaps some one else will come along that can shed some light!! Dallas Denny

Thank ya'll for your comments, kind words, support, and love!! Just wanted to provide ya'll with a miraculous update this morning! I'll never be able to express adequately my gratitude to my surgical team at the hospital and the entire staff at my rehab facility....I am so blessed to have had them in my corner!!! Neck surgery on June 7th, major back surgery on the 10th, and at 11am this morning, June 21st,.......2 freakin weeks later ya'll.....I'm going to walk to our car under my own power, albeit with the aid of a walker, and my Bride is taking me home to our cabin in the woods!! Did I mention that I'm blessed beyond belief?!?!??? My love to all DD

Been missing all my friends here ya'll and thought I'd solicit some prayers, positive thoughts and energy, good juju...however ya roll is good for me and I'll take all ya got to spare right now! So, my 76 year old back and neck finally give out after the many years of abuse that I've inflicted on it!! Had 2 cervical disc's fused and decompressed on the 7th followed by a 3 cervical disc procedure on the 10th, again fused and decompression.....transfered to another facility for 7 day rehab stretch this past Tuesday and looking like I'll get to go home this coming weds for another several weeks of home health and home PT......getting old just sux and bloze as the jeebster would say ya'll! Hoping to be back amongst ya'll soon! Love ya DD

The legendary "Flash"!!

Mark and Dave from Ontario....our fearless leader Bob Wold from Illinois our vice president Lady Ainslie Course from Glasgow, and Joseph McKay from NJ!

Thought I'd watched them all but somehow I missed this clusterbusters YouTube video.....until just a few minutes ago!! I've had the pleasure of meeting and getting to know almost everyone featured several times over the past 13 years! Be forewarned, grab a hanky or some tissues before watching as this video may result in eye leakage...

@Mjedwards409, yes, this regulator will work on a weld ox cylinder (CGA-540 fittings). Unsure of the designation of welding vs medical cylinders.....my rig is approximately 9" diameter and 48" tall. When I still lived in Texas I had a weld ox supplier who leased tanks with a $50 deposit and $6/mo fee...refills/exchange were $18. When I moved to Oklahoma several years ago I was unable to find a supplier who leased so had to buy the cylinder for $300 and exchanges are $23. Just make sure not to let the supplier know that you intend to breathe it!! DD

@Rod H Clusterbusters has been hooked up with the Amazon smile program for quite sometime.....customers select us on their purchases and we receive some small percentage. DD

Welcome to the community @xlrsd In the conference and events section you'll find info on our last conference which was in Chicago last Sept. This year we're having our inaugural European patient conference in Glasgow, Scotland and information will be posted soon in that same section on this year's US conference in Orlando. Dallas Denny

Hey ya'll!! Just wanted to introduce @CraigStewartto anyone who might not know him on Facebook. He's from NZ and has the coolest accent! Lol! I had the pleasure of mentoring Craig with some long distance cultivation tips and busting info a few years back....he also embraced the D3 regimen which worked extremely well for him!! He's become quite the D3 advocate and Guru in the Facebook clusterhead communities, including putting up some really good YouTube videos including an interview with Batch @xxx Welcome to the nuthouse mate!!