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Everything posted by Dallas Denny
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@Royster, I had a chat with Lady Ainslie Course, our clusterbusters vice president, who will be your host at the conference....she's fairly certain that our founder, Bob Wold, will be bringing some Clustero2kits.....send me a pm with your name and she said she would try to put one back for you!!
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@Roysterin my experience over the years, they will be available soon...usually not out of stock for long albeit they are quite expensive when going to other countries but even at $75, it would be worth it for me....been using them for close to 15 years...just retired my 1st a couple years ago!! The best feature for me is it comes with a mouthpiece....having anything touch my face during a hit just adds to the pain but the mouthpiece works great! One tip about O2 efficacy.....myself, Spiny and many others have found that incorporating caffeine into the mix enhances the efficacy of O2...I keep cup in the microwave, nuke it as soon as a hit starts, get on the O2 for a min then sip coffee and blow the steam on my affected eye for 30 secs and back on the O2....that coupled with years of busting have resulted in my being able to dispatch the vast majority of my hits to 5 min when a cycle does break thru! DD
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1st Annual UK/EU Conference
Dallas Denny replied to eileenbunny's topic in Advocacy, Events and Conferences
@Bejeeber...Orlando it is! Some folks have all the luck....only an hours drive for @ThatHurtsMyHead!! Lol...kinda like it was for me when the conference was held in big D! DD -
Update: cluster free flight: tips and tricks
Dallas Denny replied to kat_92's topic in General Board
@kat_92 you win the " best post on the internet" award for the day! DD -
YESSSS!!! As I knock on wood with crossed fingers!! DD
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@kat_92. Xanax....I like your doc!! Best of luck on your journey! DD
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@CHfather.....in my opinion these terms are somewhat blurred.....the amounts we suggest are, in my mind, sub hallucinogenic but that doesn't mean there's not an effect....as someone who has experienced recreational doses as high as 7g, I can assure you that the effects from that amount are indeed hallucinogenic!! In contrast,my typical busting dose is 1.5 to 2.2g which produces distorted open eye and closed eye visuals but the experience is far short of being truly hallucinogenic!! Microdosing is considered to be sub perceptual and for that reason alone I don't believe that clusterheads will ever see that to have any significant efficacy. However, they may find that a sub perceptual dose by itself, or coupled with therapy, is efficacious for other afflictions especially in children.
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@BoscoPiko actually, the primary substance contained in dried vitamin M is psilocybin which is what's known as the prodrug of psilocin......this conversion is normally achieved in the gut as stomach acid breaks down the shrooms.....once converted, the psilocin has the ability to cross the blood-brain barrier and moves out of the stomach and into the blood stream. I never took chemistry in school so I don't understand these processes well, but from what I've read, this conversion process is called dephosphorylation.....on the molecular level it amounts to removing one phosphor atom from the psilocybin molecule. When you dose using the lemon-tek method this conversion is accomplished by mixing dried, powdered M with lemon juice...so when you drink the lemon-tek mixture after soaking for 20 minutes, the psilocin can immediately transfer out of the stomach and into the blood vessels. As to the scope of the research, while the sub hallucinogenic doses may prove effective for some ailments, I believe clusterheads will require a larger dose to see any efficacy! DD
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It's always exciting to read of these new developments, however, this particular piece raises a lot of questions for me! Of the 5 major psychoactive substances in vitamin M, psilocin is the only one capable of crossing the blood-brain barrier and from every thing I've ever read, is very unstable after its conversion from psilocybin. DD
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https://www.bnnbloomberg.ca/revolutionizing-chronic-cluster-headache-treatment-the-science-behind-lobe-sciences-1.1889147
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G'evenin ya'll!! Some permission changes were made today regarding the "Clusterbusters Files" section of the board. Going forward, only moderators will be able to add new content or make changes to existing threads, and members will no longer be able to post comments on existing threads. If you have a question or comment regarding a particular Clusterbusters File, please start a new thread in the "General", "Theory and Implementation", or "Busting Stories" sections as appropriate. If anyone has issues accessing or viewing threads In the "Clusterbusters Files" section Going forward please alert us in this thread. Dallas Denny
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@Jusnobody happy to know it led you to find us!! I expect to see a bunch of newcomers as more folks get to see it! DD
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Welcome to the community!! Dallas Denny
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Anyone else catch this last nite? Seems that the nat geo film crew made a visit to the clusterbusters conference this past year and included that video footage in this documentary titled "LSD.. the psychedelic revolution"...season 1 episode 3......many familiar faces including our fearless leader Bob W!! DD
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So happy to see you're going to attend this inaugural event @Shaun brearley!! I'll never forget my first patient conference in Portland in 2010! Be sure and give my good friend and our vice president of clusterbusters.org, Lady Ainslie, a big hug from me! And BTW, I second the jeebsters notion of your sharing your story if they have openings for speakers dude!! If you'd be up for it I can definitely put Ainslie in touch with ya bud! DD
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I'll chime in with a ditto on the need for a neurologist (preferably one who's also a headache specialist) and an MRI!! The thing that stood out to me in your last comment is the length of your 3.5 hour attack last night!! Ima go out on a limb here and assume that you're not using high flow O2 to abort your attacks??? I've experienced those long assed hits before I found out about O2 so I would urge you to push for a script when you get in to see a neuro doc!! Dallas Denny
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Congratulations, Bob Wold! There was never a more deserving recipient of the National Headache Foundation Advocate award.
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Hey ya'll!! Been a minute since I've posted!! It's been a hectic few months since my Dad's passing but things are finally starting to slow down so hope to have a little more time for the forum!! Had hoped to be in Chi Town today, (hung over from last nites presidents reception and shenanigans that inevitably follow), but couldn't get the stars to align so just want to wish everyone safe travels and a great conference experience!! DO NOT, I repeat, DO NOT participate in the chip challenge if invited!! Lmao!! DD
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@CHfather Regrettably, it's gonna be a no for me this year...just too many scheduling conflicts with the business of settling my Dad's estate.....hopefully next year!! DD
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Thought this might interest those of ya that incorporate energy shots with O2 to abort.....a good clusterhead buddy came for a visit this weekend and told me about these.....called Pure Kick and available here in okieland at Dollar General, 6 pkts for a buck!!! Charles just mixes one in a bathroom sized Dixie cup and keeps it in the fridge....tosses it, hits the O2, aborts, and mixes another shot before he goes back to bed and sez they work just as well as the 99 cent shots that DG carries! DD