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Dallas Denny

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Everything posted by Dallas Denny

  1. @Jrb3rd Can't offer any advice on these particular demand valves other than 40 lpm should be more than sufficient......I will say however that I know a clusterhead in northern California who snags some really great deals on ebay fairly regularly!! Dallas Denny
  2. @Freud Sorry to see you're goin thru hell Brian!! I know you've tried everything out there so won't offer advice but sending positive thoughts and good vibes brother! DD
  3. @Kimbers I'm going to Reiterate Chf's O2 comment.....he needs to hit it as quick as possible after the first twinge of pain......over the years I've found it works best for me in a standing position.....while the ambu bag is filling exhale forcefully and then do a mini crunch to expell the residual air in the lungs.....then inhale the O2 deeply and hold it while the bags refills.....and repeat until abort. Many of us incorporate either energy drinks or shots that contain taurine and caffeine in conjunction with O2 therspy.....others use hot or cold coffee. Sleep deprivation is a terrible side effect of being in cycle for me.....for nocturnal hits he can try adding melatonin before bedtime and/or sleeping in a recliner helps some folks. DD
  4. @Bejeeber You beat me that time jeebster! Lol!
  5. @Kimbers Very important to do all of the cofactors as they all work together and the K2 is needed to move the calcium from the large amount of D3 to prevent kidney stones.....I know it's a bunch of pills but it works great at controlling clusters.....is he doing the loading dose protocol? The guy that originated the regimen is a longtime member here and can help you adjust the regimen as needed for maximum efficacy! His screen name is xxx and you can message him directly with questions if need be. Next, tell us about hubby's O2 set up......it's often not prescribed as needed for it to be effective....should be administered at 15 lpm minimum via a non rebreather mask. Lastly, no way to know about episodic vs chronic at this stage of the game....we call it "dancin with the Beast"..lmao......chronic is defined now as having no more than 30 pf days in a years time. I know folks that were chronic from the git go and I know some that have gone from episodic to chronic AND vice versa!! The good news is the vast majority of the folks I know are episodic! DD
  6. @Kimbers Welcome to the community and thanks for being an advocate for your hubby!! We love our supporters! While a prednisone taper usually does stop the hits, it's primary use is as a bridging med to allow other Frontline clusterhead meds like verapamil or lithium to build to a therapeutic level in your system....however, it doesn't abort the cycle for most folks so the hits will likely return after the taper unless he's lucky and has a very short cycle. Since he's so new there's no guessing how long his cycle will last and cycles tend to morph over the years anyway for most of us.....mine are pretty consistently around 20 weeks followed by an 18 mo remission. How else are his clusters being treated? Two primary things for ya'll to educate yourselves on and put into place are high flow O2 and the anti inflammatory vitamin D3 regimen......O2 will abort individual hits while the D3 regimen will either decrease the intensity and number of hits or it can completely abort the cycle for many, many folks! You can find files on both in the Clusterbusters Files section. Dallas Denny
  7. @CHfather, I can only think of a couple Swiss members in the Facebook groups....one is actually a doc based in Zurich and I'm not sure where the other guy lives....but to your actual question, from what I've observed, there might be a bit more of an international membership thaN what we have on this forum but it's not a significant difference IMO. DD
  8. @ELRa41 I don't recall seeing any posts on the forum from Swiss clusterheads over the past 10+ years. Dallas Denny
  9. @adhura, I'm sure Batch will be along shortly but in the interim, are you including all of the co factors in the D3 regimen?? I know that the K2 is extremely important and although I'm not certain. I think it has something to do with the calcium levels....I know I've seen comments over the years about the k2 preventing the regimen from causing kidney stones. Dallas Denny
  10. @AlanK, the so called "normal range" on the 25 hydroxy D test is 30 to 120 ng/ml, however, the sweet spot for most seems to be in the 80 to 85 ng/ml range. I'm unaware of the values for the other tests Batch reccomends but I imagine that info is included in the D3 document in our Files section Dallas Denny
  11. G'mornin ya'll! A few years back I had the pleasure of meeting and mentoring a fellow clusterhead from New Zealand on Facebook. Along with embracing busting as a treatment for his headaches, Craig became interested in Batch's D3 regimen....really interested!! So, he has teamed up with Pete and began working on an animated production explaining the regimen....this morning he posted this video on his YouTube channel along with our beloved Batch!!
  12. Medicare actually reversed this ruling in just the past couple of weeks and will be covering O2 for clusters now! Remains to be seen as to when the change will actually go into effect.....since I've already paid for my tank and refills are so cheap I'll probably continue to huff my weld ox but this is huge for the clusterhead community! DD
  13. Understand your sentiment @Brad! Finding this place 12 years ago in Oct definitely changed (if not saved) my life!! It's been one helluva ride! Dallas Denny
  14. @Archimedes My hits are 95% nocturnal and I'm a classic 90 min after going to sleep clusterhead.....after the 4th hit I usually say f this and just stay up so sleep deprivation is part of the game ....I've had clusters for 37 years and I avoid daytime naps like the plague when I'm in cycle cuz it's always a trigger!! However, I sometimes get so tired that I'll resign myself to a couple of daytime hits just so I can get 3 hours sleep. Dallas Denny
  15. Actually, just the opposite for me....I was already in a cycle when I got my Pfizer jabs but got 4 glorious days of reprieve after getting the 2nd....but the Beast returned to his wicked ways after the short intermission Dallas Denny
  16. @MaxHead Loved Ashville!! I was stationed at Cherry Point for a year in 65/66 before deployment to Nam....met a chick from Ashville on a weekend trip to Myrtle Beach.....hitched my way to see her several times!! Dallas Denny
  17. @mit12, I've had both jabs of the Pfizer vaccine.....I've been in a cycle since shortly after Christmas.....actually got a 4 day break after my 2nd shot!! DD
  18. @trjonasI know several clusterheads in NC and Virginia but can't think of anyone from SC Dallas Denny
  19. @amardeep, We had a young man from India who attended the clusterbusters conference in Austin, Texas a few years back....although he's a member here, he's not very active. I know I've seen your name in the Facebook group and he is a member there as well. I'll send him a message and ask him to either check in here or reach out to you on Facebook if he can help guide you.. Dallas Denny
  20. Welcome to the community @ERICA! Looks like you've had some good suggestions but I'll reiterate Ch father's advice on Oxygen and the vitamin D3 regimen! Dallas Denny
  21. This study is being conducted by Dr Emmanuelle Schindler who has been a speaker at several clusterbusters conferences and who also is conducting the psilocybin for cluster headaches trials! https://newatlas.com/health-wellbeing/psilocybin-migraine-psychedelic-clinical-trial-promising-results/
  22. @Patheticfern I can't recall any members on the forum from UT, however, I met a fellow at the 2019 clusterbusters conference who lives in SLC so sent a message to him on Facebook messenger for doc recommendations this evening. Dallas Denny
  23. Just read an announcement on the clusterbusters Facebook page for this conference to be held in Milan,Italy in May of 2022!! DD
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