Dallas Denny

Hi concerned mom@ I do indeed know doc B very well and have had his personal contact info since we met at the clusterbusters conference in Portland on 2010!! You could never hope to find a finer neuro than Brian if you're a clusterhead!! Let me shoot him a PM on fb messenger and ask him to drop by....usually doesn't take long for him to respond! DD

Hey Dan Let me shoot a message to our friend dinmerced and ask him to stop by....he is the demand valve procurement guru.....comes across some great deals pretty regularly Dallas Denny

Hi Stev! Welcome to the nut house...err, uh...community I mean! I've enlightened several docs over the past 9 years of busting.....one lady doc didn't even want to hear it once I got to mushrooms.....a couple listened but weren't on board....and 3 were very receptive to the idea and 2 of those 3 actually asked for the website! The best was an eye doc a couple years back.....I had listed clusters on my new patient paper work.... they called me and as we were walking back to the testing room he asked me if I was in cycle or remission?? Knowing that he had at least some knowledge of CH, I talked for a good 20 minutes about busting, clusterbusters, and how it had changed my life.....dude never tried to cut me off or hurry me up and was genuinely interested even asking for the cb website!! When I went back in to pick up my specs a few days later, he did the fitting and told me that he had perused the site and that he would be mentioning it to his other clusterhead patients!! And to top it all off, he was an old jarhead chopper jockey in Nam about the same time I was in country with the 1st Marine Air Wing!! Dallas Denny

Hi clusterhubby! Chf is spot on with his statement on OUCH-UK....contact them for assistance with the H.O.O.F form for home oxygen....ya'lls NHS recognizes oxygen as a front line treatment for clusters so regardless of any docs reluctance to prescribe it, you are entitled to it by your health care system!! Dallas Denny

Wonderful news Vanessa!! Oxygen will totally change your life with ch!!! Before I started busting, I could abort a hit in 8 to 15 min......now, after 9 years of busting, I typically abort in 5 minutes or less....lifesaving stuff! Congrats!! DD

Here's the deal Vanessa, welding gas suppliers are in business to sell oxygen and acetylene.....they really don't give a red rats ass what you're going to do with it, they just want your $ (as long as you don't tell them you plan on breathing it)....... I've used 2 different suppliers and neither has ask me any questions....just walked in and said " I need a large tank of welding oxygen.....but....I had a story ready just in case......if asked, I would tell them that a friend was loaning me his cutting torch rig but he loaned out his O2 cylinder and it was never returned ( this eliminates their asking why I dont need acetylene)......I would use the "cutting torch" vernacular simply because if you're cutting up scrap metal, it won't seem unusual if you're getting refills often.....some folks say they're taking up glass blowing as well DD

Hi Vanessa! Two words.....WELDING OXYGEN!!! You can ditch the hassle of getting a doc to write the script (correctly) and then dealing with the A holes at the oxygen suppliers by going the weld ox route as many of us here have been doing for years!! Medical O2 comes out of the same faucet as weld ox....the difference is that med tanks are vacuumed prior to being refilled while on welding cylinders they just crack the valve and give it a sniff test in the event that it's been contaminated with acetylene. Some welding gas suppliers will lease you a large tank for a small monthly fee (I paid $6/mo) with a deposit ranging from $100 to $150 and refills from $18 to $23. Some suppliers, like my current one, won't lease.....in my case, I had to buy a cylinder for $300 and refills are $20.....drawback is that the tank is large, very heavy, and hard to schlep around, and, you can only exchange it for a full tank at the supplier where you purchased it....oh, and you NEVER want to let them know you're getting it with the intention of breathing it!!! The other associated up front costs are for a welding oxygen regulator fro Harbor freight for around $70 and a good non rebreather mask....I highly recommend the ClusterO2kit from our Sister site clusterheadaches.com for around $25. Dallas Denny

Welcome to the community Dan! I don't have an answer for you off the top of my head....however, I do have access to one of the best neurologist and headache specialist a clusterhead could ever hope for.....Doc B is also a longtime member here under the handle of bostonheadachedoc.....I'll shoot Brian a message on Facebook and ask him to come address your question! Good luck with busting! Dallas Denny Edited to add: I was able to get a response from Doc B .....he was boarding for a flight but said he would drop by later Dan...

Hey Tony I would definitely say contact Doc B......most down to earth, accessible doc I've ever had the good fortune to meet and get to know! Over the years I've contacted him on several occasions!! Dallas Denny

Just realized that the forums 9th Birthday slipped by me last week!! The board went live October 27th of 2009 with just a handful of active members the first few months!! What a long way we've come since those early days! So, a belated Happy Birthday to the Clusterbusters forum and a big Thank you to BobW and DJ for giving us this space! Dallas Denny

Hey Chf! From what I learned from Eileen (conference chairwoman) today details will be released soon but the trials are going to be hosted by Yale so I'm feeling very positive!!! In my opinion, Bol148 is the best shot clusterheads have at getting an FDA approved treatment any time soon!!! DD

Bonnie I think the gist of it was that doc Halpern and his company, entheogen, wasn't able to secure adequate financing. DD

I recognize that face!! Lol! Just saw your post in the Facebook group Bonnie! To answer your question, BOL-148 is pretty much dead in the water the last I heard.....sorry. I know that's not the answer you were hoping for. Dallas Denny

G'mornin ya'll! Continuing health issues for both myself and my wife are forcing me to cut back drastically from my online presence in the clusterhead communities. I've been pleased to see that we've gained many new faces over the past few months that have stuck around to lend support and advice and hopefully take over for the ones of us who have been manning the board since its creation I wish everyone well and good luck in there journey with CH! Onward! Dallas Denny

Hi Vanessa Sorry to read this thread! There's not really any new treatments as yet although we do finally have some real research in progress! Have him try energy drinks or shots at onset as that helps many folks And read up on the anti inflammatory vitamin D3 regimen in the files section.....its important to incorporate all of the co factors and have a blood test but it helps the vast majority of clusterheads who follow the process correctly Dallas Denny

Hey Sid! 5 meo Dalt had a fairly good efficacy for many clusterheads.....unfortunately its manufacture was outlawed in China where the vast majority was made......there are ZERO reputable labs who still have any in stock....there are some who will tell you they have it, and take your order and money, but they'll ship you nothing....as several folks that I personally know can testify to! Sorry for the negative news but that citizen science experiment is dead in the water! Dallas Denny

G'mornin young lady! Sounds like you found ya a good, well informed doc! Here's the link for the Cadillac of masks... http://www.clusterheadaches.com/ccp8/ DD

I'm fairly certain the deadline for scholarship application has passed KT.....hope you get to make it! Dallas Denny

Welcome to the community young man! Oxygen WILL change your clusterhead life Mel! I typically abort attacks in 10 minutes or less!! Docs and suppliers can often times be a pain in the arse though.....script needs to be worded thusly...."oxygen therapy for cluster headaches @ 15 lpm delivered via non rebreather mask".....most of the masks suppliers have are crappy but you can get one made specifically for clusterheads in the store at our sister site clusterheadaches.com for around $30! Dallas Denny

Hi MG Neil Young's Harvest album and Pink Floyd's Brick in the Wall! DD

Hey Clusterman! To my knowledge, it's not necessary to DC the anti inflammatory regimen when you bust....pretty much everything else with the exception of low dose verapamil you need to avoid. DD

G'mornin MG! From every thing I've read over the years gabapentin (neurontin) seems to be very effective for nerve pain from MS and fibromyalgia but I've seen very few glowing reports about efficacy for clusters and many reports of terrible side effects........I don't recall reading anything at all about its use for migraines though. I do know that it's a drug that you absolutely must taper off of very slowly if you try it and decide to DC it!! DD

Hell has officially froze over and the pigs are a flyin or I have died and gone to heaven!! Medical Marijuana is now legal in Okieland!! As a Medicare recipient my license fee is $20 for 2 years to have 6 adult plants and 6 seedlings, 3 oz in my possession out n about, 8 oz possession at home, 1 oz of concentrates in your possession, and 72 oz's of edibles!! Yee Fecking Haw!!!! Dallas Denny

Yes, her clusters and migraines are both well managed by busting I believe

Good evening Purple! Nice to see you posting here again! I'm trying to remember, (my forgetter works much better than my other parts in my old age), but just can't seem to recall whether I knew you were trans or not....nor can I recall if you've interacted here with "Moxie Girl", who also transitioned from Male to female and whose clusters began when she went from a testosterone based to an estrogen based system? Very interesting post....welcome back! Dallas Denny