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About Dandownunder

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  1. Benadryl does nothing or very little for me also. I never get drowsy from It even if taking 100mg for over a week. At least It doesn't make my attacks worse though.
  2. HI plhbn and welcome you have come to the right place. Ive had a decent amount of experience with oral forms of sumatriptan all forms actually apart from the injections as they are $160 i my country. Before I was first diagnosed with Clusters, I and the doctors thought I was having migraines and I was prescribed Sumatriptan tablets. In the early days of my headaches they were much less frequent. The tablets definitely worked better than otc and opioid painkillers I had tried and actually would kill the headache. The problem being they did take a long time to kick in, minimum 30 mins
  3. My apologies if this study has already been posted. I didn't find much on the forum about this via the search bar. I know that Batch has brought up this kind of diet in conjunction with the D3 particually if the D3 isnt getting desired results. Seems according to the study there is something in this diet. Here is the link to study its easy to read and understand. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5816269/ Dan
  4. Hi Juan Pablo Prieto is this the study you are referring to? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5816269/
  5. Dandownunder


    Ive tryed it as a preventative and a abortive to no positive effect unfortunately. I used full spectrum CBD oil with doses around 25mg, it slightly relaxes me after a attack but not enough to warrant the expense of it in my opinion. Every one is different tho Oxygen is king my friend.
  6. Hope it all improves for you Fun times, I been having some "funtimes" of my own aswell particularly on monday. I ran out of oxygen Monday morning and I got a attack at 9am I through everything I had at it, OTC stuff I have at home a energy drink followed by coffee, Ice on the head, hot and cold shower it all did nothing, after a hour and a half of level 7 pain it ramped up to a level 9 and I caved in to using a rizatriptan, haven't used them since i started using seeds over a month ago then half a hour later took another one because the first did nothing, this one either took an hour to
  7. Wow that would be a massive decision to go down that path, I imagine there is very few surgeons around the world that would offer this procedure. It would be good to here from someone first hand that has had this procedure.
  8. thanks Rod good to know im not the only one Ive messed with the dose a bit taking 2.5 and 5mg but I didnt notice any positive effects on sleep or CH then either, I started taking 10mg because thats what i was reading was a good dose for CH, but im thinking obviously it is no good for me. Dont think ill ever take it again.
  9. Hi everyone, A while back I bought a bottle of 10mg melatonin pills. I herd that people used them for CH and for sleep. I mainly bought them for CH but I have also never been able to get a good nights sleep so I thought if they didnt help the CH much then better sleep could be a good side effect. I Was in a particular bad period of CH at the time i started taking them and they seemed to do nothing at all in regards to my CH or sleep for that matter. after a week or two I stopped taking them. My partner took them one night and it knocked her out and she had a bunch of crazy dreams, but for me n
  10. Thanks spiny thats awsome advice. Thanks to everyone you are all so helpful!
  11. Cheers siegfried, My CH are usually always at night, within a hour of falling asleep and then again 3 or 4 hours later and usually in the morning as i am waking up or maybe a few hours after i have woken up. on average i have 2-3 bad ch in 24 hours sometimes only 1 which is nice and thats usually the one after falling asleep or the one in the morning, they are the most regular for me. But i do get them every day, the other night was a new experience for me every 90mins. I get Ch all year but they get worse this time of year in our spring/summer and then they drop in severity and frequency in w
  12. Thanks for your response Batch, ill look into the oxygen demand valve, is there a set up on the market for Cluster Heads? or is it something i have to try and put together? Yeah im well aware of the Vitamin D protocol have studied that Link in detail for the last year and a half, unfortunately its not helping me, ive tried all the doses and adding all the extra recommendations with no success. I still continue to persist out of fear of stopping just in case things get worse.
  13. Thanks for the Link Jon im definitely going to buy that mask for sure. Yeah i looked into delivery they do charge, i live in sort of a semi rural area also so its a bit out of there way. I visited a friend who is into welding today and he gave me a ball park idea of what he has payed for welding oxygen and its substantially cheaper, so yeah in the long run that will be the go i think. An update also when i got my first attack last night as usual within an hour of falling asleep i sucked on the O2 for a full 10 or 12 mins after i got rid of the pain even though i was exhausted
  14. Thanks Chris that is all very valuable information and makes sense to me. I have a mask that was supplied to me it works but i think it could be better. The bag is to small so it fills up to quickly and i can empty it in one fairly deep breath, then depending on what flow rate i put it on determines how quickly the bag refills so 25lp just fills it very fast then the O2 keeps rushing out and feels like its going to waste. I think ill purchase the one from the site here unless i can find a similar one in my own country that will ship quicker. Ill get some bigger tanks from the supplier in the m
  15. yeah after looking at the chart id say i have 2 Es If i have to go back tomorrow ill organize the next sizes up i think. Not sure what that will cost though. they do deliver but i try and save money by picking them up. Its 10$ to fill per E and 20$ to hire for the month so its costing me a lot. if i continue to go through 2 Es a night me and my family will be in financial trouble
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