Dallas Denny

G'mornin Roger! I don't use headache diaries myself, but I have provided a link to this thread in a post to a Facebook group that I'm a member of. Thank you for your time and effort! DD

Hi Angie Welcome to the community! It is typical for the eyelid on the affected side to swell and/or droop....unusual that it would affect both eyes. The lingering pain could be what we refer to as shadows. What has your doc prescribed in the way of treatment? Dallas Denny

It seems that whatever the hell it was that I came down with at the conference turned into a sinus and upper respiratory infection....and then developed into microplazm (walking) pneumonia! Needless to say, been feeling pretty feeble and old.....but, I'm on the mend and hope to be back on a regular basis soon! So nice to see all the new folks posting!! DD

I agree with J here....and I'm not aware of anyone that's ever been busted and prosecuted for "busting....all that bein said, I think our worldwide community has become so robust in the past several years that in the event that someone did get busted, that the community would rally to finance whatever the best defense was.

In regards to Batchs photo bucket suggestion, while I don't, there might be some folks that would have privacy objections about the videos being posted outside of here or fb....but, they're in a non secure area of the board here so.... DD

They do work for me Brendan but I am a member of the FB group and David is on my friend list. DD

Hey Ricardo! Get in touch with Lee Mankins......they actually set up a ne group last year for info on their regional meet ups....there's several other clusterheads in your area that didn't make it to the conference

Made it home safe! Bummed that the mountain cedar sidelined me for much of the conference.....so great to see so many folks in Austin though ( 181 strong) and so grateful that I was able to attend. Safe travel to all!

Lookin forward to seeing you again as well J! I'll take my drive over yours though!! Lol! Safe travels my friend!! DD

Rental car loaded up....fixin to hit the road.....short stop in Big D to pick up a couple bags of brown rice flour (you never know, someone may want to do some baking).....then on to Austin for a whole lotta cluster bud love! Yeeeeee Hawww!! DD

Welcome to the community d'w and thanks for being a supporter! Wishing ya'll much success and pf time! Dallas Denny

Check your PM in box Treelove DD

G'mornin Treelove Wow! Ok young lady, the first thing we need to figure out is WHY the oxygen is not working better.....what flow rate?....are you using a non rebreather mask? It's imperative that you get O2 working so you can get off the steroids before they cause irreversible damage...weight gain is the least of your worries with long term use of that stuff!! And, you need to detox a minimum of 5 days prior to busting so it's important that the O2 is aborting rapidly...I routinely abort in 5 to 8 minutes...just about a quick as a jab of trex!! DD

G'evenin elpo! So sorry the Beast is having his way with you! Where are you located? I ask because our annual conference is next week in Austin! So, since you didn't mention it, do you have hi flow oxygen? DD

Welcome Treelove What J and Chf said! And I personally would explore some of the other tryptamines prior to going the 5-MeO-DALT route. DD

Lmao! Damn Ricardo! Don't wear our room out before I get there!! DD

250 hours!!

Damn! Getting close now! Sittin on ready and rockin on go! Found out yesterday that Ricardo and I are gonna be roomies! Really lookin forward to hearing your presentation and meeting you in person after all these years bud!!

Just 520 hours til the conference!! Woot!! I'm gonna do my part to "Keep Austin Wierd" by showing up! Last I heard thathurtsmyhead was driving up from Florida...anyone else?? Took my cowboy boots to the cobbler yesterday for a tuneup....Austin is a boot scootin town! Yeeeeee Hawww! DD

Wow! That's interesting Chf! I don't remember it affecting me like that...but....my forgetter works better than any of my other faculties..lol! So great that I'll finally get to meet Pete in person after all these years! He was flying carrier based sortees at the same time that I was launching birds for sortees in Nam. DD

G'evenin Darcy I've posted in a Facebook group to see if any of the Canadian members have successfully sourced welding oxygen up there. I know that a longtime member here looked into it and couldn't find any regulatory restrictions in Canada but to be honest, I've yet to see anyone from Canada or the UK talk about using it. If I learn anything from my fb post I'll update here. One comment I have gotten is that you shouldn't have any problem sourcing medical oxygen thru ya'lls health care system but if it's anything like the UK, they seem to have a lot of hoops to jump thru but most usually end up getting it thru NHS at a reasonable price. DD

So sorry Anita! I've only known of oxygen doing that to one other clusterhead....a kid named Michael whose Dad came here to search for help...I wouldn't have believed it had I not witnessed it in person twice...the first time was even with a demand valve! Like Chf, I'm at a loss for an explanation but sending prayers and positive thoughts ya'lls way! DD

Here ya go..hope this helps...the dx is called non convulsive epilepsy https://drive.google.com/file/d/0BwHf09yeneJnTllPQUpYWExncjg/view?usp=sharing DD

G'evenin lp3! So, what I know is they won't approve it for clusters as I understand it, BUT, I just recently read something on facebook about a CCH patient getting approval with the affliction being classified as some type of epilepsy. I'll see if I can find that thread and post a link for you. Dallas Denny

G'evenin Jon! Anecdotal, yes, but you are the 3rd clusterhead I've seen post about improvement or remission following chemo in the past 6 months.....real bummer to be in a position to become privy to those possible side effects I know but glad to hear of the improvement old friend! Dallas Denny