Kristy218

CHFather, Thanks for the links/feedback. I will look up the mask and regulator, I agree, no reason to wait. I definitely need to read about how they are used, so I know what to do. I actually used Verapamil for 4 months, it didn't help. Im gonna check and see what dose I was on, I wonder if it was anywhere near 900mg. I dont think I was on that much. Only meds that worked in the past 10 years, is Inderal(propranolol is the generic, had to discontinue because of swelling and water retention..I went from 125# to 160# in gained water weight) and Triptans work but only for that day..it always comes back. A list of maybe HALF the meds I've taken are: Raglan, Topamax, Verapamil, Effexor, Gabapentin, Inderal, Torradol, DHE slow drip, and numerous strong narcotics to include Kadian and Fentynal,Dilaudid. I have horrible insomnia, melatonin never helped me, neither do other prescription sleep meds. Thats ok though because I eventually sleep. I ABSOLUTELY WILL try Melatonin again once I get this O2 started. I'm always willing to try again. I will read your links tonight, and start my notes. Thank you for directing me thru the links ♡♡-Kristy

Thank you Pebbles, for your feedback. I live 40 minutes from Mayo Clinic, Rochester. They actually have a Mayo Clinic in my town-(Albert Lea, MN). But the Mayo Clinic in my town is just a branch of Big Mayo Clinic..I have a neurologist and other specialists in Internal Medicine I'm working with too. They are not very motivated to figure the problem out, thrilled my New Permanent doctor will be at Big Mayo Clinic..in neurology still. Thanks for directing me to Bob's Summary, I will read it tonight. Also the app to keep record of what I'm doing, is a great idea. It's been long overdue that I make this record. Thank you

Thank You, Dallas Denny I will look into this O2 set up. I have access to welding supplies as my sons Dad is a Diesel Mechanic/Welder. Once I get through this current round of attacks (been 2 weeks so far) I will research this. I tried to go to the sleep clinic to get a machine, but my oxygen levels didn't fall low enough while sleeping to qualify. I tried lol. Possibly taking too much Sumatriptan too, I want to dose my 6MG shots into 2MG shots..like Ive read here. I've tried vitamin D, calcium channel blockers, melatonin, sleeping in my recliner, propped up in bed, maybe 20-30 other things as well. Going to a specialist at Mayo Clinic, Rochester Minnesota in February. Thanks for your reply. ♡♡-Kristy

I've had a mix of Migraine, Tension, Cluster HA for over 10 years. Tried everything..a year ago started Sumatriptan 100mg. Now added Naratriptan for lesser attacks. Now added Sumatriptan 6mg auto injectors. I'm at the end of my hope here...I've been reading this forum, about O2. I've always felt this would help me at night, because it doesn't matter if I sleep 1 hour or 4 or 6, I wake up with a massive headache. Doctors won't listen to me...Botox has been tried 2x for spasms. Can anybody post links and info/advice for me, here? I have children and need to live long enough to fight this. I have Medicaid and Medicare which covers my shots, and Triptans..so far. Thank you for your help (forgive me if I've posted in the wrong area, I don't know much about forums) ♡♡-Kristy