Dallas Denny

G'mornin JP Costs vary....In Texas, I paid $100 deposit for a large cylinder (approx 8" diameter and 50" tall), $6/mo lease, and $17/refill....my supplier in Okieland used to chg $100 deposit, $50/ year lease, and $20/refill....when I started a cycle last year he had quit leasing so I had to pay $300 for a tank and $20/refill. Just don't let them know you intend to breathe it! Medical and welding oxygen comes out of the same spigot...the only difference is that they purge medical tanks prior to refilling while with welding tanks they just Crack the valve and give it a sniff test. I've been huffin it since 2009 with no ill effect. DD

Hi drjparon I can't help you on your first inquiry...I have only medicare so I use welding oxygen. Although I've heard of folks who say they abort with a concentrator, they aren't adequate for most of us.....concentrators don't deliver 100% pure oxygen. DD

I understand BobB....right there with ya brother! DD

G'evenin bdoyle! Welcome to the community (nut house)...so sorry ya need to be here! Looks like everyone has covered all the basics for you but I'm gonna reiterate Chf's comments regarding oxygen.....the ONLY effective treatment for clusters that doesn't come with side effects (for most of us anyway) and is fairly inexpensive. As to your question regarding ONLY having one cycle your whole life.....impossible to speculate....the Beast manifests itself differently for each of us....what works for one doesn't for someone else....there is no "standard" cycle length or remission period (my cycles run from 12 to 20 weeks and I've had remissions as short as 9 months and as long as 2 1/2 years).....been dancin with the Beast for 32 years now! Read,read,read and ask questions.....there's only a few longtime active members here now a days but just between Bejeebers, Spiny, and myself you're drawing on close to 100 years combined experience doing battle with the beast,and Chf adds many years experience as the supporter of his clusterhead daughter! Dallas Denny

G'afternoon Adam Ryan Unless you have some underlying condition (copd)that contraindicates O2, your PCP is misinformed, full of chit, or both!! However, you needed a neurologist referral anyway for an MRI to rule out other nasty stuff and to get a firm dx! Dallas Denny

Hey Sierra! Good to see ya here but sorry the Beast has come knocking! Best of luck with the truffles! Dallas Denny

I've procured and used welding oxygen since 2009....I've used 3 different welding supply shops and never had an issue....just don't tell them you intend to breathe it.....since you have the optiO2mask on the way, you'll just need to get an O2 regulator from harbor freight and either lease or buy a cylinder from welding supply.

Welcome to the community Doc! I was diagnosed in Dallas by a neurologist that was also a CH'er! I'll look forward to meeting you in Austin! Dallas Denny

G'mornin Nikkk! Do a Google search on Dr James Fadiman's and "The Psychedelic Explorers Guide". He is most probably the leading authority on microdosing and actually spoke at a clusterbusters conference a few years back! Dallas Denny

Nice to see ya again Bobb! Austin is going to be a blast....If ya can't find some genre of music you like on 6th st, you might just not like music at all.....and some of the street artists are phenomenal! DD

Hey Shaggy! Been along time my friend! Good to see ya here! DD

Some of ya'll might remember the authors post here requesting interviews....I'm the "older man" referenced who chose to remain anonymous...funny that I spent 30 minutes on the phone answering questions (many of them incriminating which was why I chose anonymity) but was credited with a quote I didn't make?? Lmao! Oh well, press coverage just the same! http://nymag.com/thecut/2015/12/psychedelic-mushrooms-cured-my-cluster-headaches.html

Hi Mit12! This piece doesn’t speak to your specific "memory" question.....However, the fact that psilocybin is creating new neural pathways in the brain makes it seem like not too much of a stretch to think that it might have some affect on memory as well. http://www.businessinsider.com/magic-mushrooms-change-brain-connections-2014-10 Dallas Denny

Wishing all a very Merry (pf!) Christmas and a Happy New Year! Onward Dallas Denny

Yes!! 6th Street here we come!

G'evenin dreamrider! Good info CHfather gave ya on the welding oxygen rig....I've been using it for over 6 years and it works great, you don't have to deal with idiot docs, and it doesn't cost any more if as much as medical O2! During the course of an almost 16 week cycle this summer I spent a total of $80 on 3 large cylinders and still have half a tank in reserve for my next dance lessons with the Beast! In the past I leased tanks with $100 deposit, $6/mo lease, and $17/refill....my supplier quit leasing so I had to buy the cylinder this year for $300 and pay $20/refill. I should add that it's only because I busted every 5 to 7 days through out the cycle that i was able to use that small amount of O2.....I can dispatch the majority of my hits in less than 5 minutes....busting and welding oxygen has more than likely saved my life! DD

Hi dreamrider and welcome to the community! Very thorough intro post,however, I didn’t see a mention of oxygen? As to new developments, read up on 5-MeO-DALT in the busting stories section....This process was developed by a member here a couple years ago and is being used by ch'ers worldwide with much success! We began dancin with the Beast about the same time. ..early 84 here! Dallas Denny

ibh, the larger weld ox tanks all use CGA540 specs....The link CHf gave you for the harbor freight reg is the one most folks get for weld ox rigs....they don't have an Lpm readout...you just crank it open til the bag refilling as fast as you can huff it...don't buy a reg from the welding supply as it will cost significantly more than harbor freight. ...been using one of em for 6 years and it works great! Dallas Denny

G'mornin Enli! It has been awhile since I've seen your name here! Unfortunately you do have to agree to not using any treatments other than those in the trials with the exception of O2 I think. I'm 68 which has disqualified me for all of the latest studies as well (well, you know we grow out of CH in our late 50's. ..pfffttt)! Nice to see you again and glad you're having success with busting! Dallas Denny

BP=blood pressure

http://www.nytimes.com/health/guides/disease/cluster-headaches/print.html

http://www.nytimes.com/health/guides/disease/cluster-headaches/overview.html

G'mornin morning J Damn! I was afraid this was gonna be your answer concerning O2 bud and sorry I was remiss in not asking before now! High flow oxygen will CHANGE your life with regard to CH!! Your doc is completely full of shit! I can routinely abort a hit in 5 to 8 minutes with O2....it won't prevent the next attack but I can get up with a hit, abort, and back to bed sleeping in 15 to 20 minutes! So, there's 2 routes to getting O2...doctors script for medical O2 or setting up your own welding oxygen rig. ..for medical the doc needs to write you a script for "oxygen at 15 to 25 lpm, PRN for cluster headaches delivered via a non rebreather mask".....and you need to order an optiO2mask from the clusterheadaches.com store (less than $30)...made specifically for clusterheads! You'll need an M sized tank (4 1/2' tall and about 10" diameter) for home use and some E tanks for mobile use. If you have problems getting the scripts let me know and I'll fill you in on the weld ox setup....that's what I've personally been using for the last 6 years. I see Pete (Batch) dropped in with some info and that you still had some questions....I expect he'll keep an eye on your thread but if he doesn't respond to your questions today, I'll get another message out to him. DD

Hey Jtux! You might want to check out John Fletchers clusterheadachefoundation.com....He has assembled a lot of info and is the process of writing a detailed history of CH for his site. DD

Hi CCH59! Ralphsters is a trusted source for spores and has long been a friend to the clusterbusters community! Dallas Denny