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lbh

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lbh last won the day on November 28 2015

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About lbh

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  1. I’m piping in here as well. I’ve been episodic since 2008 and was very excited when Emgality was approved. I go into cycle every 1-2 years, and while my cycles began as a 6 week period, over time they have lasted months and been difficult to shake (some of that is my fault, as I am generally impatient with verapamil and prednisone due to the side effects, and trying other medications has historically made me sicker). I went into cycle in October 2019 and immediately began Emgality. I took it for 3 months with absolutely no noticeable side effects, and by mid January of 2020 my cycle
  2. MG - Agreed that hormone levels has something to do with it, certainly in at least some people. This is an interesting set of research by Dr. Rozen - http://www.ncbi.nlm.nih.gov/pubmed/?term=clomiphene+and+rozen+and+%22cluster+headache%22 According to Wikipedia, Clomid does the following in men (off label of course): Clomifene citrate has been found very effective in the treatment of secondary male hypogonadism in many cases.[14] This has shown to be a much more attractive option than testosterone replacement therapy (TRT) in many cases because of the reduced cost and convenience of
  3. Well that's incredibly lousy - I'm sorry to hear that. Let me ask you a couple questions. Prior to your 3 1/2 yrs pain free, were you chronic or episodic? Did the cycle start at the time you were supposed to go into cycle or high cycle? Were you feeling like a cycle was ramping up prior to that maintenance dose? Did anything happen in the off period that might have precipitated a cycle? How old was the MM that you used right before the cycle? Was it from the same batch that you had been using for the prior 3 1/2 years (and therefore, was it 3 1/2 years old)? When you do use MM now, do
  4. Thanks. That's what I'm hoping. If anyone has accidentally busted their way back into cycle, please speak up as I think that would be a really important thing to know.
  5. I'm pretty curious about that last part. How many people have you really seen start a cycle with a preventative bust? My concern is whether dosing at the end of a cycle that is going away on its own to finish it off for good might generate a reoccurrence of the cycle or slapbacks so harsh that you have to start medicating again. Any evidence of that happening, and if so, how prevalent? Thanks.
  6. lbh

    O2 Tank

    Thanks. I tried the D3 regimen about 3 years ago and it didn't seem to make much of a difference. Is there a link to the updated regimen with new dosing and cofactors? Might give it another whirl. I've also found that my B12 is very low, although who the hell knows if that has anything to do with anything.
  7. lbh

    O2 Tank

    Thanks. I'll try that in the morning. The O2 was enough to get me through 5 day detox. I busted big time on Tuesday night. The slapbacks have been completely unbearable and overtook the oxygen. I can't make it another 5 days. So for the first time in over two years, I'm on prednisone, verapamil, immitrex, ambien and klonpin as needed when I start to lose my shit. I've never successfully busted out of a cycle once it takes hold. I've been quite successful extending remission, but once it settles in I'm screwed. I probably can't appropriately express in writing how angry I am about this throug a
  8. lbh

    O2 Tank

    I downloaded the article. If somebody would explain to me how to upload files to the new message board, I'll post it. Thanks.
  9. lbh

    O2 Tank

    Thanks. I'll download and post that article if I can figure out how. I was told that the next size up welding tanks - 125 cu3 inches I think - takes a different sized regulator. People going through welding supply should just make sure they ask the question. I can't imagine the frustration of getting home late at night, finally setting up your O2, and finding out then that your regulator doesn't fit. That by itself might cause my head to explode.
  10. lbh

    O2 Tank

    Thanks all. For the general public, this is exactly what I did: 1. Bought an 80 cubic inch welding O2 tank from Airgas (www.airgas.com), which is a huge national company with branches all over the place. Refills will be something like $20 per tank. The tank itself was around $240. I can carry it, but a hand truck would be better. Now that I'm trying to manage attacks with it, 80 might be a little small to get through the 5 day detox, but it's a manageable size and should be enough to get you through 2-3 days to a bust, if that's the plan. 2. Bought a standard welding regulator fr
  11. lbh

    O2 Tank

    Thanks! Lifesavers as always. I do understand what you're describing - it's like a layered conical spiket that you can then jam on the hose attached to the mask. Hopefully I'll be all set up to win the fight tonight and lay off the immitrex/steroids.
  12. lbh

    O2 Tank

    Thanks! Does this have the nipple for attaching to the mask, and do I need to buy an adaptor, and can I get it there? There is one of these in my neighborhood. Lucky break
  13. lbh

    O2 Tank

    Thanks guys. You are awesome. The link doesn't work to take me to a specific regulator. Can you just give me the part name so I can find it? In other news, the local oxygen supply store won't sell me a regulator because they think it's FDA regulated and I don't have a prescription....FOR THE REGULATOR. That guy is a moron. And an asshole. And dangerous.
  14. lbh

    O2 Tank

    Continuing this, I understand that tanks take certain size regulators. My biggest concern here is buying a tank and ordering a regulator only to find that the regulator doesn't fit on the tank. Are they all standard sizes? Or should I be worried that a 25 LPM medical regulator isn't going to fit on a welding tank? I'm hesitant to ask the welding supply store because I'm worried that they'll refuse to sell me the tank if they think the use is medical. Thanks.
  15. lbh

    O2 Tank

    Good to know. Thanks.
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