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mark m

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  1. mark m

    strange changes to my clusters

    my recent test results : serum 25-oh-d results >120.0 H PSA>are normal Not sure what this means?
  2. mark m

    strange changes to my clusters

    I have tried verapamil but the doctor took me off it before trying a higher dose, No clue why. The only time imitrex has not worked is when I had none at home and the pain got to suicide level by the time I got to the ER and they gave me a dose but I have no clue how much they gave me. Up until a few years ago my clusters were every 3 years but last summer I flew to Boston then to Texas then back to California and the flying caused a short attack that lasted 6 weeks. Now i am in my regular cluster time except they usually laster 12 weeks and I am into the 14th week. I have no idea why they are so bad this time or why I am having pain in places I never had pain in the past such as in my neck and in the roof of my mouth. I will drink more water and get some B complex as you suggested. Thanks, Mark PS and benadryl.
  3. mark m

    strange changes to my clusters

    The lithium 300 mg 1 daily took away 95% of the clusters for about 8 days and then started getting a lot of shadows and now I am back to full pain and my clusters do not react to Oxygen at all and a shot of imitrex does nothing so I was in the ER last night and they gave me a combo of imitrex, dilaudid, zofran & benadryl with saline. I was there for 4 hours and when I left I still had pain in my face. Here it is Sunday I woke up with pain in my face and within 2 hours was at pain level 4 and I put ice on my face while breathing oxygen and it slowly got better. I requested to have the blood tests and have heard nothing yet. I am switching to a different VA hospital asap as I am very unhappy with the Sacramento Mather VA.
  4. mark m

    turmeric info

    For those who use turmeric: https://www.healthline.com/nutrition/turmeric-and-black-pepper
  5. mark m

    strange changes to my clusters

    I am on the D regiment yet this last week has been pure hell every cluster comes on fast and goes right to full pain in seconds, imitrex shot stopped one yesterday then it came right back 10 minutes later. I was at the ER when they gave me the imitrex then they gave me another shot of something else. since then I have been having shadows and I took my first Lithium with my last imitrex pill this morning at the onset of another cluster. If I was alone I would have taken my own life last night. I am not a quitter and would not leave my wife alone . Seems the vitamin d regiment and oxygen are useless at this point. I am at a total loss here. Appetite is almost none existent.
  6. Yes I break into a severe sweating during the cluster attack
  7. mark m

    strange changes to my clusters

    Thank you for your answer-sometimes even after reading others stories it still feels like I am alone in all of this. Thanks again for helping to not feel this way.
  8. mark m

    strange changes to my clusters

    I have to say this: As some of you have read I have both migraine and cluster headaches. So this is my recent report: I am on the vitamin D regiment and have been for a few years however in the past couple of years my clusters have changed as I said before but this year is the worst yet. I am now experiencing clusters then due to lack of sleep I wake up with a migraine ,on top of this my clusters are now with severe light sensitivity. Also last night I started with a cluster around 8 pm I am out of imitrex so I did the oxygen on high for quite some time then went to bed even though I still had pain in my head. approximately midnight I woke up in agony and my wife took me to the ER. The ER gave me a shot of imitrex and toradol and sent me home. I went home and went to bed. I have had pain in my left temple all day. I would try other things but being me I have no idea where or how to get such things.I really am tired of these damn things. My email is mark-mitch@hotmail.com if anyone is interested
  9. mark m

    strange changes to my clusters

    I am already on the regiment and it has helped me a lot although I still get clusters they are not as intense as they once were. My doctor is doing botox injections next week for the migraines and he is hoping it helps for the clusters too.
  10. mark m

    strange changes to my clusters

    I would like to know if the oxygen generator machines work as good as the bottled oxygen because I am retired and myself and my wife would like to do some traveling both by air and by driving in the near future and the machine is very small and I can take it with us. Thank you, Mark
  11. mark m

    strange changes to my clusters

    Thank you I hope you don't mind I sent this to my Neurologist at the Va Hospital via email
  12. mark m

    strange changes to my clusters

    if possible can I get that link to read? Thank you all for the replies, Mark
  13. mark m

    strange changes to my clusters

    Oh ok well I can't even try that stuff if I wanted to because I am a disabled veteran and the VA does random drug testing for people on bp meds or pain meds. But Thank you for the reply. I am still using oxygen and just started using 15 psi because of reading this forum and it helps now but the VA does not give me the non rebreather masks so i ordered one from another site for clusters. Thanks for replying, Mark
  14. mark m

    strange changes to my clusters

    what do you mean you can't bust? I can't take oxygen or imitrex?
  15. mark m

    strange changes to my clusters

    The verapamil did nothing for me now they want to try Lithium?
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