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mark m

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  1. Back in February of this year my neurologists decided to try me on emgality at 300 mg each month for 3 months. The first month I took the medication I had zero migraines at first then as the weeks went by I started getting cluster headaches totally off season for me since my cluster headaches are every three years for approximately 18 weeks and I had them last year. The clusters brought on by this drug were not normal for me in other ways too. My normal clusters hit hard level 10 last about an hour without medication (imitrex) and I get them multiple times over the course of each day and nigh
  2. OK thank you Brain- at first it was due to an infection then it was caused by inflammation. I had the second appointment yesterday to finish the root canal and I am still feeling cluster type pain but I am going to take some aleve prior to starting my day today to see if it helps. I will donate next month, I seem to have missed one of my credit card payments last month so I have to catch up now.
  3. It appears they are slowly going away, I am having what I think is called shadow pains but no full on attacks now. Last night I was not woken up at all in pain. I am also on the last day of the antibiotics. I have not needed imitrex since Tuesday night. As for the emgality I have not had a migraine since the day after I took the emgality and my normal (for me) cluster register at a 10 + in painlevel but none reached beyond a 5 this time around also I normally have 4 or 5 per 24 hour period this time I never had more then 2. SO I may be a bit quick on the good for the emgality but so far so goo
  4. Thanks for the great answers!
  5. first things first I have always had clusters every three years, January 2019 was my last time so I should not have them again for three years from then. Recently I had a root canal upper right hand side which is the same side as my clusters. Now its infected and I am having cluster headaches because of it. Has anyone here experienced anything like this? The pain pills the dentist prescribed does not help I am on antibiotics too. But oxygen and imitrex do take the pain away. I was also put on emgality prior to the dental work. Anyone?
  6. my recent test results : serum 25-oh-d results >120.0 H PSA>are normal Not sure what this means?
  7. I have tried verapamil but the doctor took me off it before trying a higher dose, No clue why. The only time imitrex has not worked is when I had none at home and the pain got to suicide level by the time I got to the ER and they gave me a dose but I have no clue how much they gave me. Up until a few years ago my clusters were every 3 years but last summer I flew to Boston then to Texas then back to California and the flying caused a short attack that lasted 6 weeks. Now i am in my regular cluster time except they usually laster 12 weeks and I am into the 14th week. I have no idea why they are
  8. The lithium 300 mg 1 daily took away 95% of the clusters for about 8 days and then started getting a lot of shadows and now I am back to full pain and my clusters do not react to Oxygen at all and a shot of imitrex does nothing so I was in the ER last night and they gave me a combo of imitrex, dilaudid, zofran & benadryl with saline. I was there for 4 hours and when I left I still had pain in my face. Here it is Sunday I woke up with pain in my face and within 2 hours was at pain level 4 and I put ice on my face while breathing oxygen and it slowly got better. I requested to have the blo
  9. For those who use turmeric: https://www.healthline.com/nutrition/turmeric-and-black-pepper
  10. I am on the D regiment yet this last week has been pure hell every cluster comes on fast and goes right to full pain in seconds, imitrex shot stopped one yesterday then it came right back 10 minutes later. I was at the ER when they gave me the imitrex then they gave me another shot of something else. since then I have been having shadows and I took my first Lithium with my last imitrex pill this morning at the onset of another cluster. If I was alone I would have taken my own life last night. I am not a quitter and would not leave my wife alone . Seems the vitamin d regiment and oxygen are use
  11. Yes I break into a severe sweating during the cluster attack
  12. Thank you for your answer-sometimes even after reading others stories it still feels like I am alone in all of this. Thanks again for helping to not feel this way.
  13. I have to say this: As some of you have read I have both migraine and cluster headaches. So this is my recent report: I am on the vitamin D regiment and have been for a few years however in the past couple of years my clusters have changed as I said before but this year is the worst yet. I am now experiencing clusters then due to lack of sleep I wake up with a migraine ,on top of this my clusters are now with severe light sensitivity. Also last night I started with a cluster around 8 pm I am out of imitrex so I did the oxygen on high for quite some time then went to bed even though I still had
  14. I am already on the regiment and it has helped me a lot although I still get clusters they are not as intense as they once were. My doctor is doing botox injections next week for the migraines and he is hoping it helps for the clusters too.
  15. I would like to know if the oxygen generator machines work as good as the bottled oxygen because I am retired and myself and my wife would like to do some traveling both by air and by driving in the near future and the machine is very small and I can take it with us. Thank you, Mark
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