Dallas Denny

G'mornin Meg and welcome to the community! Spot on advice from Amon! Agree with him that these don't sound like classic cluster symptoms, but I wouldn't rule them out....number one objective is getting him into a good neurologist, preferably one who is a headache specialist to rule out other nasty conditions that mimic clusters!! Diet changes have been reported to help by some folks....I know one longtime member here who eliminated gluten but I think that was to help his migraines. If, in fact, your boy gets a cluster dx, the vitamin D3 anti inflammatory regimen is an excellent preventative avenue, and, with that diagnosis, the neuro should give you a script for high flow oxygen to be used as an abortive measure! So sorry ya'll had the need to join us!! Sending pf thoughts and prayers! Dallas Denny

Senstrom The link Chf listed for the harbor freight regulator is the one I've been using with my welding oxygen cylinder for several years....and I have the clusterO2 mask which works on that regulator as well. Dallas Denny

Hi Darren Since you stated that pipingrock.com ships to Canada, your path to vitamin M cultivation is SOOOOO much easier than in the US!!! I know a young lady in Canada who recently ordered a complete kit for around $125 including s&h.....I thought I had posted the info in a thread in "busting stories" but can't locate it so check your pm inbox and I'll send you the link DD

G'mornin Trackle Many folks have success busting while taking low dosages of Verapamil. And, for many, it takes a significantly high dosage to be effective....up to 960mg daily which, since you already have low bp, I doubt your doc will be on board with. It also causes severe constipation for some in those high dosages.....I heard our beloved Hollywood Dan of Nat Geo fame speak at the 2010 clusterbusters conference in Portland....he brought the house down telling us that what it did for him was to make it cost $2000 to take a crap after he had to be hospitalized for severe blockage!! Lmao! My personal experience is like yours, my bp runs on the lower side so could only get to 360mg/day and it just helped reduce the number and severity of the hits, but, my cycles got longer in duration while I was on it. I've taken all the standard ch meds in my 30 year plus battle and vitamin M is by far the most effective......pharma free since I began busting in 2010 with the exception of a couple of trex jabs when I got caught away from O2 but that was over 5 years ago...nothing but shrooms and O2 since Nov of 2011!!!! DD

Nice Pete!! Definitely one for the ages!

Hi Darren You can source all of the D3 co factors at pipingrock.com DD

Hi Christine! I'll send a message to the conference chair and ask her to contact you and get that fixed for you Dallas Denny

G'evenin John A good friend and fellow member here recently posted in the Facebook group about a deal he had found on some new demand valves complete with regulator....I'll shoot him a pm and see if he'll drop in with that info Dallas Denny

G'mornin Bob! I've been using welding oxygen for 7 years now with no ill effects! The O2 itself is the same as medical....the difference is that medical tanks are vacuumed prior to refill while welding tanks just get a sniff test. Just don't let them know that you intend to breathe it! Dallas Denny

G'evenin Bob! Very important to not leave the K2 out of the D3 regimen! DD

Hey Jeff! Did we lose the ability to see who's logged in at any given time with the upgrade or am I just missing it? DD

Patient #9 reported yesterday that he has been completely pf for 48 hours following his injections!! His longest pf period in his 13 year battle prior to the Jesus shot was 45 hours!! DD

Great news razor! Patient #9 is flying to Okieland today for his appt with doc Mike.....ch began when he was 12 and has been chronic since day 1 for 13 years....fingers crossed!! DD

I received a text from patient #8 (Charles) yesterday evening saying he hasn't had any sign of CH since receiving the injections last Saturday morning!! Dallas Denny

G'evenin michfan! I would urge you to consult with your cardiologist prior to using imitrex with existing heart issues!! DD

Hey moto! Congrats on marriage as well as condolences for the clusters! The complete D3 regimen in on the first page of a thread in the Busting files section. https://clusterbusters.org/forums/topic/1308-d3-regimen/page-1

Hell yeah!!!

G'mornin michfan and welcome to the community! The nasal cannula is completely useless for clusters! At the very least you need a standard non rebreather mask and the best option is a optiO2mask available in the clusterheadaches.com store! I routinely abort hits in 5 to 8 minutes with O2! Dallas Denny

Happy Birthday Jerry! Have a great day my friend! DD

Excellent razor!!! Fingers crossed that it continues to get better for you!! DD

A couple that I met at the Austin conference drove over from Ardmore yesterday evening to visit.....Charles has had clusters for 7 years and has been chronic from day 1......so, he's heading out to see doc Mike this next week! And Hollywood told me via PM that another Clusterhead has an appointment towards the end of the month. DD

G'mornin Kristy and welcome to the community! You posted in exactly the right spot young lady! Unfortunately, Medicare's policy is to not pay for O2 as a treatment for CH! Many of us, like myself, buy our own welding oxygen rig as a work around....It cost me around $375 to get set up with a cylinder, regulator and the proper mask and refills cost $20. Dallas Denny

Hey RazorPP! I was hoping you'd see this dude!! Fingers and toes crossed that this deal works for ya if you decide to try it brother!! Pebbles, my understanding is that Dr Mike gave the shot it's name because he had prayed for a solution to help a dear friend who was suffering from severe chronic pain of some sort. Agreed that the two steroids along with B12 are commonly used drugs.....but my take on it is that this concoction is working because of the combination of IV push and IM injection along with the exact dosage and/or mix of the 3 (he won't divulge the specifics of the amounts used). My concerns are, of course, the use of steroids period, and the fact that one is an IV push....when Hollywood first posted on this treatment in the Facebook group, bostonheadachedoc and another doc from Switzerland both got involved in the discussion and both seemed somewhat leary of the push although they were both interested in learning more and doc B posted that he had communicated with doc Mike in some fashion and was going to try what he considered safe increments. So, I'm really anxious to hear of some success from one of his patients! DD

Hey RazorPP! I was hoping you'd see this dude!! Fingers and toes crossed that this deal works for ya if you decide to try it brother!! Pebbles, my understanding is that Dr Mike gave the shot it's name because he had prayed for a solution to help a dear friend who was suffering from severe chronic name. Agreed that the two steroids along with B12 are commonly used drugs.....but my take on it is that this concoction is working because of the combination of IV push and IM injection along with the exact dosage and/or mix of the 3 (he won't divulge the specifics of the amounts used). My concerns are, of couse,

Hey Jerry! Your daughter and razorPP were 2 I had in mind when I decided to post this here! The concoction is, of course, proprietary....however, bostonheadachedoc has looked into it and is actually experimenting with the dosage on a few patients in his practice I think, however, I haven't seen any threads on anyone who he may have tried it on...probably due to HIPPA rules I would suspect. Dr Mike Lonergan Weatherford, Okla 541-359-6468- Mary will answer Dexamethasone (steroid) Kenalog (steroid) B12 Consists of 1 IV push and 1 I'M injection. Were I CCH, there isn't a doubt in my mind that I'd be takin a short road trip to see doc mike.....and...given Virginia's report of it stopping other joint pain along with the CH, I might give it a go if my upcoming cycle isn't responsive to D3 and vitamin M! Dallas Denny