Dallas Denny

G'mornin Trackle Many folks have success busting while taking low dosages of Verapamil. And, for many, it takes a significantly high dosage to be effective....up to 960mg daily which, since you already have low bp, I doubt your doc will be on board with. It also causes severe constipation for some in those high dosages.....I heard our beloved Hollywood Dan of Nat Geo fame speak at the 2010 clusterbusters conference in Portland....he brought the house down telling us that what it did for him was to make it cost $2000 to take a crap after he had to be hospitalized for severe blockage!! Lmao! My personal experience is like yours, my bp runs on the lower side so could only get to 360mg/day and it just helped reduce the number and severity of the hits, but, my cycles got longer in duration while I was on it. I've taken all the standard ch meds in my 30 year plus battle and vitamin M is by far the most effective......pharma free since I began busting in 2010 with the exception of a couple of trex jabs when I got caught away from O2 but that was over 5 years ago...nothing but shrooms and O2 since Nov of 2011!!!! DD

Nice Pete!! Definitely one for the ages!

Hi Darren You can source all of the D3 co factors at pipingrock.com DD

Hi Christine! I'll send a message to the conference chair and ask her to contact you and get that fixed for you Dallas Denny

G'evenin John A good friend and fellow member here recently posted in the Facebook group about a deal he had found on some new demand valves complete with regulator....I'll shoot him a pm and see if he'll drop in with that info Dallas Denny

G'mornin Bob! I've been using welding oxygen for 7 years now with no ill effects! The O2 itself is the same as medical....the difference is that medical tanks are vacuumed prior to refill while welding tanks just get a sniff test. Just don't let them know that you intend to breathe it! Dallas Denny

G'evenin Bob! Very important to not leave the K2 out of the D3 regimen! DD

Hey Jeff! Did we lose the ability to see who's logged in at any given time with the upgrade or am I just missing it? DD

Patient #9 reported yesterday that he has been completely pf for 48 hours following his injections!! His longest pf period in his 13 year battle prior to the Jesus shot was 45 hours!! DD

Great news razor! Patient #9 is flying to Okieland today for his appt with doc Mike.....ch began when he was 12 and has been chronic since day 1 for 13 years....fingers crossed!! DD

I received a text from patient #8 (Charles) yesterday evening saying he hasn't had any sign of CH since receiving the injections last Saturday morning!! Dallas Denny

G'evenin michfan! I would urge you to consult with your cardiologist prior to using imitrex with existing heart issues!! DD

Hey moto! Congrats on marriage as well as condolences for the clusters! The complete D3 regimen in on the first page of a thread in the Busting files section. https://clusterbusters.org/forums/topic/1308-d3-regimen/page-1

Hell yeah!!!

G'mornin michfan and welcome to the community! The nasal cannula is completely useless for clusters! At the very least you need a standard non rebreather mask and the best option is a optiO2mask available in the clusterheadaches.com store! I routinely abort hits in 5 to 8 minutes with O2! Dallas Denny

Happy Birthday Jerry! Have a great day my friend! DD

Excellent razor!!! Fingers crossed that it continues to get better for you!! DD

A couple that I met at the Austin conference drove over from Ardmore yesterday evening to visit.....Charles has had clusters for 7 years and has been chronic from day 1......so, he's heading out to see doc Mike this next week! And Hollywood told me via PM that another Clusterhead has an appointment towards the end of the month. DD

G'mornin Kristy and welcome to the community! You posted in exactly the right spot young lady! Unfortunately, Medicare's policy is to not pay for O2 as a treatment for CH! Many of us, like myself, buy our own welding oxygen rig as a work around....It cost me around $375 to get set up with a cylinder, regulator and the proper mask and refills cost $20. Dallas Denny

Hey RazorPP! I was hoping you'd see this dude!! Fingers and toes crossed that this deal works for ya if you decide to try it brother!! Pebbles, my understanding is that Dr Mike gave the shot it's name because he had prayed for a solution to help a dear friend who was suffering from severe chronic pain of some sort. Agreed that the two steroids along with B12 are commonly used drugs.....but my take on it is that this concoction is working because of the combination of IV push and IM injection along with the exact dosage and/or mix of the 3 (he won't divulge the specifics of the amounts used). My concerns are, of course, the use of steroids period, and the fact that one is an IV push....when Hollywood first posted on this treatment in the Facebook group, bostonheadachedoc and another doc from Switzerland both got involved in the discussion and both seemed somewhat leary of the push although they were both interested in learning more and doc B posted that he had communicated with doc Mike in some fashion and was going to try what he considered safe increments. So, I'm really anxious to hear of some success from one of his patients! DD

Hey RazorPP! I was hoping you'd see this dude!! Fingers and toes crossed that this deal works for ya if you decide to try it brother!! Pebbles, my understanding is that Dr Mike gave the shot it's name because he had prayed for a solution to help a dear friend who was suffering from severe chronic name. Agreed that the two steroids along with B12 are commonly used drugs.....but my take on it is that this concoction is working because of the combination of IV push and IM injection along with the exact dosage and/or mix of the 3 (he won't divulge the specifics of the amounts used). My concerns are, of couse,

Hey Jerry! Your daughter and razorPP were 2 I had in mind when I decided to post this here! The concoction is, of course, proprietary....however, bostonheadachedoc has looked into it and is actually experimenting with the dosage on a few patients in his practice I think, however, I haven't seen any threads on anyone who he may have tried it on...probably due to HIPPA rules I would suspect. Dr Mike Lonergan Weatherford, Okla 541-359-6468- Mary will answer Dexamethasone (steroid) Kenalog (steroid) B12 Consists of 1 IV push and 1 I'M injection. Were I CCH, there isn't a doubt in my mind that I'd be takin a short road trip to see doc mike.....and...given Virginia's report of it stopping other joint pain along with the CH, I might give it a go if my upcoming cycle isn't responsive to D3 and vitamin M! Dallas Denny

Hey ya'll! This is a copy and paste of a thread that "Hollywood Dan" posted in a facebook group this morning. Let me say in advance that there are some naysayers regarding this subject due to the docs past legal issues, and I respect those folks reservations but we all have to decide for ourselves to what lengths we're willing to go to tame or slay the beast so wanted to make sure this info is available here as well. "Jesus shot update. So far, I believe 5 chronics and one episodic have tried the shot. It's a 3 minute process consisting of 2 steroids and vitamin B12. Dr Mike Lonergan in Weatherford Ok came up with this anti-inflammatory shot, and says Jesus inspired it; thus the name. I'm patient #1.... I had my shot on 5-11-16 and went from daily and nightly screamers to completely pain free immediately. I have not had a hit since. I had 3 nights of shadows mid November and got another shot 11-21-16. No noticeable side effects other than an increased appetite, which is great for me. Patient #2 RL. Ryan went from CCH to completely pain free, having one hit the day after his shot. His headaches returned after four and a half months. He got a "pimply rash" that the doctor said isn't that unusual for a young guy full of testosterone. Patient #3. DE. David is chronic. He had the shot twice with no results. He is the only complete failure, which breaks my heart. Patient #4 ET. Eric took the shot several months ago and didn't get complete remission, although he did get some relief. He scheduled a second shot, which the doctor DOESN'T charge for. By the time he got his second shot, he had become completely pain free, but went ahead and got his second shot. He is still completely pain free. No side effects that I know of. Patient #5. VR. Vale is episodic. She got the shot a few months ago. She is in her longest remission in her 13 years of ECH. No side effects reported. Patient #6. VA. Virginia got the shot a few months ago, and like Eric, didn't get immediate results. She got a second shot at no charge and is now 100% pain free. She is enjoying Prosecco for the first time in years, as alcohol is a sure trigger for her. Sorry I don't have exact dates, which I would really like to have. I'm posting this because I am completely pain free and want others to give this shot a try, if they find they are out of options. The shot costs $300 and is not covered by insurance. Dr Mike was convicted of money crimes and is x con. That concerns me less than a pimple on my ass. I will defend him, as he has helped me and the others in a huge way." Dallas Denny

G'mornin jle! Welcome to the community but sorry you needed to join us! So, as Chf said, high flow O2 is a clusterheads best friend (lifesaver).....most of us require a min of 15 lpm delivered via a non rebreather mask to abort a hit.....I use welding oxygen and routinely abort hits in 5 to 8 minutes! Since your current doc already has you on some supplements, look into the vitamin D3 anti Inflammatory regimen.....this regimen requires ALL of the co factors to work but it is very effective for roughly 80% of clusterheads.....most of the co factors can be sourced at wally world but you can save substantially by ordering online from "piping rock"....you can start the regimen immediately but you should have your doc do blood work to determine your D3 level....normal parameters are 30 to 120 ng/ml (Mine was 19.9) but after reaching 80 to 85 ng/ml many folks report complete remission or see a reduction in the frequency and severity of hits! Also, as Chf shared, we have a longtime member who is a neurologist and professor in Boston.....I've had the pleasure of meeting him several times and he is a tireless advocate for the Clusterhead community!! More than happy to get you hooked up with him if you'd like. Finally, I know several clusterheads in NY, MA, and NH who have meet n greets on a regular basis....nothing like meeting another person that "gets it" and fully understands what you're dealing with....and, if you can find a way, join us in Chicago in Sept for our annual conference....we'll probably top 200 attendees...we had 185 this past September including folks from India, Scotland, and Norway! Dallas Denny

So sorry to read this Jerry! This is definitely a new scenario to me my friend! I know your daughter is a longtime clusterhead so if this isn't a symptom she's experienced in past cycles, I'm ditto for getting into a neuro for a consult ASAP!! DD