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ThatHurtsMyHead last won the day on October 28

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About ThatHurtsMyHead

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    Loving Life!!!

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    Tampa, FL

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  1. ThatHurtsMyHead

    Question about fatigue

    BOF, You can always edit your own posts as well. Cheers, J
  2. Hi "ThatHurtsMyHead"
    I'm new here, been a CH sufferer since 1983, only properly diagnosed about 4 years ago. Yes really. 30 years.

    Anyway, the reason I'm writing on your feed - I was reading in another post that you were in the military and were misdiagnosed. As was I. I was a communications specialist in the Army (Microwave communications - often speculated about cause and effect, but that's another story).

    I had my first attack in the military. It was without a doubt the worst attack I've ever had, so much so the barracks CQ had me sent to the base hospital. There, they didn't seem to know what to do, so they gave me an injection of Demerol, and sent me on my way. It worked, but then you could've hacked my arm off with a grapefruit spoon at that point, and I wouldn't have felt it. 

    No doctor ever got past the the basics. Hell, I didn't even start putting the symptoms together for a few years. There wasn't an internet then, so not a lot of information available to the average lay person. 

    My question to you - did you ever get a disability rating from the VA? All these years later, I'm being told by several friends I should go file. But other than the possible existence of admission records from the base hospital, I have no real record of this being a problem while I was in. Due to a death in the family while I was out-processing, my paperwork was rushed, and I kind of got screwed on a lot of stuff. 

    I'd appreciate any help or advice you can offer. 

    P.S. - I'm now maintaining well with Sumatriptan auto injectors. My corporate insurance plan only deems it necessary to give me a dozen every 3 months, so I make sure to get the refills even when I'm off cycle, so I can stock up. I'll be looking into "busting" after doing a LOT more research. 

  3. ThatHurtsMyHead

    I’m new here. So happy to find this place!!

    I think Seth meant to post this here: Crazy thing, this my 3rd cycle. And, also on this one, it will skip a day, skip almost two days and come back. And also the time of episodes have varied. I’m episodic and seems to be every 2 years (2015, 2017, now 2019). These clusters super suck, I tried explain it to co-workers as at times I need run off and deal w/ this crap. But, explaining really don’t bring justice. No obvious open wound or blood shown, people don’t understand to much. But, this my first cycle really using oxygen, finally got this doc to prescribe me. Last cycle, she literally told me during a visit and discussion that, “I just gotta deal with it”! Tell me how yal feel about that. I was hot and damn near cried, like this stupid darn ......... Oh well, thanks be to “God” always.
  4. ThatHurtsMyHead

    Risk / Dangers of Oxygen?

    Exiegous, If you haven't gotten that script for sumatriptan filled yet, don't bother. Oral sumatriptan is pretty useless for our condition. You need the 6mg auto injectors. I was given the oral stuff wayyyyy back, and would just throw it up after 10 minutes of an attack. Also, it takes too long to get in your bloodstream to help us at all. The auto injectors usually work within 3 to 5 minutes. (I don't like the stuff, but it can be a life saver when nothing else is available). Cheers, J
  5. ThatHurtsMyHead

    Risk / Dangers of Oxygen?

    Exigeous, Oh and don't forget to stay on the O2 for 5 mins or so after the attack stops. That normally prevents the attack from coming right back. Cheers, J
  6. ThatHurtsMyHead

    Risk / Dangers of Oxygen?

    Exigeous, Correct, as Spiny mentions. O2 toxicity is only a risk at higher pressure than sea level PPO (partial pressure of oxygen) - SCUBA Diving. The only real risk at sea level or lower pressures is alveoli collapse in your lungs, (Those are the sacks that transfer Oxygen to your bloodstream and extract CO2 from your blood) but that's only a risk if staying on O2 for very long periods of time. This is due to Nitrogen washout. Nitrogen washout in the lungs can be prevented by simply taking a breath of regular air every 20 to 30 minutes when breathing 100% O2. That adds enough Nitrogen back to your lungs for proper function for a very long time. Definitely O2 is the #1 abortive. There's no side effects and it's much safer than ANYTHING the doc can give you. Cheers, J
  7. ThatHurtsMyHead

    Anyone in Florida?

    Just messaged you my fellow Floridian. Cheers, J
  8. ThatHurtsMyHead

    2019 Conference how is/was it?

    Home safe as well. Loved seeing everyone, newcomers and old. :P) Love to all CH'ers! J
  9. ThatHurtsMyHead

    2020 Conference

    I think Florida (Tampa st pete) would be awesome.. :). Afternoon sail for the first 20 or so. cheers, j
  10. ThatHurtsMyHead

    2019 Conference how is/was it?

    Just got to the hotel. Already saw a few familiar faces. Love to all CHers. ;) J
  11. ThatHurtsMyHead

    Newbie here from Iowa

    That jroy guy is spamming all over the web. He's banned here for life... J
  12. ThatHurtsMyHead

    O2 trick

    Funny, I just did a google search and found almost that exact same issue. J DON'T MIX OXYGEN AND OIL-1.pdf
  13. ThatHurtsMyHead

    O2 trick

    O2 doesn't need a flame to spontaneously combust with hydrocarbons. I know lots of people do this, so I'm not knocking it. Just wanting people to be aware they should be very careful. Example: Say a mechanic comes in with oily hands and is getting hit.. He goes for the bag and bang... He's on fire in a second. Hydro carbons are all around us. Again I know lots of people do this without issue, but just wanting there to be warnings also. Cheers, J
  14. ThatHurtsMyHead

    Guest users. Welcome!

    Welcome Chadman. Cheers, J
  15. ThatHurtsMyHead

    O2 trick

    We all will do about anything when the CH monster is on our back. The only challenge I see to this method is it could be a bit dangerous if someone were to use a bag with hydrocarbons in on or around it. 100% O2 will flash burn when exposed to hydrocarbons. I've done some pretty risky stuff myself (and didn't even know it at the time) when my monster is in full swing. Cheers, J