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ThatHurtsMyHead last won the day on June 25

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About ThatHurtsMyHead

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    Loving Life!!!

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    Tampa, FL

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  1. ThatHurtsMyHead

    What would you do

    Have you tried energy drinks yet? Most people find they work great to soften attacks. I usually slam half a can of monster or redbull at the first sign of an attack. It seems the oxygen works a lot better if I do that just before getting on the O2. Also, I've never had a hard time falling back asleep at night either (only half an energy drink though). When the post hit exhaustion kicks in I'm right asleep after the attack. PFW, J
  2. ThatHurtsMyHead

    When's my next cycle?

    dmlonghorn, Data shows there are less people with CH the closer to the equator we live. As far as episodic cycles. I think that's a complete mystery. I was episodic a long time ago and cycles would start at most anytime. Sometimes they'd skip a year, sometimes I'd have 2 in a year. I think its most common for episodics to only get one cycle a year though. PFW, J
  3. ThatHurtsMyHead

    New with questions, and possibly misdiagnosed

    Ok, the condition I was trying to think of just popped in.. ha ha.. Chronic paroxysmal hemicrania - It's almost exactly like CH, but affects women more than men (supposedly anyway). It also has attack duration from a few to 30 minutes. One BIG difference between CH and CPH, is it us usually treatable with indomethacin. Indomethacin doesn't work on CH, so it's a good test doctors use to distinguish which condition a patient has. Cheers, J
  4. ThatHurtsMyHead

    New with questions, and possibly misdiagnosed

    Nicole, I'm certainly no doctor so take any info I might give as just a vague opinion. The location and description of your attacks sound very much like CH accept for one aspect. CH attacks normally last from 1 to 3 hours. I think you posted yours last from a few to 20 minutes. There are several other head conditions that are very similar to CH and in the same family (trigeminal autonomic cephalalgia), but have shorter duration of attack pain. SUNCT is the first one that comes to mind that has shorter duration. They are normally 1 to 6 minutes and have similar treatment as CH. There are a few others, that actually have better treatment options than CH (though sorry, my memory is bad sometimes and I don't recall the names off the top of my head). Try researching trigeminal autonomic cephalalgia, as that's the primary title for most flavors of CH type attacks. PFW, J
  5. ThatHurtsMyHead

    New to Cluster Buster's

    Tracy, ++ spiny's post. Our alternative meds are actually much safer than society has told us. To make it easy it's best to have a good Set and Setting. Have a friend, someone you feel comfortable with hang out with you. It'll help make the experience much more relaxing. Please post questions in the "Theory and Implementation" folder. There's lots of very knowledgeable people around that can help answer most any question you might have. Cheers, J
  6. ThatHurtsMyHead

    Concerned After Long Remission

    Nhyki, I'm sure others will chime in here shortly with information better than mine. Since it's been so long since you've had a CH cycle. The first think I'd do is go get a CT (or other) scan to make sure it's nothing else going on. Other than that, the next thing I'd do is get oxygen (100 percent high flow). High flow Oxygen works wonders as an abortive if used properly. CH is a strange thing. Those that aren't chronic can have very wide ranges in remissions. I think the most common is 1 year between cycles, but longer periods are quite common, 10 years being pretty rare, but still possible. Please keep us posted how you're doing, J
  7. ThatHurtsMyHead

    What would you do

    Yann, Sorry to hear of your rough time. Have you tried magic mushrooms, LSA or LSD? There are thousands (or likely more by now) that have found better relief from indole ring hallucinogens than anything the doctor can prescribe. I agree with your thinking about not taking medicines that can cause more damage than help. At low doses hallucinogens are very safe and very effective at turning our CH off. J
  8. ThatHurtsMyHead


    Postdrome - I had to look that up. When my attacks stop (always after 100 percent O2), I'm wiped out. Completely exhausted, but no headache, or pain of any kind. I sometimes have a slight head buzz (from the O2). Even after slamming an energy drink, I usually pass out (or fall asleep) within 3 minutes of my attack completely stopping. J
  9. ThatHurtsMyHead

    Does verapamil work as a preventative for you?

    The first year I took it, it seemed to work (or my cycle was stopping anyway, I'll never know). The next year, it didn't work and gave me PVC's (Premature Ventricle Contractions - Very scary heart palpitations), that took close to 2 years to completely go away after stopping the verapamil. Never touch that stuff again. After the heart palpitations went away, I went from episodic to chronic. J
  10. ThatHurtsMyHead

    Newbie - Clusters and lower / irregular heartbeat?

    3800sc, Yep, those are medical "E" tanks. Looks like three of them have the seals and should be full if they are. You could use the 3, but sadly you'd need a prescription to get them filled. Also it's very likely those are owned by a medical supply company. Most E tanks are only loaned out for use and could possibly be confiscated if you tried to get them filled by a medical supply company. (not positive, but I'd say pretty likely). (I had a med company tell me they'd confiscate two I had from another company if I tried to get them filled). I just did some quick research on an oxygen supplier (airgas). Looks like there's some pretty good O2 prices. $37 to fill a 200 cubic foot tank (which is really BIG). They don't show the cylinder purchase price on their website, but the last time I bought one about that size it was about $175. Cheers, J Ah, I see you just posted a response to CHF. I'll go ahead and post my response, but it's a bit out of date now. J
  11. ThatHurtsMyHead

    Message Board Issue and Upgrade

    All, The message board upgrade is complete. Please, Please, Please post any issues you encounter here. Thank you! J
  12. ThatHurtsMyHead

    Message Board Issue and Upgrade

    Test post... J
  13. ThatHurtsMyHead

    Message Board Issue and Upgrade

    Jon, If I remember right, I think the system only sends notifications once a day. I'll look into it. J
  14. ThatHurtsMyHead

    Message Board Issue and Upgrade

    Friends, Wed 27 June the message board will be down for a few hours during the day for software upgrades. We'll get it back up as soon as possible after the update and testing. Hopefully this will resolve the signup issues some have experienced. Cheers, J
  15. ThatHurtsMyHead

    Message Board Issue and Upgrade

    All, Just wanting to keep everyone in the loop that we have two things with the message board going on. 1) Currently new registrations aren't working. Anyone that's attempted to register (for access to the busting content) isn't able, due to a security flaw in the system. 2) To address the registration issue, we're scheduling an upgrade to the latest message board software version. We anticipate the upgrade to be sometime between 25 and 29 June. I'll post a specific date and time once it's been set. Please feel free to post any questions or concerns. Cheers, J