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ThatHurtsMyHead

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ThatHurtsMyHead last won the day on December 13 2019

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About ThatHurtsMyHead

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    Loving Life!!!

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    Tampa, FL

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  1. GBeth, I sympathize with your situation. In some ways it seems similar to having CH. I would ask that you use caution in any decision you make on treatment. I don't know if it's fact or fiction, but when I did my research on self treatment many years ago. I read a good bit about psychedelics triggering deeper psychological issues in people that already had them, or had latent issues. If you do seek self treatment please make sure you have good set and setting: https://en.wikipedia.org/wiki/Set_and_setting Set and Setting is important for not only the experience, but for the after experience as well. A good sitter should not drink or take anything during a dose, and should also have a very good understanding of Set and Setting, what they should do and some things they should not do while being a sitter. A peaceful listener in my opinion is the best sitter. I'm certainly no doctor, nor have any experience with the type of challenge you're experiencing, but wish you luck, and sending you positive thoughts for your recovery. Love all, J
  2. ThatHurtsMyHead

    One more step on a path to legal availability of psychedelics

    Pebbles, Interesting info, and thanks for that other post report. I try to get to them as soon as I can, when I see any reports. Cheers, J
  3. ThatHurtsMyHead

    Oxygen question for people in FL!

    Kat, Any neurologist that would refuse to prescribe O2 is either an idiot, inept, incompetent or (D) all of the above. Fire that one, quick... Great news on your primary doc. I'm sorta brainstorming here, but wonder if we should make a list of doctors not to see for those of us with CH. There seems to be a lot more incompetence in the doctor realm than competence. Just thinking out loud. Cheers, J
  4. ThatHurtsMyHead

    They’re back after 5 years

    meme, Sorry they're back, but glad to hear you already have a path to get pain free again. Do you have O2? Cheers on your dose today! PFW, J
  5. ThatHurtsMyHead

    south florida

    Hi jimmy's, Glad to hear your CH is mild. I don't think wellbutrin helps our CH, but I think quite a few of us take it for one thing or another. Tampa / St Pete here, Cheers, J
  6. ThatHurtsMyHead

    the joy of CH

    Welcome its okay, As many have said, glad you found us, sorry you have to be here. Those other CH'ers and supporters here are great people. Oh have you tried aspirin and laying down yet? (ok, kidding.. ) There are several Aussies that check in here, try a search and see who you can tag (if you need help reaching out, drop me a note). O2 is definitely the best abortive out there. No side effects and it's very cheap (and mostly easy) to obtain. Cheers, J
  7. ThatHurtsMyHead

    Support Group

    Hosie, Feel free to introduce yourself. There are lots of great people here. Try grazing through the posts, it's easy to get to know other CH'ers that check in here. Cheers, J
  8. ThatHurtsMyHead

    LSD clinical trial

    WOW, great Info... The word has gotten out and picking up momentum!! We can be pain free. Just gotta deal with bureaucracy first... J
  9. ThatHurtsMyHead

    My first share - My experience

    BustOrNothing, Welcome to the family. Your intro was awesome (well as awesome as anything about CH can be anyway). Yea, I don't think anyone gets us accept another CH'er. Well there are a few here and there. CHFather supports his daughter with CH and has been around here helping others for quite a few years. He's a wealth of information on CH (and a really great person as well). Feel free to poke around and ask any questions on busting. The folder Theory and Implementation has lots of info on busting. As well as the ClusterBuster Files folder. Cheers! J
  10. ThatHurtsMyHead

    recommended doctor list

    Updated link: https://clusterbusters.org/resource/cluster-resources/ Cheers, J
  11. ThatHurtsMyHead

    Doctor list

    Here you go. https://clusterbusters.org/resource/cluster-resources/ I'll update the location in the other sticky thread. Thanks for bringing to our attention. Cheers, J
  12. ThatHurtsMyHead

    Doctor list

    Hmm, Our Dr list seems to be lost. Most doctors are lost when it comes to CH, and now they're really lost. I'll try to find it and repost. A mandatory upgrade a few months ago caused a lot of our links to get moved. J
  13. ThatHurtsMyHead

    Oxygen from Primary Care?

    FT makes a good point. When I had insurance years ago, I paid a copay of $15 per E tank. When I lost my insurance the Oxygen company charged me $8.10 per exchange... Had I known not having insurance was cheaper, I wouldn't have fooled with insurance to start with. J
  14. ThatHurtsMyHead

    50 yr old Newbie

    Dr J, (hey, do you play basketball?) I ++ what others have said above. 100 percent high flow Oxygen is a life saver. You have to get on it before the attack ramps up. If you feel one coming, go ahead and hit the O2. The earlier you get on it, the better it works. Also, my go to are energy drinks. For us CH'ers, for some reason I think everyone I've spoken with can drink them anytime at night and still fall asleep. When I get a night attack, I hit the O2, and carry the tank to the fridge and get an energy drink. Slam half of it. Back to the O2 and sit down (Rocking for some reason seems to psychologically help). Hit the attack quickly with those two and I rarely ever have an attack last longer than 10 minutes. If I don't get on the O2 early, it doesn't do any good. I can huff for an hour and nothing but pain. Like CHF said above, checkout the list of common triggers. I've found I can reduce my attacks to less than half if I stay away from any trigger foods. My biggest are chocolate, alcohol, fermented cheese (the fake cheese whiz stuff is fine). Cheers, J
  15. ThatHurtsMyHead

    Benadryl

    dehabel, I think the most knowledgeable person around with the D3 regimen is Batch. I'll drop him a note and see if he can check in here to answer your questions. He's a wealth of knowledge on vitamins. Cheers, J
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