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Everything posted by ThatHurtsMyHead

  1. All, This is off topic and was brought up by someone on a thread from 2 months ago. For no purpose accept to restart what he successfully has restarted. Let's move on please. The discussion of virus naming isn't productive, nor appropriate on drebie's thread. J
  2. Kluster, Couldn't tell you how many times I've done that. I regularly put my doses off till my beast comes back. Then it's always harder to get it back under control. I'm a huge proponent of preventative dosing. I went the majority of 5 years w/o getting hit as long as I kept to my dosing schedule. When I would get lazy, it always came back. J
  3. Funny just pulled MindMed up. WOW 1.1 Billion valuation for a company that just buys psychedelic research from Switzerland and Denmark. (Sorry in advance, changing subject mid sentence... ) It seems to me like the stock market has completely lost it's mind (no pun intended). Valuations to stock price on everything is out of this world. Tesla has a valuation of 167X it's annual projected earnings. No doubt Tesla will grow, but to say a company is worth now what it's combined net income will be after 167 years is simply crazy... (ok now back to your regularly scheduled program, ha ha.).
  4. I had thought about moving this thread to the closed board (off the public - general board), but figured since it's just public info we're chatting about, what's the harm leaving here. I'll leave this thread in the general as long as no posts about personal use etc. Cheers, J
  5. The website looks well put together till you get to the 125mg of psilo on the label. That screams at me, they don't know what they're doing.. Sorta scary that someone might think it's OK to take 125mg of psilo. Just did a quick search. I guess things in CA have changed since I last read up. Psilo in CA is legal for medical use. While it's illegal to sell, posses etc, wiki says Canadian police don't enforce it. I guess us CH'ers in CA have much better options to get busting supplies than here in the US. Is the CA-US border still closed? I haven't seen a snowbird CA license plat
  6. A-Z, Glad you're asking for help. It can be challenging, I know. I'd highly recommend seeing your doctor. There are several antidepressants that even at low doses can really help your symptoms. I took a generic version of zoloft for close to a year recently. I had some situational challenges going on with a lawsuit against a contractor that had damaged my home. I'm not familiar with most of the drugs listed in your first post. I'd wonder if something you've taken recently, Zomig etc, might have created a serotonin imbalance? Please, do go see your doctor. (I'm in a bit of withdra
  7. A-Z, I've tried cannabis a few times. Every time, I've had an almost panic reaction. I think my body is wired differently than most other peoples. It didn't make me feel good at all, just wayyyyy nervous and all I could think about was never doing it again. It seems odd that the feeling occurred after several weeks for you. I'm no doctor, but to me it would seem like it's not related to the cannabis. Cheers, J
  8. Mastermerls, Sorry, but I got a chuckle reading that you cover your eyes while working on the PC and watching TV. ha ha. I'm sure you meant something else. I worked with some programmers years ago, that I swear they did the same thing while programming. When their code worked, there was no way of figuring out why... ha ha.. I'm glad you're getting some pain free time, but I'd be very skeptical of any type of glasses stopping our CH. From research our condition is related to an inflammation response. Hence the reason O2, Prednisone etc do work. Brain scans have shown the H
  9. Yep. While it's been known to most. I'm sure the medical community (Doctors...) are light years behind in getting the memo. Right along with writing O2 scripts. Cheers, J
  10. Snowflake, Stay strong. I know those are only words, but you're in closer company here than you might realize. PFW, J
  11. WOW. I never thought I'd see this in my lifetime. It's one step closer for those of us with CH being able to get medicines from a doctor that actually help stop our CH.. It looks like there's a lot of bureaucracy wrapped around how they'll manage it, but I'm sure it'll get easier once the magic spreads (ha ha, just made that one up). https://www.kgw.com/article/news/politics/elections/oregon-becomes-1st-state-to-legalize-psilocybin-for-mental-health-therapy/283-4103d1ba-9d9a-4dc0-9970-6f8cc1288323 Love all, J
  12. GBeth, I sympathize with your situation. In some ways it seems similar to having CH. I would ask that you use caution in any decision you make on treatment. I don't know if it's fact or fiction, but when I did my research on self treatment many years ago. I read a good bit about psychedelics triggering deeper psychological issues in people that already had them, or had latent issues. If you do seek self treatment please make sure you have good set and setting: https://en.wikipedia.org/wiki/Set_and_setting Set and Setting is important for not only the experience, but for the aft
  13. Pebbles, Interesting info, and thanks for that other post report. I try to get to them as soon as I can, when I see any reports. Cheers, J
  14. Kat, Any neurologist that would refuse to prescribe O2 is either an idiot, inept, incompetent or (D) all of the above. Fire that one, quick... Great news on your primary doc. I'm sorta brainstorming here, but wonder if we should make a list of doctors not to see for those of us with CH. There seems to be a lot more incompetence in the doctor realm than competence. Just thinking out loud. Cheers, J
  15. meme, Sorry they're back, but glad to hear you already have a path to get pain free again. Do you have O2? Cheers on your dose today! PFW, J
  16. Hi jimmy's, Glad to hear your CH is mild. I don't think wellbutrin helps our CH, but I think quite a few of us take it for one thing or another. Tampa / St Pete here, Cheers, J
  17. Welcome its okay, As many have said, glad you found us, sorry you have to be here. Those other CH'ers and supporters here are great people. Oh have you tried aspirin and laying down yet? (ok, kidding.. ) There are several Aussies that check in here, try a search and see who you can tag (if you need help reaching out, drop me a note). O2 is definitely the best abortive out there. No side effects and it's very cheap (and mostly easy) to obtain. Cheers, J
  18. Hosie, Feel free to introduce yourself. There are lots of great people here. Try grazing through the posts, it's easy to get to know other CH'ers that check in here. Cheers, J
  19. WOW, great Info... The word has gotten out and picking up momentum!! We can be pain free. Just gotta deal with bureaucracy first... J
  20. BustOrNothing, Welcome to the family. Your intro was awesome (well as awesome as anything about CH can be anyway). Yea, I don't think anyone gets us accept another CH'er. Well there are a few here and there. CHFather supports his daughter with CH and has been around here helping others for quite a few years. He's a wealth of information on CH (and a really great person as well). Feel free to poke around and ask any questions on busting. The folder Theory and Implementation has lots of info on busting. As well as the ClusterBuster Files folder. Cheers! J
  21. Updated link: https://clusterbusters.org/resource/cluster-resources/ Cheers, J
  22. Here you go. https://clusterbusters.org/resource/cluster-resources/ I'll update the location in the other sticky thread. Thanks for bringing to our attention. Cheers, J
  23. Hmm, Our Dr list seems to be lost. Most doctors are lost when it comes to CH, and now they're really lost. I'll try to find it and repost. A mandatory upgrade a few months ago caused a lot of our links to get moved. J
  24. FT makes a good point. When I had insurance years ago, I paid a copay of $15 per E tank. When I lost my insurance the Oxygen company charged me $8.10 per exchange... Had I known not having insurance was cheaper, I wouldn't have fooled with insurance to start with. J
  25. Dr J, (hey, do you play basketball?) I ++ what others have said above. 100 percent high flow Oxygen is a life saver. You have to get on it before the attack ramps up. If you feel one coming, go ahead and hit the O2. The earlier you get on it, the better it works. Also, my go to are energy drinks. For us CH'ers, for some reason I think everyone I've spoken with can drink them anytime at night and still fall asleep. When I get a night attack, I hit the O2, and carry the tank to the fridge and get an energy drink. Slam half of it. Back to the O2 and sit down (Rocking for some reas
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