ThatHurtsMyHead

Frustrated123, Sending you a PM Jeff

Laura Ann, Firstly I almost laughed out loud when I read your coworker ate two seeds by accident. I can't imagine that chewing them up is pleasant. I can barely get the stuff down when ground and water soaked. yuckkkkk... (but hey, seeds work!) O2 is simply put, a life saver! You definitely want the tanks, they're cheaper and better. (I tried a concentrator and was big $, and didn't put out enough oxygen). Good luck with your O2 script. It hurts me to see over and over doctors and insurance companies balking at the #1 easiest, safest, simplest, least side effects etc. etc. treatment. If you were near me I'd be happy to drop a tank off for ya. Best wishes, Jeff

I found many years ago that raising my temperature is definitely a trigger (right up there with alcohol and chocolate). A favorite past time of mine is taking a hot tub soak in an outdoor hottub in the winter (very relaxing, and best done when it's snowing!). I found that when in cycle it would trigger an attack every time within 5 to 15 minutes of getting in the water. On the other hand I've also noticed that not always, but usually have infected tonsils either before or during a cycle (ususally with a sore throat). Maybe there's a germ that helps and others that hurt. Wouldn't be unheard of. Jeff

Having done tons of reading on the seeds subject before my first bust: I've read on several sites that it's the chlorine in tap water that combines with LSA and converts it to something else. Since reading that I always use distilled water instead of tap or spring water. (Spring water can still have chemicals, but distilled doesn't). Water extracts much of the LSA, but alcohol extracts slightly more (wine or other spirit). Obviously alcohol is a trigger for most with CH. Jeff

I'm in! I live in Florida so it's only a puddle jump away. Jeff

I'm not sure about the handling question, but can help with the storage question. I've stored my seeds in the freezer for 6+ months and they appear to have the same potency as when first put in the freezer. When left out of the freezer they definitely degrade quite fast. Articles I've read say after 6 to 9 months they start to degrade if left unpreserved, but think it's really quite a bit shorter than that. Jeff

Frustrated, I'm here to tell you, you've come to the right place. I've had CH for over 20 years now and only found this website a year ago. Guess what... After following the detox and using the seeds option I've been attack free for a year now! I maintenance dose every 1 to 3 months and am happy to say my life has NEVER been as good as it is now. It's a real eye opener to wake up one day and say to yourself: "wow, this is how normal people feel.. wow...." Please read, read, read everything you can on the option you choose. For myself this website has proved to be more help than 20 years of doctors supposed 'expert' diagnosis and treatment. You'll also find others here that share your condition are more than happy to help! Jeff

Feel free to put my name in the documentary hat. While I haven't taken LSD, I'd be happy to share my experiences with having CH. Loosing jobs. Staying awake mostly for days at a time because I was too scared to sleep, or got hits anytime I did try to sleep. Numerous trips to the emergency room only to have them do nothing. Years of misdiagnosis. yea, I've got a few other attack experiences I could share. Might scare the hell out of them though. I'd share only to help others understanding. Jeff

Update: I took dose #2 on Friday. 9 HBWR seeds. Felt a little different a couple of times for only a minute or two. No effects I would call psychadelic, high or anything of the sort. Anyway, no hits since. I have to say, I was somewhat doubtful that this treatment would help (since nothing the doctors perscribe does any good), but am certain that the clusterbuster cycle abortive IS the best treatment out there. Thanks for having this website and getting the word out on this treatment. Jeff

First Hit this morning since taking the HBWR seeds 3 days ago. Came on a little quicker than usual, but the O2 drove it off. I'm planning on taking dose #2 on Friday afternoon. That's really only 4 days (Monday afternoon was #1). From reading here and elsewhere it's best to wait 5 days, but dosing on Sat / Sun isn't an option due to my kids being home from school. Any suggestions on taking #2 on Friday, or think I should wait till Monday? Jeff

Update: My cycle this year started off really fast and bad. It's tapered somewhat, mostly due to all the things I've leaned over the past 20 years. (sleep sitting up is the biggest help) Well not completely sitting up, but in a reclyner with my head well above my heart. That one item signficantly reduces the nightly attacks. Not eating any foods that taste any good... etc. etc. etc. Anyway, I started my HBWR treatment today. I tried starting with a dose small enough that I wasn't suprised by any effects, but large enough to feel something (so I would be sure they were even the correct seeds). I cleaned, crushed and soaked 5 HBWR seeds. Soaked for 2 and a half hours in 1 oz of water. Strained and drank only the water about 5 hours ago. Took it on an empty stomach and only had a few ginger cookies 2 hours before. I honestly couldn't tell that I had taken anything, no stomach upset (not really missing that part, ha) no side effects at all. Really can't tell that anything is different. That said I haven't had an attack in 2 days. No shadows today either. When I'm in cycle I'll usually go a few days between a week or so of attacks back and forth. Anyway thought I'd report progress. I'm wondering if the seeds I purchased were old? Not the proper seeds etc? Jeff

I have no idea of the reason, but my vivid dreams always start just before my cycle and go away after it's over. I've noticed it year after year and don't think it's coincidence as it's so regular with my cycles. I agree with hickory on the intensity, they're usually quite entertaining, and always VERY real. Sounds like it's a symptom shared with others with CH as well.

Hey Everybody, Seems like between each cycle I forget how painful the attacks are. I'm going through an 'E' tank of O2 daily right now. This year's cycle started about 2 weeks ago, but I knew it was coming about a month before that. I've not read anything about this, but does anyone else get vivid dreams before their cycle starts? I've had Cluster Headaches for nearly 20 years now, but was only properly diagnosed about 8 years ago. A few weeks before each cycle I ALWAYS start having vivid dreams. Crazy, lifelike, in color etc... Was wondering if anyone else gets them before their cluster cycle starts? On another subject: When I was first diagnosed I was prescribed Verapamil by my neurologist. It appeared to work as a cycle abortive that year. The next year when my cycle started I went to the neurologist and got a prescription for Verapamil again. This time it didn't work and actually FU$@ed up my heart. (I've read a few posts on the internet mentioning people with CH getting heart arhymathia after taking Verapamil) Now if I drink caffeine more than a few days in a row my heart starts skipping (PVC's - Really scarry Sh$t). The neurologist said there was no way Verapamil could have caused it, but I KNOW better. Now reading others with CH having the same issue reinforces it. Anyway I'm certainly not going to take that stuff again. I've read two separate studies on the internet regarding breaking cycles with various hallucinogens. The high success rate in the reports has convinced me I really need to try it. A bit of background on myself: I've never done illegal drugs other than trying pot once 20 years ago. I've mostly worked jobs in the past that require drug tests, or security clearances that taking drugs simply isn't an option. Not to mention I truly believe that one should be sober in life to truly enjoy it. That said... Back to the Hallucinogens: I've spent most of the last 5 days reading about the various positives, negatives, preparation etc of HBWR seeds, and have ordered some off the internet. (All vendors listed on ClusterBusters have stopped selling the seeds, but I found a few still selling them via Google) I'm currently keeping a headache log and would be happy to provide input to any medical studies underway. Having been unsuccessful with other 'government approved' treatments. From what I gather on HBWR seeds the high sounds similar or even less than an Imitrex shot. While those work for me as an abortive, I can't think straight for two days after taking just one shot. Having to take a shot daily puts me in a constant state of fog, and unable to work. I feel like I have no other choice but to try the HBWR seeds. Last week I averaged 3 hours of sleep a night, as that's when I get 95% of my attacks. Life just turns upside down. IÂ’m not going to 10 on the pain scale, mostly around 4 with oxygen. The lack of sleep is having a significant impact on my job. I've been fired from more than one job while in a cluster. I can't really blame them, but getting a shread of understanding from an employer is 100% useless. The oxygen works, but having to always keep an 'E' tank with me is difficult to say the least. NO ONE understands the degree of pain accept other sufferers. Ha, I'm preaching to the quire now... Like many with Cluster Headaches, I almost committed suicide several times. Once, I had the hammer cocked and was squeezing the trigger, when the attack started to break. I was only a second or two from having the pain end permanently. Since being properly diagnosed and having a prescription for O2 I've not gotten to that point in several years. That said, life is never normal when in a cycle. I hope the HBWR can bring life back to normal. That's my story, only a small piece of it, but thought it necessary to share. Jeff

Send it on over. The BBQ sauce that's a trigger is whatever they put in Sonny's, Carolina, O'Charlies etc. Jeff

Top 'o' the list: Alcohol Chocolate BBQ sauce (the dark, thick stuff) Next: Non processed cheeses: Blue cheese, american, swiss etc. High sugar content sweets: Poptarts, etc. I live a pretty bland life while in a cluster. :'( Jeff