stev

Hey sorry I missed this. She's actually a Family Nurse Practitioner. Her name is Jenny Pettersen and she's in the Los Angeles area with Northeast Valley Health Corporation.

Well I just got back and they gave me the right diagnosis! After giving the doc that pdf on the d3 they ordered the vitamin d3 tests and the right ct scans! The sinusitis scan came back negative--of course haha. They also talked about prescribing me oxygen when I start my next cycle. It went so well that I didn't bring up the busting, didn't wanna push my luck. I figure I'll wait till I get the scans and d3 sorted out.

Last year when I got a diagnosis they didn't order ct scans or anything. After i described my reoccurring headaches (classic one sided 30min - 1 1/2 hr CH symptoms) they told me i had ch and gave me medrol (6 day decreasing dose), sumatriptan pills and naproxine and said that was all they could do with my insurance (welfare). I was in hell for months (june-september 1-2 k5-10s a day). Then I found the busting treatment. It worked so well that I didn't go back to the doctor because he said "If they go away you can cancel your appointment", definitely a mistake in hindsight. I had previously done psychedelics so I wasn't too worried though. This August they came back, I busted again, it worked, but after doing more research I realized I should get an MRI or Cat scan, a headache specialist and maybe start the vitamin regimen so I went back to the doctor. They had lost my diagnosis because the computers were down.....(i mean cmon!!!) and are now on about this sinusitis stuff. When I went in for the ct scan of my sinuses I told the machine operator about the cluster headaches and he told me he threw in some extra scans for me. I can only hope the are actually of my brain haha, I'll find out tomorrow. Waited for an appointment.......and the headaches came back. busted again multiple times to keep them at bay. (i realized that was common after browsing the forums) Anyway compared to last summer im infinitely better! Ive had like 10 headaches (2 k-10s and the rest k4ish) total over the course of 3 months, compared to everyday. Been headache free for almost 2 weeks with some shadows here and there. I'm going to continue to try to get a headache specialist and press for more ct scans tomorrow! Maybe I have them already? Wish me luck Stev

I should also add, though I feel it goes without saying, that this site saved my life and I'm looking forward to contributing to this community! Also that my doc doesn't even really seem clear on what cluster headaches are and is giving me sinus ct scans because they think I have sinusitis, even though last year I was diagnosed with clusters (different doc)......... I was lucky enough to get the right diagnosis right away and now they're trying to walk it back. I'm tempted to just go alone but I want the vitamin tests and should get an mri and stuff.

@Dallas Denny What do you mean by didn't wanna hear it and werent on board? Did they kick you out, stop treating you, or just advise against it? Thanks Stev

@jon019 That list includes busting methods right?

i found it sorry https://vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708&download=y advice on talking to my doctor would still be helpful

Hey all, this is my first post. Ive been busting with decent success, but my cycle is still hanging on a bit so i want to talk to my dr about the d3 regimen. I remember finding a link to a print out on this site (i think) a long time ago to help explain the treatment to the doctor. I cant find it anymore. Is there a good resource i can show them? the vitiwiki website doesn't seem legit enough. Also I haven't yet told my doc about the other, even less traditional, treatments that I have used. I've been hesitant because its a weird conversation. Any advice on having that conversation? Any other print outs of studies that would help them take me seriously..... My appointment is tomorrow (i probably should have posted this sooner)