Hi all!
Question about verapamil.
For context, I experienced 1 month of cluster headaches spring 2024, none in spring 2025, but this year spring 2026 was much worse. It lasted for a month and a half, but I've been cluster-free for a little over a month now. I've had some shadows and tension headaches here and there since then, and I still experience anxiety wondering when it may strike again.
(Possible triggers: stressed student, sleep schedule (I try to be consistent), caffeine (I limit this), allergies (I take Claritin now), Vit D (I take Vit D 5000IU w/ K2 every day), I take Vyvanse (does not affect), sugar (I eat a low-sugar diet now).)
My doctor prescribed verapamil 120mg every morning, and I've been on it for 2 months. I'm assuming it helped block the cycle, but I am developing chest pain, dizziness, loss of vision, and extreme fatigue by the end of the day; on top of that, I have POTS and my RHR is 63BPM and blood pressure is 103/71 baseline, so I'm not sure a calcium channel blocker is good for me...LOL.
I want to wean off of it, but I cannot see my neurologist until July. What have been your experiences with verapamil, am I safe to come off of it yet, and when/ how should I plan to wean off of it? Is this something I should be on forever? I am terrified it will make the headaches come back.
Thank you!
