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ClusterBusters

xBoss

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Everything posted by xBoss

  1. xBoss

    I am new here

    Hey Marlon. Welcome! I'm 49 and mine started when I was 27 and I also thought they were migraines or something since prior to that I never knew what a headache was except for maybe a hangover. Anyway, once per three years is not too bad! I'm once a year and this place has had me in remission for three years now! Hang in there and read up all the good info. You are in good company.
  2. So glad the research is back on after a 50 years ban or whatever it was.
  3. xBoss

    Exploding head syndrome

    The only pattern I can think of is that it tends to happen more often when I am more in need of sleep or more tired I guess. Yeah, lately it makes me feel like the doorbell was ringing. Such a weird thing. Us clusterheads def. have some quirky issues so it's good to try and find correlations. My spectrum of nero type issues is CH, EHS, panic attacks, cold seizures, ringing in the ears, mild tremors in the hands.....
  4. xBoss

    My first share - My experience

    Welcome to the family. May your journey be awesome.
  5. xBoss

    Exploding head syndrome

    I get them. I cannot stand the instant jerk wake up with the feeling that I was not breathing. It always seems like it was loud but loud in a weird different way from normal loud. Hard to describe.
  6. xBoss

    Waiting on my 2nd cycle

    Year 23 here but life is better now. GL on your journey NRay, this is the best place to be!
  7. xBoss

    Fall is coming

    Yep, the fall is my time of year as well. Already been working on it.
  8. xBoss

    New Member -20 years of this- Pittsburgh

    Year 23 here. You are in good hands! Welcome to the bust club.
  9. xBoss

    IMPORTANT signs along the way

    I used to build websites for a living. It was too much screen time so I had to mostly retire. I wear high grade UV protected prescription sunglasses all day every day (see my avatar!). It seems to help with the light pain and discomfort. My neck and shoulders are always messed up even though I beat the beast with busting. The TMJ does not help the situation. I find certain sitting postures can be a trigger for me. Mostly a position like sitting up in bed watching tv or the couch can do it. Side sleeper here, on my back I get anxiety from the gravity pulling on my lungs and the belly is a no go for comfort.
  10. It's going to take some more time and data to know for sure. Cluster headaches can vary in pain from not too bad to horrible. People in major pain can get hot and break into a sweat but not maintain a fever. I drip in sweat sometimes. Study a list of the major symptoms and keep tabs on it, in the case of cluster headaches you will know more than your doctor. All they can really do is listen to your words and make a diagnosis.
  11. xBoss

    A Cluster Headache Is

    If my house was not a house from 1940 and built like a tank I would have holes in the walls by now Hang in there girl!
  12. I was curious because I am a left hander and I hold the phone to my left side and that is where I get the pain. My clusters also started around the time of cell phones back in 1998. I can also feel the EMF coming from cell phones and they make my face and hands buzz if I am on a long call. I know clusters have existed before cell phne usage but I wonder if they are able to help trigger them.
  13. Doesn't what? I'm not talking about radiation that causes cancer. It's a 100% fact that there is a huge field around cell phones. The brain is electrical, this is the same priciple as gammacore.
  14. xBoss

    Longest possible period of maximum suffering?

    I reached new tens last year and had to slide my scale. Most of them used to be 20-60 minutes but they have gone three hours+ in recent times. You def. wonder if it will ever end past the three hour mark. The good news is that busting is working. Hang in there!
  15. xBoss

    Is this really cluster headache?

    Not all CH's are max pain kip 10's. This last cycle I am working out only had a few horrible ones, the rest were more like level 8's GL! And hang in there.
  16. xBoss

    o2 noob help please

    Hey guys, I'm so much of a mess that it hurts to search for the information. Could you please help me with these O2 questions? Thank you very much. 1. How do I use it? Like do you just keep breathing it until you feel better? I was always scared that I would hyperventilate or something. 2. Are high flow valves available or do I have to mod one? I am handy and can do it, just need tips. 3. Any other tips, suggestions or help would be awesome.
  17. xBoss

    o2 noob help please

    Hoping it was a horrible slapback. I took some MM yesterday and got hit about 4 hours after it wore off. Fingers crossed for tonight. They all happen from 11PM to 6AM. How you doing?
  18. xBoss

    o2 noob help please

    Hey tx BOF. I'm trying, broke my time record again last night with a five hour run.
  19. xBoss

    o2 noob help please

    Awesome, tx guys. I am trying to get this going ASAP. Been getting crushed at night lately. Had a new record last night. I never had extra long hits. Anywhere from 30 mins to 2 hours is the norm but last night was 4 hours with the first 3 being bad then it dropped down a peg
  20. My clusters are so on schedule for night time that I have been able to scrape by in the working world.
  21. xBoss

    o2 noob help please

    Tx a ton guys!
  22. xBoss

    o2 noob help please

    Tx guys, Hyeprventilating is fairly safe? It seems to make the heart race right?
  23. Fun times at 3AM! This one did not get into my eye too bad but hurt so much. https://www.facebook.com/100003045796091/videos/2474460639332105/?id=100003045796091
  24. I had a triple strength hot coffee just before the video. O2 has not worked very well for me. It just made me feel sick and worse but I did not try too hard to maybe get it right. I may have to explore it again.
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