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ClusterBusters

xBoss

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Everything posted by xBoss

  1. xBoss

    Gamacore

    GammaCore is a joke as far as I have read. I was super interested in it in the beginning but I don't know. One thing for sure though that really grinds my gears is how let's say it does work and it's an electronic device that can help people but these greedy jerks put a timer on it so it stops working so you have to buy another one and they are expensive. I would love to see somebody hack it and make it work for years. This kind of greed on the medical industry makes me sick.
  2. xBoss

    Just diagnosed

    Hey T, Three months is the longest cycle I ever had as an episodic. Hang in there! Welcome to the club
  3. xBoss

    simple communication with cluster busters

    Hey Gail, There is no secret. Cluster busters openly talks about what mushrooms can do. Look at the top of this page, it has a new users read here first link. https://clusterbusters.org/forums/announcement/6-new-users-read-here-first/
  4. xBoss

    Pain down neck and into shoulders

    My knots are so bad that I have fantasized about jamming a needle into them.
  5. xBoss

    Freezing

    I freeze after I'm wet from being drenched in shock sweat.
  6. xBoss

    The beast has returned

    Tried to bust and it's not working? Has MM worked before? Besides that, you are just running the gambit. Even people like me that ran the same for 20 years have been blind sided by changes, they happen to all of us pretty much. The nightmare on Elm street scenario as I call it is the worst though. No sleep, getting murdered every time you fall asleep etc. is very traumatic. Hang in there buddy!
  7. xBoss

    One man's story

    "Right up there with kidney stones and child birth" lol
  8. xBoss

    Cluster..?

    I get some nasty tension headaches during my cluster cycles that can bring on similar but less painful symptoms.
  9. xBoss

    Is ch linked to dental work?

    21 years ago when CH started for me I was convinced that my wisdom teeth were doing it since they had just broken skin and were not going to fit when they came all the way in. I got them pulled out but the CH stuck around
  10. xBoss

    OHSU Psilocybin Study?

    I'm on year 22 with CH. I had complete success last year with MM.
  11. xBoss

    Shadows back from pizza

    I spent about 15 years Running, managing, owning pizza places all over the USA. My all time favorite is NY style thin hand tossed with light sauce and pepperoni!
  12. xBoss

    How does the Beast return?

    The month prior to my full episode I get tension headaches. That is when stuff can trigger 6's like smokes, chemicals, smells, alcohol, weed etc. then I jump into the full cluster cycle and it's not about triggers, they just happen 2-8 times a day.
  13. xBoss

    Is there something about Australia?

    It's def. a good idea to change regions if you are chronic and at your wits end with CH. That is if you have the ability to change regions. My headaches changed as I moved around North America.
  14. They can change but my episodic cycles were the same for 20 years before they got a little worse. They went from 2-5 week long cycles to 8-11 weeks. Other than that it's about the same. I beat them with mushrooms last year and only went about one week of pain. This year the goal is even less pain!
  15. xBoss

    Just diagnosed with clusters

    Hello MrsKgood, welcome to the forums. The theory & implementation forums is where the busting talk takes place. Sorry that you have to join our club BUT, you found a great place for relief!
  16. xBoss

    Warning about vaping

    Vaping has issues, you can get a lung infection as well.
  17. xBoss

    New here but not new to the evil!

    Hey Bob, welcome to the forum. This is a great place to be. You will find at least some form of relief here. Hang in there!
  18. xBoss

    Describing CH to non-believers

    I don't even suffer as bad as most and CH still makes me cry. I have never cried over any injury in my adult life including broken bones.
  19. xBoss

    Describing CH to non-believers

    The molar pain struggle is real.
  20. xBoss

    Make this site as accessible as possible. :)

    The problem with any forum is that you can answer the same question 100 times in 100 different ways and new people will still show up and ask it again without even 30 seconds of research. It's not like we are selling widgets here, this is important stuff for a rare group of people. Anybody in bad shape needs to invest the time. After 17 years of owning and running forums I have found that about 50% of forum users are helpful and the other 50% wants all info handed over to them on a silver platter.
  21. xBoss

    “Cure”

    Probably need to up the dose.
  22. xBoss

    Work and CH

    O2 never worked for me but I'm lucky in the work dept. The CH usually comes right after work when I relax.
  23. xBoss

    Describing CH to non-believers

    The word headache is the wrong word. It lumps us with the rest. Proper terminology would be something like Brain on fire syndrome then they would take us serious!
  24. xBoss

    Why can't not being in pain be a good thing?

    The PTSD is real with CH.
  25. xBoss

    Describing CH to non-believers

    Tired of people that say stuff like yeah, I get headaches too.
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