xBoss

I never had an MRI. I def have to get one eventually. The whole rule out other stuff is probably not an issue since I have had this condition for over 23 years but still need to check. I have terrible medicare insurance though.

I thought I read somewhere that CH can cause some memory loss over the years. I feel like my memory has some holes in it after the last few cycles.

It's a career buster for sure. We all have similar but very different paths with this mess. My life trajectory was changed as well like most of us. I try to take it as a challenge but it can def. be a downer. Like Bosco said, that work from home bit is huge now. I try to make money from several streams and one of them is making stuff that I sell. It's been a while but I used to crank out some cool stuff and sell the heck out of it.

Yeah, I gave up after seeing the costs and it's a complete joke that you have a device that counts how many times it works then it shuts off so you have to pay again. It's not like it wears out, they just bleed people dry...

Some infected mushroom "Demons of pain" to brighten your day

I used to build websites before I got tired of it. My money is on the plain** Opps, rich text editor having the bug or possibly the version of php the server is running.

I'm at a loss for words but you know I'm there for you buddy. If you try to contact me please use signal, I hope it works with a dead phone number. My phone service is down since I'm pretty bankrupt from having CH all year. A tough year for a bunch of us for sure. I pray you can find something to make this better.

I mentioned before but might as well again...I was in cycle when I got my shots. The cycle was the worst in my life BUT I think it's possible that I already had Rona before that and was asymptomatic because I got pretty sick from shot two and heard that shot 2 was doing that to people who previously had it, either way I was indeed sick. Who knows, my 2 cents.

How's the Ayahuasca situation there? Seems like it should be going around.

I have been describing to people for years that CH is the feeling that burning in Hell is. Why did I wonder what that was like when I was a kid? :p

The primary will probably refer you to a specialist and then the specialist will still have to listen to your words with no test to proclaim CH. Basically their diagnosis is on you....

It's getting pretty cool in Ann Arbor. I'm trying to go out there soon.

Nice, hope it works great for you. Keep us posted!

Welcome to the cool kid club Spida. I'm against pharma so my advice is to seek non pharma solutions like D3 and psychedelic busting. Oxygen for aborts etc. Red bulls and hot soaks also work for me when it comes to aborts. I'm sure pharma works great for some people but the side affects can suck. Try to learn as much as possible from here and inform yourself with some weapons to fight this terrible condition. It can be managed fairly well most of the time for most of us. Oh, and keep a log book of your hits and possible triggers. Just knowing your triggers can be very useful and there are many like alcohol, flying, foods, smells, even sitting positions! GL warrior! -Scott

Yeah, I just feel like I'm living in a right handers world and just different. I guess it ties into my angry at the world bit I dunno. Anyway, yeah it's def what you make of the time between. Coping, managing etc. It's not fun. I try to use shrooms for both busting and therapy.

Happy is hard. I'm a mad at the word left hander with CH for almost 23 years. I guess after a long period of time it just becomes acceptance. Especially after multiple goals and dreams get crushed by CH. I still appreciate what I have because it's all relative.

Seems like an extreme choice given that you only experience CH once per 3-4 years?

Try out busting. Sorry it's been a mess for you. It's been a mess lately for many of us. GL!

Dear lord, switching sides sounds terrible. Part of handling the intense pain is being super used to it!

Hey Bosco, sorry that you have joined our club but welcome! You seem like a cool cat, you will get along fine here. You got this, a great place to be. It's a mental game, stay strong, I'm on year 23 after they hit when I was 27.

Welcome to CB DayLight! GL with your journey.

I feel you Brad, busting is not working for me as well and I'm nearing day 100 on this cycle. Are you chronic or episodic? I'm hoping the end of this episode is close for us both! Hot soaks in the tub have been able to abort some of the attacks. Have you tried oxygen yet? Hang in there man, I'm trying to find some L to see if I can get a bust going. We both might need to look into D3.

Same here. I find myself saying wow I'm getting off easy with these clusters for the first couple few weeks then it really gets bad. Tapers down in the end. Today I only had one attack that was about a seven. Working on day 70ish of hopefully no longer than 90. Glad it's getting better for him Paula!

Yeah, cigs are horrible, they magnify the pain so much. weed doesn't help me much but it usually doesn't make it worse, sometimes maybe a little bit. O2 never worked for me but I never got it flowing enough. N2O is such a good temp pain killer that it has me wondering. Time to make some whipped cream. :p

I love nitrous. Going to grab some whippets today and see if they can abort an attack. Probably have not done one since before I had CH which was 22 years ago!