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Everything posted by xBoss

  1. I fully promote the hot soak and have aborted 100's of attacks that way. Sometimes 6 times a night like an oxygen user. Edit, big hits never abort that easy though...
  2. When my CH started it was only 20 minute attacks and just a couple few hits per week. It has progressed to more of a classic full blown CH since. With grandma being diagnosed it def smells like CH or combo migraine ch. I hope you can get it figured out! Great forum you are on. GL!
  3. They can be pretty random. It seems like the remission periods drop more often in the first 10-15 years of having CH.
  4. It's amazing how predictable CH can be. I was surprised though with nitrates being the same trigger. Never really was until the last time.
  5. I like beers and do fine outside of a cycle. When the cycle is near I will get kip 5 pain about an hour after drinking some for about a week then it's full blown attacks if I drink a beer in cycle.
  6. Happy new year my fellow warriors!
  7. Lorn is still one of my fav's https://www.youtube.com/@Lornnn
  8. Happy holidays Rod & all!
  9. Hey Hey! Welcome to the forum. It's a battle brother, I have 25 years under my belt and I still start to lose my mind after about week 5 or so. The no sleep part is what does it for me. You seem to be very informed about all things CH! I wish you well fellow warrior.
  10. I still have to get an eye doc to sign off on my potential rust on the lens before the MRI doc will run the MRI then my regular doc can clear me for a neuro referral where I have to tell him the words for the diagnosis. And all of that is just so I can maybe get some oxygen for next time.
  11. The last CB survey I tried to take told me to take a hike because I don't have the diagnosis. I guess my brain tumor chills out when I use L M and D. :p
  12. Nice! Yeah, 11 weeks is a haul. I'm just coming down from about 8 weeks. I thought I was fully in the clear but woke up a couple times last night with the best I can describe as half hits. They should be done soon.
  13. Hey CB, I was just thinking about how all my sites and apps are set to dark mode but you cannot do that here. Today is a light hurts day and I really wish you guys had that!
  14. That is a haul. I usually go crazy by week 10 if they do not stop due to the loss of sleep. Funny you say get off easy because that is exactly how I describe the first half of the cycle but then it goes big. Bust when you can because it is amazing help, I am getting close to three years PF!
  15. I got booted on the first page for not being diagnosed but self diagnosed and suffering from the same as anybody for 25 years is good enough! I did have a talk with a neuro that agreed with me and the funny thing is that nobody can give you a diagnosis without your words. Well, I have them.
  16. I had AI art do a headache for me. I could not get it to do a messed up eye like I wanted.
  17. GL! I hope it works out great for you.
  18. If it hurts it hurts. Just say 10. They are used to people that don't know about pain nuance.
  19. I have 2 cup of coffee and a small can of red bull every day. Without the constant flow the pain is so bad that my brain feels like it is jiggling with every small step. So weird.
  20. No caffeine headaches can hurt so much. Only some of us get the full pain from them.
  21. Used to be huge triggers. Always and still gross though.
  22. I used to get triggered so easily by fumes and burning smells and stuff but in the last five years all of those triggers went away. It matches up pretty good with busting as well since I started busting about five years ago.
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