NeitherHere

I found more hope. This one might be hit and miss for others LAIRD brand coffee, particularly their "performance" line. It has lions mane, chaga, and other fungi. Caffeine is onenof those tricky things for ch heads. I respond to it pretty well. If it doesnt work them the worst thing I get is increased restlessness and let's be honest I wasn't gonna sit still anyways. To my surprise after a few sips the clusters backed off and I fell asleep with the thermos on the recliner. I finished the thermos after I woke up and was pain free all night. This morning the shadows started slowly rolling in as the barometric pressure started to climb up to 30. This particular brand seems to be more effective than the other coffee products we've tried this year. It might be worth noting that I get clusters and migraines usually ontop of eachother or back and forth between the two so this could explain why I feel relief while other ch patients are freaking out about how thats a cardinal sin. Ita also worth nothing ive had repetitive concussions, heat illnesses, and dehydration events so my eggs have been scrambled beyond just ch. Hopefully this helps. This is the second time I've noticed immediate and persistent relief from Laird brand coffee out of colorado. The one I use is "performance" and its red on blue labeling. About $15lb/bag. They also have organic powdered creamer that is pretty much powdered coconut. I think the mct oil in that can help some too. This is all just speculation of course. Correlation is not causation but thisbis what im experiencing this week. We were going to add in "p" but it was unnecessary each time with this brand for some reason. I also drink it black no sweetener

This last season was harsh and violent. Things changed pretty dramatically worse than they already were. I didnt think they could get worse but this is atleast the third season I've said that. This time I changed things juuuust a bit. Instead of drinking water I started exclusively drinking body armor hydration drinks strawberry in particular. I also started getting melatonin in my system. I slept when ever I could. I exercised as much as I could. I noticed I kept gasping for air before and during the attacks so I stsrted practicing deep breathing through out the day. Within 3 days it started to fade and within 5 days it was GONE. Im getting very very light shadows this week from the persistent overcast but its a whole nothing burger. The body armor drinks are full of : magnesium B12 Potassium Vitamins A C E NIACIN B6 and zinc I think flooding mysystem with those was what made the change. I have a hard time getting myself to drink water during cycle and the coconut water in these drinks seemed to not only get me hydrated but KEPT me hydrated. Something in this has probably already been mentioned multiple times already but I wanted to share incase it hasn't. I also recognized that my attacks really start up around noon and again with much more intensity between 5pm-3am. This gave me more time to prepare knowing those times in the day were going to be "no go times"

I want to thank you folks for not alienating me for this post. I can't express just how important that is for the uninitiated / less involved to actually talk about CH and our experiences. I also want to note that just because I have CH and am a recovering addict doesn't mean I allow myself or others to treat me as anything "less than" I was recently accepted onto the community CERT team(community emergency response), have the approval of the associated Search and Rescue team. I'm also working on another opportunity working with the state in a volunteer capacity involved in natural disaster /defense roles There is hope for a man/woman who will do anything necessary to achieve their goals. Just because I have CH doesn't mean I cant be a valuable asset to my community in some regard. On the contrary, I believe it means I can be extraordinary in these roles. The substance abuse was from a lack of purpose and meaning in life. I think i finally got my way into the purpose that those drugs slowly robbed me of. Ch is the stone that sharpens me. Theres this belief that language is power. How we use words is what gives things power. It changes how we see things. I've learned to stop giving ch power over me and to weaponize it to make myself stronger. If I can survive something that I know feels worse than getting shot (personal experience) then I can work through damn near anything. The first step is convincing myself I can. Never surrender.

This last season i've been caught off guard by a number of changes. One of these changes is the unprovoked sense of smelling/tasting cocaine or methamphetamine in my sinuses and upper airways. Now I won't be coy, i'm a recovering poly substance user and cocaine and methamphetamine were DOC'S of mine to some degree but its been almost 2 years since the last time i've even seen EITHER let alone even think about them. I don't get any other associated symptoms, i dont get high when these sensation hits me but usually that same day I get hit with a cluster AND migraine together. Rarely one or the other and consistently both together bouncing back and forth if not concurrent. The cocaine sensory anomaly seems to happen before the absolute most brutal attacks. This also seems to happen on overcast and rainy days as well around noon Does anyone else have sensory experiences like this before an attack? This has never happened before. Even when I was using it never had this sensation. Its as if I just sent a large volume of it up my nose. My sinuses also seem to swell causing congestion during these abnormal experiences too. I'm not sure what to think here but i'm choosing to accept it as a benefit in the sense that I have some sort of benchmark to recognize "an attack is coming "

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I'm already in contact with her I'm wondering what the pool of participants is. I don't think we have a very big membership here at the forum so I'm curious if there are any active participants in here

During my last cluster I applied for the cluster buddy program. I hadn't seen a reply until I checked this week while starting up a new cycle. I was wondering what everyone else's experience has been with this program. I'm back to working. I'm working more and making more than ever. A coworker left a leaking bottle of PVC primer in the cab of a work truck that apparently set off the cluster i'm hoping I just busted last night. But I'm hoping to build my own at home and hoc oxygen system and get myself back into insurance. Since my last visit I've started trying to eat healthier, started taking GNC MEGAMEN advanced test booster and micronized creatine, put on ~12+ kg in healthy weight, and over all I think I'm in much better health than I was during my last cluster. I'll probably be active seasonally, closer to my cycles and what not. This last year or two the attacks have been getting harsher, lasting longer, with shorter remission periods between clusters so there's a chance I'll be online more and more as time goes on. I've been informed that there may be a meet up in Dallas at some point this year. That's some 6 hours away one way so I'm not sure I'll be able to make it but I'd love to socialize more with people who haveore experience dealing with this miserable issue. Hope you're all healthy and well <3 NeitherHere

I really just need to vent tonight Like a cruel joke i relapsed after 10 totally symptom free days. All the way from k0 to k7 in a matter of minutes mid interview. The 5 day rule failed me. Maybe my dose wasn't as dialed in as I thought maybe I need to dose sooner either way i relapsed into another cluster. I'm really sad. I was doing so well, so full of hope. Today was a series of insane issues on so many fronts that I can't even list them all. It was a miserable day. I think the cruelty of this disorder isn't in the intensity of how incomprehensibly painful it can get but just how broad the contrast of it all is.... Without any warning mid sentence it was like the devil himself was punching me in the face to collect my lunch money. . I guess I just needed to bitch and moan. Vent. Scream into the void. I just need a damn job... This last interviewer today told me "you're not 16 anymore, this part time job isn't going to support your family. I have half a mind to tell them not to hire you because I feel that this wouldn't be in your best interest to let you have the position. I would recommend you apply for the distribution centers" and honestly it pissed me off .how is that NOT discrimination? What does my age have to do with anything ? Why can an interviewer tell me what I should and should not be allowed to take pay wise or Take the only opportunity for gainful employment i've had in months and tell me i'm better off essentially unemployed and still searching while they possibly hire someone younger with less financial needs or tell me that I SHOULD be able to get better pay so I shouldn't be allowed to have lesser pay... At this point i'm getting desperate and it feels like the only way i'm going to stay a float or get ahead is doing something sketchy like mowing lawns off the books or something stupid and I really don't need the headache. At this point i've stopped openly throwing a fit. It doesn't do me any good. If anything I just end up hurting myself and damaging things. Tonight I tried distracting myself working on my computer and possibly caused even more damage in the process which is really saddening because I was really happy with how it was Today I locked myself in a dark room and just cried because I don't see any end in sight. Not to the pain, not to my balance and hearing issues, and not to my lack of employment. I feel worthless, useless, and broken beyond repair. I've tried playing good baptist but at this point i'm even questioning my already waivering faith. I'm sure SOMETHING good will come but at what cost and when? The house we're in is literally falling apart, we can't keep up with the bills, can barely keep food in the fridge. It's all a mess... And now I have to be reminded that Equal Opportunity is a true crock of shit and I feel foolish for even trying anymore.

this last week or so i've been calling my dogs to come and lay beside me while I grit my teeth and try and endure the attacks in silence. My poor catahoula gets alien snatched and snuggled while I brace for life when i feel a shadow come on. Sometimes i can "hide" the attack from my family because its under kip 6/7 and I have a relatively high pain tolerance. I still get restless kicking about,rocking back and forth to some degree, groaning and so on though. Our catahoula was an abused breeder rescue who is incredibly timid around men in general so shes usually really solitary expressing porch dog behaviour . She's always very timid but she's showed up at my side laying on me 3x now unsolicited within 10 minutes of an attack kicking off. This most recent one hit me so fast that I thought I was going to start puking. Our chihuahua seems to go into a licking frenzy on me up to half an hour or more before an attack unsolicited and has done this a handful of times this week almost consistently before an attack. Both of which have done their individual behaviours in tandem at least once and that was a MASSIVE attack that left me pretty much incapable of speaking because it was so intense. I've considered scent training one of them to help give myself an early alert but i'm wondering if that's even really necessary at this point. Neither of these incidents has been followed by a lack of attack within 30 minutes. Both have been 100% accurate So far. They don't always catch it but the ones they have "acted strangely" about have been considerable, just like the ones I called them to me about I'd like to train our Chihuahua because he would be much easier to take around with me but he needs behaviour training where sas our catahoula is exceptionally docile and well behaved but is terrified of vehicles and incredibly distracted by dogs. I don't have much in terms of remediation at the moment besides D and M which I Can't do publicly but early alert gives me at least a few moments to brace for impact. Does anyone here have pets or service animals that give off warnings, show compassion behaviours, or legitimately trained for alert? In my jurisdiction i'm "service dogs in training" "SDIT" are afforded all legal rights and protections as fully trained Sd's and from my extensive research documentation is unecessary and often times seen as compounding misunderstandings about responsible and legitimate sd/its and handlers. If I could have advanced notice on the migraines and clusters on the go in my day to day that would be huge for me especially as these attacks are becoming more violent and frequent. Christmas day our Chihuahua started frantically trying to lick me while I was driving right before we got to my family members house about 10 minutes later a hellacious attack hit me. If I were totally alone with him that would have provoked me to pull over to begin with. At the time my wife and I just thought he was acting out about going for s ride but in hindsight it was an immediate and abrupt change in his behaviour from calm and hanging out to frantically attempting to get my attention. i'm beginning to see a pattern with both dogs.