Anv1848

Thanks much for the invaluable links ... okay, did not know about the O2 .. the D3 .. and the RC ... approaches. (there's a Dr. Seuss riddle somewhere there ..) Yeah, well my neurologist herself explained to me she even takes Topirimate as has no problems ... that's one person ,,, maybe that's a lot? Oh, the "ANV1848" .. I typed it wrong ... meant to be "1824" which is Bruckner's birth year ..my favorite composer ... oops, sorry Anton ,,, messed up your birth year a bit ... speaking of drugs, they did also try something called "Maxalt". Ever hear of that? It was ineffective and useless .. didn't do a thing, but it really hurt my wallet. And I have good health ins., .. but for some reason, I had to pay a lot out of pocket to buy that stuff.

Hi CHFather, Thanks much for the kind message. Well, the only reason I am waiting to dose again is simply because it'll take a little while for me to acquire access of the materials again. (I don't have anything put aside) "It's on its way" .. as the saying goes ... I have not ever heard anything about the O2 approach ,,, further revealing my naivete on this, and other related matters. But I will surely explore. Yeah, you're quite correct, some of the AED's (anti-epilepsy drugs) are used for migraine/cluster as well. Boy, God bless the pharmaceutical industry ,, I know they do work some miracles; and I respect them for that ... but Crimony, some of the concoctions they devise are downright ruinous on the body ... Topiramate was particularly awful. But again, that's me ... I dislike almost any med I've had ... my neurologist says a lot of folks handle Topirimate just fine. It did the total effect on my that I DID not want .. shut me down and shut me off .. it made me basically a cross between being a mummy and a gargoyle ... In stark contrast, the dose of mushroom I took brought on none of that ... and allowed me to retain much alertness and clarity; I was able to continue working on my music scores and other projects, plus it did NOT disagree with me digestively. Well, it was a small dose of course. I await my next dose .. not sure when .. a week or two?

Hello, So nice to find this forum. Thanks for making it happen! I was referred here by a friend. I have had CH for some time. But especially significant in my case, was the fact that my medical staff misdiagnosed it and they thought it was epilepsy related. Well, in their defense, there WERE a host of very weird and troubling neurological things going on. They had paraded me into all kinds of scans; MRIÂ’s EEGÂ’s many other things. So what then happened was, worst of all, they slammed me with some fairly disturbing and debilitating meds Â… Depakote; Leviteractum; Keppra; Â… all of which took a horrible toll on my system. IÂ’m an otherwise pretty physically active athletic adult, who does not use any drugs; or smoke or drink alcohol. So anyhow, 9 months after all the meds and many more tests, they then concluded itÂ’s a misdiagnosis; and now think (theyÂ’re still not 100% sure), itÂ’s CH. They urged me to keep taking the drug Topiramate .. but I just flat-out HAD IT it with the stuff .. just awful side effects Â… I finally got the team to be on the same page with me: and agree to let me STOP the drug. Anyhow: Back several weeks ago, a colleague who had studied extensively on the continuing promising research done related to treatment of CH with mushrooms, talked it over with me Â… and managed to get me a sample Â… I set a day aside, had a friend stay home with me; and I took a very low dose, not really even enough (apparently) to justify calling it a trip of any kind; and thereafter, for a few weeks subsequent to that day, I had a greatly improved level of head-brain-neurological activity. Now, about 7 or 8 weeks later, I can see that thereÂ’s a subtle dwindling of the attenuating effect from taking the mushroom sample setting in. I am considering a follow up to the approach in few weeks, as the CH recurrences have become more prevalent. IÂ’m encouraged by the materials, personal accounts, and reflections I have read already in the forum. Anv1848