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xxx

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xxx last won the day on January 20

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    pete_batcheller

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  1. Into Light

    First, I want to thank you for being such a great member of this community. I've learned much from you in my brief time here. Per subject line I would like to know the exact bloodwork "we" need. I will be seeing my neurologist at the beginning of May. He and his team are wonderful, mostly because they really do their best to work with me. I would need all of the regimen as a PDF if you can. I get treated for lymphomae [diffuse enlarged b-cell lymphoma- cured, follicular b-cell lymphoma-still in remission after 6 years( and currently ambeating Chronic Lymphocytic Leukemia- being treated with chemo. (Thank you World Trade Center) My doctors are all at Memorial Sloan Kettering Cancer Center. I am on a new chemo regimen–ibrutinib– So I need to involve my neurologist, oncologist, naturopath and the pharmacy department. I was taken off high-dose Green Tea Extract and Curcuminin when I was prescribed the ibrutinib. Because I am on 480mg Verapamil the metabolization of the ibrutinib is slowed down and my particular dose of ibrutinib was reduced by 1/3 in order to maintain the proper blood levels of ibrutinib.

    I hope this does not add much to your workload. I really appreciate it.

    IntoLight

    1. xxx

      xxx

      Jonathan,

      You should have my email response to your request by now.  I think I answered all your questions, but just in case, shoot me an email if I've missed something or you've another question.

      I'm well aware doing battle with cancer is a full time dedicated team effort between you and your doctors.  I'm shy one kidney and several square inches of scalp due to cancer... most likely caused by a year on a monoclonal antibody called daclizumab.  That said, I've managed through all this without chemo or radiation therapy... just lots of vitamin D3, the vitamin D3 Cofactors and lots of Vitamin C.

      I haven't found any open source data on adverse interactions between vitamin D3 and ibrutinib.  There are some links suggesting Omega-3 fish oil can be a problem but no technical or clinical data to back that up.  What I do know is the anti-inflammatory regimen with 10,000 IU/day vitamin D3 works wonders building a healthy immune system.

      I'm here to help... and learn.

      Take care and please keep me posted.

      V/R, Batch

    2. Into Light

      Into Light

      Thank you

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