Javier

Hello, thanks a lot for your supporting!!! I´m already back from Almeria, and leave Alex family hopeful cause the relief of these last days. He is painfree almost 6 days ago. His father helped him, these last attaks, to breathe as they were lerned by a psicologue during the first cycle. It should be clare for them to look for a good mask, and all the rest.(CHfather, Spiny, I don´t know well, the mother doesn´t remember but she thinks there was not a bag) The case is that O2 was not a good experience for them, the only idea of oxigen tank is gloomy. in fact, Alex only has sufered two cycle, the first, 2008-2010, lasted one year and a half, cause of cortysone; afterwards were other year and a half of relief, and in december 2011, till march 2012 second cycle. They had the hope all will dissapear with puberty, but these two week of attaks have alarmed them. Now attaks have gone. I talk with the mother before live them, and as we have been sugested, she is looking for D3 regime and RC seeds. Father doesn´t know nothing yet, his bond with the child is so deep that maybe in this moment he cannot assume the attaks can go back. Maybe this kind of faith has helped him to abort the lasts ones. Whooligun, I don´t konw if the child has an MRI, but i will question the mother. why it is so important? Could you send me a link about it? thanks Diamondmaker, Potter, thanks, I think your opinion is also important, and would like the child never have to try mshr. or Rc. thanks Thank you all for supporting us Javier

Thanks, Blueballs, I have questioned about O2 masks to the mother and they used a current one, without the bag. Besides, they are going to check the boy heart, because it could be the worse problem facing the tryptam. therapy.

CHfather, alleypop, thanks, I will read about RC, just read all the log post about liquorice by Les Genser and am also reluctant cause the problems of heart this child has. But I am very grateful for your quick answers, sure Alex parents also will be when I tell. Thanks again!

Thank you, Salander and Spiny! He has tried the O2, but don´t know if correctly and with a good mask. I have read about the liquorice in this forum, I have it printed, maybe would the right option by now...

Hello from Spain Thanks for all this information! My cousin suffers CH from 11 years old. Now he is almost 15. Never well treated,at the beginning was one year and a half suffering attacks while facing the ignorance of doctors(confined for days in an isolated room, treated with cortisone) Now he has thyroid problems. Apparently he is episodic, suffering the CH from December to march. Verapamil provokes him heart problems and past CH period, towards the end, had a syncope. His parents are less than terrified, his dad falling in severe depressions each cycle reach the top, and reluctant to talk or research about CH. The cycle threw the whole family in a period of suffering and silence. They live in the south of Spain, in Almeria; now I am visiting them. Unexpectedly one week ago the child broke in tears saying he had shadows for a week. Now attacks started. He is not medicated now. Only for his thyroid. From Spanish forum I reached this one and read many of your posts about mushrooms. Do you know any case of a child treated with mushrooms? How to dose, etc? we can order from Netherlands some fresh mushroom truffles ( do you know this? should we prepare as mushrooms?) , and receive them in a week. If the CH is beginning its cycle maybe we could try... If anyone has an idea or advice... Thank you!