I'm new to this site, but wanted to share my recent experience. Hopefully this will help someone else suffering from CH. I have been getting Clusters for 23 years now. I remember the first attack I had as if it were today. I was misdiagnosed for the first 10 years of the onset of these attacks as sinus headaches and then as traditional migraine until I saw a neurologist that told me I had CH. I have tried just about every type of medicine there is to treat this condition. I am currently in the 4th week of a cycle of attacks and I'm getting 5-6 headaches per day. I usually use Triptans for relief of the pain and start back on Topamax to stop the cycle. Frova is what works best for me. However, it is extremely expensive and my insurance will not fill it as fast as I need it. I got my family practitioner to prescribe Oxygen to me last week and just picked up my 1st tank yesterday. I cannot believe that I wasn't given this before now. IT WORKS. I have been using it for two days now and I have not gotten into a full blown attack since. The only problem is that I will probably run out tonight and I am due for at least 3 more headaches before I can get more tomorrow.
I have just started reading about Clusterbusting and I'm new to all of this. How do I get this stuff? I will try anything at this point to stop this cycle. I have noticed that the older I get the longer the clusters last.
