Hello everyone,
As a guest I have been reading quite a bit on this site, and found some posts insightful and interesting.
I have been having CHs since the age of 18 (am 31 now), and was only diagnosed about five years ago. I get about two bouts every year, sometimes these can last 4 months, but typically less.
Currently, I live in the UK.
I take verapimil 3x240mg every day. I have the great benefit of an understanding GP. This means that I am able to treat the attacks with Immigran subject (in the US this is called Imitrex injectors, I think).
Without this I am quite sure I would not have managed so far.
I have had good experiences of stopping a bout by taking high dosages of steroids (hydrocortisone, or Prednisolone, 60mg a day for two, three days). Nasty stuff, but it worked often. Not this time, and I am getting really sick and tiered of injecting all the time. It does effect my job, as well, but thankfully I was never seen having an attack.
In a way, I think we as sufferers are quite privileged as the happiness when the pain finally goes is so intense and must be close to what others pay for .
I have experimented with (0- no use, 9- works perfect)
Immigran subject (9)
Immigran tablets (2)
Immigran Nasal spray (1)
Lidocaine (1)
O2 (depends, sometimes 4 or sometimes 9)
All sorts of painkillers including morphine that I borrowed from my mum when she was dying of cancer some time ago) without much success.
I have never taken any recreational drugs (except alcohol and cigarettes).
Nice to meet you all