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SweetJane

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  1. Thanks CHfather - He is going to ask his O2 supplier about the non-rebreather mask tomorrow and look at where to get a high-flow regulator to fit the tank. For now, he just has the nasal tubes, but he puts them to his mouth. The O2 has helped tremendously. He’s taking 6mg of melatonin at night. Other than his CH meds, he is currently taking Paxil and a cholesterol medicine. I know he will have to be off his the Paxil while detoxing and I will have to find out about the cholesterol medicine. I don’t believe he has any apprehension about the effects. I do want to look at the RC seeds also. I think he is more concerned about no meds during the detoxing and after the dose. I explained he would still be able to use the O2, energy drinks, and melatonin. I also told him about the D3 regimen. Is busting always a 2-part process (bust, wait 5 days, then bust again) or do some people get relief after the first dose? He has only had two headaches in the past 3 days, so he may be nearing the end of a cycle, which may not be the best time to start the process. SweetJane
  2. Thanks for your replies! We still have some adjustments to do on the O2. We need a higher regulator and non-rebreather mask. He says he is getting *some* relief from the Depakote & O2. The neurologist he saw is apparently not familiar with cluster headaches at all - my dad had to pretty much demand the Rx for the oxygen. He is also getting the "it takes time" answer from his doctor(s). And I completely agree with spiny in regards to the nasty side effects of all of these meds. I know I can't make the decision for him to bust. But when the numerous medicines you've been prescribed do not appear to working 100% and you're in so much pain you are banging your head into the wall, what is there to lose??? I'll wait another week or so, then ask him if he would like for me to make him some tea.  SweetJane
  3. About 6 weeks ago my dad (61 years old) began his CH journey. He has seen 3 different doctors and has been prescribed about 6 different medicines. He is currently taking Depakote as a preventative and just received his O2 tank yesterday. My thought is “forget all the trial and error, just bust and get it over with.” It kills me to see him in pain and I want this be over for him. At what point do you start the process? Am I being too eager? Thank you for any help or suggestions you can give.
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