JennyL

Thanks guys, I feel armed with info. It feels good

Does anyone else experience shoulder pain that can travel down to the elbow and wrist? I'm also experiencing weakness on on my right side which is the side that I get my headaches on

I did get oxygen at MGH, not to go home but as a treatment while I was there and an imitrex injection. So that being said I live about 50 miles south of boston. They set me up with a neurologist appointment about a month after going through the ER. I had high hopes, Boston being one of the best hospitals. He was a young guy, cocky and confident. So he dismissed the diagnosis of ch and told me I had hormonal migraines and my biggest problem was my genes. Ok first of all this is not in my family genes that I know of. He said the reason it's not CH's is because I'm a woman. My hopes went down the drain. I told him right then I wouldn't be seeing him again. I am now being treated locally. I've only seen him once and he started with the supplement approach. That's helped for some of his patients. He's only got about 12 people with CH. I am just worried about side affects of prevention. What is a good one to start with? They have offered me one but I am leary of doctors with good reason. I really like my neuro now and will be going back in a couple weeks. He has also given me some pred packs when I get hit hard. But it takes 3 days to kick in and then I only get 1 or 2 sort of ok days. I also have access to o2 at work. We have a rebreather system but can only kick out 5 tops on our regulator. It's for pets..But I've used it in desperation. It helps for sure. But I want to go to my next appointment armed with info and things to try. I've only had 2 cycles one in august when this all started and now. This time may be a little worse. I started about 2 weeks ago and still going. I got almost 2 full days of relief. But I guess you guys call it shadows? That's been hanging out and causing me fear and anxiety. But I do go on with life like you suggest. You just have to, I'm a very positive person, thank goodness! I find this site very soothing and helpful. Makes me feel more normal.

I take 2000mg of magnesium, vitamin b complex,vit d, st Johns wort, 100mg of trazadone,imitrex 50mg, Naproxen and I smoke pot. And I'm still learning triggers, I figured out recently cold wind is horrible,we had a couple days of negative winds chills. And I'm still figuring out what to do when they occur. And i feel overwhelmed.

Have you tried trazadone at night?

I am a 36 year old female. I am new to this site and the good old clusters. I got my diagnosis about 4 months ago. Because I am a woman 2 different ERs Failed to diagnos me. I had to go through Boston mass general to get some answers. So this has been frustrating from the start. I am a vet tech, been one for 13 years at the same practice. These horrible things are causing me to lose time at work. I am having major cognitive disfunction and it's causing me distress. Will I be able to work? I also have 2 children and a husband. It's taking a toll on them as well. I'm depressed,scared and very new to this. Are some of you able to work outside the home. Does anything help for this feeling of uselessness. I feel I failed as a vet tech, mother and wife. .