Kenneth

Hi Guys, Thank you both for your replies and the information. From what I have read it definitely seems like my Prednisone dose is very high and that my taper is to extreme. Jacqui the only reason I have been taking such a high dose was due to it being what my Neurologist advised I haven't ever tried a lower dose, perhaps a bit ignorant on my part ! I cant help but feel that the more and more frequent joint injuries I am accumulating might be related to the Prednisone I visited my GP and had a chat about Prednisone withdrawals and he suggested blood tests to make sure my hormone levels have not been totally obliterated from the medication. CHfather I took your advice and after reading up ordered Melatonin and also all the materials for Busting, funnily enough the Busting ingredients arrived before my eBay order of Melatonin ! I tried a microdose yesterday to see how I would react and felt fine so I now have that in my arsenal, my plan is to attempt Busting and not Prednisone the moment I feel shadows or have an attack.

Hello Clusterbusters Hoping you guys can offer some advice or even share your experiences, Sorry in advance this became a long post But first some back ground information I am 38 years old and I am episodic I had my first attack at 25 years of age and was misdiagnosed for the first two years, in the past I have utilized Prednisone Verapamil and the injections they are all godsends and have worked effectively they all however come with nasty side effects the injections in particular wipe me out, 3 years ago I received a prescription for oxygen its great when it works as it has no side effects but it often just seems to calm the attack and then I get hit again once I stop the oxygen. My recent dance with the bastard started in December and I began my normal therapy 120mg of prednisone for two days followed by a 12 day tapper and 240mg twice a day of verapamil using a mixture of the injections and oxygen to abort the attacks the prednisone as alwlays appears to work for me pretty quickly and within 5 days I am no longer having attacks, however this time within days of coming off the prednisone I began having attacks again, my neurologist put me back on prednisone at 140mg and again at the end of my run the attacks began again, in the end totaled 45 days of going up and tapering down on prednisone I am now finally clear of attacks and prednisone. Its worth mentioning that when I am on prednisone I am manic as in I am highly efficient sleep 5 hours a night have laser like focus and serious cognitive enhancement I just get things done it is amazing and I honestly wish this aspect could stay with me, the down side is I have insane mood swings I go from 0 to extreme anger and hatred and then back to happy and focused in seconds. So here is my question who has experienced prednisone withdrawl and what can be done about it ? I very suddenly find myself feeling tired all the time unmotivated dizzy and my body aches, I have gone from being the guy that loves to lift heavy weights at the gym and write short stories to the guy that pounds coffee and doesn't want to leave the house or the sofa I also feel pretty nasty anxiety when interacting with any one outside i guess its only fitting that after the last few months of side effects and the up and down roller coaster ride of attacks that I now have withdrawals !!! There is a wealth of information with regards to supplementation for adrenal fatigue and given how I feel I am starting to think that I might be experiencing this I am hopping that some one that also suffers from Cluster Headaches might offer some advice , my neurologist is very sympathetic and beyond giving me prescriptions does not seem very interested . Much love to my fellow sufferers Ken