kevlar

Thanks for note URS! Yes, I never leave anywhere without the sumatriptan during my cycle, but I am excited to try the RIGHT oxygen flow, as the only time I tried at a doc's office was through the nasal tubes and not a mask, and it prob wasn't 15+ LPM. You're right I'm not in as bad a place right now, I have only had shadows the past couple days and if my last cycle is any indication of pattern, them I'm hopefully winding down, but who knows, trying not to jinx it.

Wanted to say hi to the group and thanks to all for sharing such amazing information I never knew was out there. I'm 31 and have had episodic cluster headaches for about 10 years, only the last 2 of which were diagnosed. For years I thought I had severe migraines/sinus headaches that came and went in the exact same place in my head behind right eye, and never heard the term cluster headaches until I stumbled upon some online survey and started reading and then the lightbulb moment went on I finally got some clarity to what I had. Therefore, I really have only been logging my attacks/cycles for a short period of time, but my last cycle was 41 days and was CH free for about 14 months and now today I am in day 41 of this current cycle. Definite trigger for me is alcohol and have stayed away during this cycle which seems to limit the severity of attacks. An interesting note is that both of my last cycles began when I was away on business, so could the flying / pressure change be a cycle initiator? My neuro put me on sumatriptan and then topiramax, but I have since quit taking the topa as I did not enjoy side effects. The sumatriptan seems to abort OK if I recognize early, and I only have the pills which I realize are not as effective as the injections as I continue reading on this board. I just ordered all my D3 regiment supplies and plan to ask at my appointment next week for the O2 setup as described in your files. Thank you thank you for all the helpful information, I am much more informed and prepared, and I'm also more inclined to try the non-pharma strategies, especially as I read that sumatriptan may extend cycles/frequencies. In fact I think I may have more shadows this cycle than last when I didn't take sumatriptan. Pending the outcome of the D3 effectiveness for me, my next step is trying to bust. If/when I find the resources to attempt MM I will be sure and share my debrief on that board. I have read and printed many of the threads and files on here in the last few weeks, so my main goal today was to say thank you for all the contributors for this encyclopedia for CH. - Kevin from Delaware