My name is Kay and I am desperately needing help. I am advocating on my husbands behalf. He is 34 and experienced his first CH about 12 years ago and for seven years they were very infrequent but at the time they were diagnosed as migraines. His doctors discovered a pituitary tumor, four years ago, and assumed that was the source of his headaches. The tumor is under control now with cabergoline but maybe 6 months to a year after that he was finally diagnosed with CH. In that time they have increased in frequency and in the last year he was finally given sumatriptan nasal spray and found much relief from that and even with oxygen. Since January though things have progressively gotten worse. With 3-4 daily on average with some waking him in the middle of the night, he is miserable. Last month he was prescribed sumatriptan injections, but not enough to keep up with his frequency. He also has an oxygen tank here at home but it doesn't seem to help much anymore. The reason I am on here asking for help is because he is in the military so the one thing that could truly help him he can't do without constant fear of losing everything he's worked so hard for. I would much rather him be unaware of what I'm trying to do so that I can be held accountable without it damaging his career in the military. How can I help him. It's affecting our family and our lives so much. He spends most of his time in pain while the kids and I sit around feeling so helpless because there really isn't anything we can do for him. I don't think he could ever bring himself to commit suicide but I hate seeing him like this. Someone in that much pain shouldn't have to suffer. I want my husband back. Someone please help.
Thank you so much
Kay