Trent

I must of missed them, I've had 20-25% results with busting, I'm on the D3 regime all the time, I thinks its just good health to be anti-inflammatory, I also intermittent fast to keep inflammation and insulin spikes down. I tried a 96 hour fast at the beginning of this cycle, and so far I think its reduced overall attacks. I'll try anything during a cycle. But once its gone, I rarely even think about it.

Jetpack Compose + Material13, Language Kotlin. I build in Antigravity.

I hadn't loaded all the the data into the app yet, I only had a few actual live runs with it where O2 was logged, and then I was back loading attacks so that I could see a complete cycle. When doing so I realized that the past logged events didn't include O2 usage so it through the stats off. I fixed that, in the latest update. The new Stat averages 19.61 min per attack or 922 Minutes over 47. I had also corrected the calendar issues, added edit ability to past attacks (sometimes I forget to hit end) I'm just so happy its over. We already had the JSON export, but I added and tested an import in case you switch phones later, you can export out of current phone, load app in new and re import. No data loss. I ended up hosting it on Github as then when I push releases or add on's people can just update. There is also good notes on what app is all about along with ability to audit the code if your inclined. For $25.00 I get get it listed on the Play Store, something I might consider to get it to a larger community after I get feedback and see if this is an app people will want to use, then updates will be automatic. I did look into optimizing for Iphone, I figure it would take me an entire weekend (personally I am not a fan of Iphone) but I may consider it if like I said there is enough interest. Good news is that I will not allow advertising or charge a fee as I consider this my contribution to the community. https://github.com/MyDigitalFreedom/ClusterTracker/releases As far as optimizing O2, I can't say that I have been overly successful, What works one day, doesn't the next, as many know this beast just changing. My old manual records were harder to see any patterns. I'm hoping with the graphs I will get more insight.

Here is some screen shots, also of note not available on i-phone. You can see where I thought it was going away, so I stopped O2, then quickly regretted that.

The above app is 100% hosted and stored on your own phone/tablet. No data is transmitted to anywhere else. I specifically built without Google play services for privacy reasons. Now to be honest I would not install a random app on my device without knowing where it came from. So my recommendation is to load it on a old phone you got kicking around and try it there first. It won't need a sim card or even to be up to date, and can be installed over wifi.

Its got some minor glitches I am still working out but here is what I built for myself. I use it to track cycles, attacks within the Cycle and the attack it self. If there is interest I will provide updates. The glitches I found where adding past attacks, the calendar was off by one day, so I choose one day ahead for yesterday's log date. I also want to add the ability to edit past attacks and notes. But otherwise working great. Provides good analytics for Cycles, and Attacks. Logs Pain, and O2 Usage and tie to local weather for increased data collection. Files can be exported into JSAN or CSV for medical or historical record keeping. The Notes can be for anything you wan to record, busting attempts, diet, D3 Regime tracking ect. Hope you all like it. https://github.com/MyDigitalFreedom/ClusterTracker/releases

How did the beer turn out?

During a cycle Beer will most often trigger an episode, but during the remission periods, I can drink beer no problem. I often drink a beer near the end of a cycle to see if its truly over. In recent years I have started brewing my own beer, not kits, but Grain to Glass, (I have a micro brewery in my basement) I have found that my own beers do not trigger the episodes during a cycle as much as store bought ones. My home beer only has Grain, Hops, Yeast, no additives and I keg it, so its draft beer. I don't know what differences the store bought beer might have. Anyway, I use cluster cycles to take a break from drinking for a few weeks or months, its probably not a bad thing.

Thank you Batch, I had read about the Redneck bag before on Clusterheadaches.com , I have incorporated the hyperventilate method from time to time. My main take away was getting CO2 out and absorbing O2 in. I figure I could have another 10-20yrs of attacks ahead of me so the cost isn't deterring me from the Demand Valve. Also a little safer around the house, with kids ect. For others reading, The hyperventilation method can also help if you do not have O2 with varying success.

If ordering from a Canadian site I have not had too much difficulty getting O2 supplies, the trouble arises when I try to source from the US. FDA Approval ect. I do have a welding regulator for my big tanks, trans fill hoses, and a few 870's, just none with the Diss outlet yet. No restrictions on getting Welding supplies locally.

Hello CH Father, Thank you for your reply, I understand what you mean by the High flow regulators, they can fill a bag faster than I can use it, the timing is my complaint. My go to O2 method currently is - take in full lungs of O2, usually the full 3L green bad, "I could take a bit more", and then hold my breath for 5-20 seconds to absorb (depending on kip level), fully exhale all breath, even last bit crunch method. - "I feel this gets rid of the most CO2", then immediately take in full lungs of O2. The "wasted" O2 is from the timing variables of: 1.) holding breath to "absorb" and 2.) releasing every last bit of air on exhale (usually 10 sec process) and then immediately needing to take in more O2. If timed correctly the bag will be full right when I am finished fully exhaling, most often it is just about full, or has been overfull for a few additional seconds, this is where I waste a little O2, more of a concern on D-size tanks. Why Demand Valve: I find that I have to solely focus on my breathing deliberately and this process works for me best at 9-12l/min, my thoughts are that with a Demand valve, I can vary my Hold breath duration for as little or long as I like, and perform the exhale process as fast "pushing" or "relaxed" normal exhale, when it is time for more O2, it will be ready for a full Capacity hit. My other thought is that I could through in a few tidal capacity inhale/exhales at start and or middle of process varied as kip level and particular attack dictate. Other: I am on D3 regime, do take 5-hr Energy at first sign of hit, have had moderate success busting, get 1 or 2 6week cycles a year, turning 40 soon. Trent. CH Father - I received a life time ban from E-bay for ordering a regulator and trying to have it shipped to Canada a few years ago. No opportunity to appeal as I do have an O2 Prescription.

Hello all, I live in Canada, and unfortunately we have strict laws and restrictions on Medical O2 and related materials. I had tried to order a simple regulator on-line but it can't be shipped here. Are you able to order regulators, Demand valves, ect and have shipped to your address in the US no problem? Do you need to provide prescriptions ect? I ask because I have a few friends in the US, and would like to ask one to buy on my behalf, and then I would take a trip to visit, pay them back ect and then make my way back to Canada. It would probably be Arizona or California if it makes a difference. I would really like to increase my setup for O2, I've slowly acquired 2 Welding tanks, 8 D size medical for travel, a transfil hose, and a bunch of regulars with no Diss outlet. I have prescription, but too ridged and costly to go medical route. I think a demand valve with CGA870 and CGA540 would be an effective way to go. "No more waiting for green bag to fill, or wasting precious O2" Thank you

My experience has been only one side of my head, typically in my temple, closer to ear than eye. A real good one will effect my top gum line, and sometimes bottom jaw as well. it can often migrate to above ear to behind ear, down and a bit down neck. Still through all, the temple area is the most painful, radiating out. Mine are always the same side given a cycle mostly right, but once or twice my cycle has been on left side. Some may consider it lucky, but my top gum line above teeth gets sore first, giving me a 5-10min warning that a cluster is coming, the lucky part being the warning time to get to O2. For the first two years my Nuro prescribed my the Zolmitriptan's, and by the time they kicked in, my attack was almost over. So I would take one if I even had the slightest sensation an attack was coming, this created a bunch of rebound's, and overall did more harm than good. It was a life changer to find this board and learn about O2, and busting.

The Trigeminal Nerve runs above top teeth and below lower teeth. Often people will complain about tooth pain when in a cycle. It also could be wisdom teeth coming in. Further reaching, I was recently diagnosed with Trigeminal Neuralgia, which is different than Cluster Headaches. I currently have the TN on left and Cluster cycle on right. The TN has gone down to a fraction of what it was a week or so ago, but I would describe the pain of TN to be very close to CH, except I felt it more in the gum line's, and teeth centralizing right on my jaw hinge point (I swear I could feel my heartbeat in my teeth). It was like a CH in my jaw, same nerve, almost same pain, but for a day or two, didn't relate at all to Clusters during that time. O2 didn't help it.

Episodic, usually a cycle in Fall, although I got an extra one last year in Spring. Typically 4-6 weeks. I started getting them when I was 27, not diagnosed until I was 36. I did buy the cluster mask from Clusterheadaches.com and found it to work well. I prefer the mouth piece to the mask. I'm currently running a "welding O2" setup as I haven't been successful in getting Medical O2 setup, even though I got my nero to write a prescription.