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sleepless

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  1. Thanks so much to both of you, and yes CH father I was not searching properly, (I was a regular on the old clusterheadache website and am new to this site - also it was 2am and was prednisoned out ) Now that I've started the pred I'm gonna take the Goadsby administration and see it through - it did stop the cluster (for now), then try the D3 regime. My doctor knows nothing, I've always gotten better information on these sites and at times I think these message boards kept me going. Again, thanks.
  2. New here. After 30 years of CH I was granted a 4 year reprieve. Thought I was done... but it's back and so doing my old regime of oxygen, sometimes immitrex but more important I went back to prednisone/verapamil (60mg for 7 days then taper) mix as I did successfully 1-3 times a year for 15 years. Because I've been "away" from CH for a while I went back to old protocal without doing research (stupid I know) and yesterday started looking around the internet and found very little on prednisone (including here on clusterbusters) and the little I found was very critical. Are fewer CH sufferers are using prednisone these days? Is there any recent research on pred? How much prednisone likely to cause long term damage? I'm on day 2 of the pred but a little freaked out. Any suggestions would be really appreciated.
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