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AdamG

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  1. I've had CH for 25 years, over that time, while verapamil has made the CH more regular at 2.5 years, and the cycles at 3-3.5 weeks, back in 2013, my neuro had me try prednisone to break the cycle - instead, it caused the CH to switch sides and start a new 3.5 week cycle - but then went 4.5 years without. So 7 weeks ago, I get hit. He has me try prednisone and again, it switches and a new cycle begins. Luckily for me (if you call it that), I only get hit when I drink alcohol - so I stop, but the only way to know if I am out of cycle, is to try a drink, unfortunately, I kind of like top drink and am I bit dependent on it, but that has quickly changed... as my sumatriptan is no longer being covered in the quantities I was used to... I was def. taking too much and was probably getting rebounds... So I have been 5 days without sumatriptan, and my cycle should be nearing an end... but the last few days, I have been getting hit with maybe a Kip5 - pain is not behind the eye - but on the side of my head, and it only comes on when I become stressed... and goes away, and then I feel "sore". This is new to me... is this part of rebounds? still part of the cycle? I have not had a full blown CH in over a week, and I am tempted to have a drink just to see what will happen... if my past pattern holds, I should be out of the cycle as of today... any thoughts???
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