CHLeah

Hey all, So glad I discovered this community. 43 year old female here and I've been getting episodic CHs since I was a teenager. I'm in the middle of a cycle now (heading into week 2) and it's been wreaking havoc. They always hit at night so I have been sleeping terribly and am a total wreck the next day. I'm kind of freaking out as I have a big work trip coming up on Sunday, I have to be "on" all day for five days training other people, and I pray I can get through it being in the middle of a cycle. Feel like I can't really complain tho, as I am an episodic sufferer. I don't know how those of you who have this chronically do it. I am inspired by you. The problem I have found is that they do not strike consistently at the same time each year, but they do strike once a year. Fall/winter seems to be a bit more common than spring. I'm so frustrated since it's hard to predict, and when I'm in the middle of an episode, by the time I can get get it together, a specialist is not available for months usually. By then, the episode has passed and I kind of go into this weird state of denial until the next episode hits. I think there is this part of me with magical thinking that hopes they will never return. So I have never seen a specialist for this. Nuts, I know! Of course my Primary care doctor, the only one I could get in to see quickly last week, prescribed the sumatriptan nasal spray which doesn't even work, plus I know they cause rebound headaches with overuse. And I get these every day when in a cycle! When I told this to my PDoc, she said the nasal spray doesn't cause rebound headaches. How does that even make sense? Grrrr. I am going to be more pro active this time and get in to the specialist in my area who is on the CB suggested Dr list, whenever I can - even if the cycle has already passed - so I can have an actual strategy in place when these strike again next year. Also looking into maybe trying Gammacore? The D3 regimen looks kind of intimidating, but I probably need to give it to try. Stocking up on energy shots too. And definitely am going to look into busting. Unfortunately before I found out about it, I had already tried the nasal spray once out of desperation, so I have to wait 5 days. Ugh!! The tips in this forum have been invaluable. Thank you!