Lfrsweeney

My primary is very on board with all this but asked me to humor him with checking my levels beforehand. My sumatriptan is in pill form and does work but since I only get 12 a month.... well.... much better to find other options. I need to read the document over.. but it isnt just D3... so I need to get a bunch of other things and see exactly how and to take this. I just bought a few 5 hr energy drinks. I'll see how that works. Anything is worth trying. Be nice if I could get my hands on my script today.. could have accomplished something. I'm open to any and all suggestions.. within reason... ofc lol I just made an appointment with my primary so I can begin d3 regimen. He's ordering blood workup for me. Allergies are my number 1 trigger..... so I'm on allergy meds plus benadryl at benadryl at bedtime. I'm taking 200 to 300 mg of topomax per day. I cant take verapamil... low blood pressure and swelling of leg and ankles. Also nortriptyline at nite increasing dosage every week till 40 mg. Sumatriptan for attacks which I'm going thru... trying to get on O2 . Fun times was helping me with it since we're in the same area. This all new to me. Also trying to find a new supportive dr. Would help.

I just made an appointment with my primary so I can begin d3 regimen. He's ordering blood workup for me. Allergies are my number 1 trigger..... so I'm on allergy meds plus benadryl at benadryl at bedtime. I'm taking 200 to 300 mg of topomax per day. I cant take verapamil... low blood pressure and swelling of leg and ankles. Also nortriptyline at nite increasing dosage every week till 40 mg. Sumatriptan for attacks which I'm going thru... trying to get on O2 . Fun times was helping me with it since we're in the same area. This all new to me. Also trying to find a new supportive dr. Would help.

Not quite sure how to do that.. if you can I appreciate it...

I sent you a message I think.... not quite sure how a PM works on here. If you can PM me please do.

No offense but sorry I need to be here too lol I don't know how..but I'm glad I found this group. I have found a new neuro guy but he cant see me until dec. I'm stuck until then. So if you or anyone can give me pointers on d3 and energy drinks I appreciate it.

No offense but sorry I need to be here too lol I don't know how..but I'm glad I found this group. I have found a new neuro guy but he cant see me until dec. I'm stuck until then. So if you or anyone can give me pointers on d3 and energy drinks I appreciate it.

Hey. I'm from Newtown, Pennsylvania. Sorry I sounded desperate.... was just getting over an episode and well uggh. I was rather amazed reading all of the comments how many are similar to me. I had no idea there were so many of us. And yes... I'm going to need guidance... I'm desperate to get out of this cycle and am obviously not getting any help from my dr. Ty for welcoming me..

Being new I wasn't sure where to post this... I've read several things on D3 ..... I'm just not sure of the dose and when and how often.. does this really work? Does drinking a red bull help at first signs of an attack? Be nice not to have take meds when I have attack during the day.

Hey. I'm from Newtown, Pennsylvania. Sorry I sounded desperate.... was just getting over an episode and well uggh. I was rather amazed reading all of the comments how many are similar to me. I had no idea there were so many of us. And yes... I'm going to need guidance... I'm desperate to get out of this cycle and am obviously not getting any help from my dr. Ty for welcoming me..

Not quite sure where to start other than I was finally diagnosed with CH at 57 yrs old just a few months ago. Looking back, I probably suffered with them for at least ten years. I'm in a cycle now a doing not great. My dr. Won't return my calls.... trying to get oxygen.... my meds aren't working and I'm going through my triptans rather quickly considering they are limited. I'm new to this and have been reading some of your posts. So I'm sorry to blurt all of this out... I'm just hoping my cycle slows down soon..