Maria Wilson

Hi all sorry I haven’t been on in a while and updated the post. So far I have seen a neurologist twice now and I have to say he was fab he officially dignosed me with chronic migraines and cluster headaches. He is basically just waiting to see if the clusters or episodic or chronic and I have a direct number for him that I can call if I get worse or have no change instead of going through my GP who hasn’t a clue on the Cluster headaches.so far under his care I have had steroid tablets and also steroids injections into my head along with nerve blocks. First set of nerve blocks was on the 6th of December they didn’t do much to help and the second set which was a lot more injections think it was 5 including steroids injection into the nerves I got those on the 17th. I have also started on the verapamil 240mg a day but I know I will have to put on a higher dose soon. Also been on Melatonin aswell. And at long last have finally got the oxygen for the house. I know somebody had asked about the D3 I am just taking the D3 and omegas vitamins that you can buy at a chemist as well as a calcium and D3 one aswell. I’m still taking sumatriptan nasel and injections form. So far from the last 2 weeks the Cluster headaches hasn’t been as frequent I was taking up to 8 a day now I take 2-4 a day somedays just one others its 4. I really don’t know what has worked I’m just glad it has. As it has been 7 weeks of hell especially with 2 young children in the house But my husband and my family has been fabulous and I’m truly blessed and forever grateful for them. Thank you all for your support and advice there’s been a lot of post on the thread and I hope I’ve answered at of your questions so far. Thanks Maria.

Hiya they give me prlosic with the indomethacin I’ve to take one 3 times a day. And the prevention they give me begins with an A I’ll find out later when I get home I’ve to take it only at night but can’t remember the name of it. The energy drink I tried was the monster drink it seems to take the edge off a bit. I’m literally willing to try anything. I know my husband has been amazing and is doing lots of research on this. Thanks much for your advice.