Hi.
Just thought I'd make a post
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started getting CHs properly when i was 19, saw doctors and they said there was nothing wrong with me, got loads of teeth pulled, got struck off from doctors and kicked out of hospitals as "there was nothing wrong" with me, lost my job, ended up homeless for 7 years eating out of bins, y'know, the usual stuff.
ended up nearly 30 years undiagnosed until i diagnosed myself through google.
got sumitriptan a couple of years ago, that helps but when you're getting 12 attacks a day...yeh great
oxygen doesn't really help, melatonin does nothing, neurologists at first refused verapimil as my heart rate is already very slow <50 but recently they've said they'll try me on it.
i'm a bit wary of it. considering telling the neurologist i'm not interested in seeing them anymore.
does anyone have any thoughts on verapimil?
as a long term sufferer with no meds i'm well aware they can come and go, sometimes 18 months off, sometimes 10 months a year. whenever anyone says this or that works i'm very wary and think any results are just coincidental, example being i went vegan and didnt have a CH for over a year, just a coincidence imo. i'd be interested in seeing a test result of something stupid like as soon as you get a cluster headache try putting a glove on your left foot and eating a winegum, i'm sure 30-45% of people would say it helped, obviously nonsense.
does verapimil actually do anything? you'll still get CHs yeh? so....in reality it does nothing if that's the case?
i was a long time heavy user of psilocybin years back and can guarantee they never helped me either, if anything they made it worse.
so far only sumitriptan injections have impressed me.
so yeh, verapimil?