DayLight333

Wow.. thanks to you both! I’ve always read that Oxygen was an option, but NEVER had a chance to talk with anyone about its effectiveness - mainly because I NEVER talk to anyone about my CH.. it’s refreshing to come across an entire community of people who know exactly what I’m going through. The information, testimonies, and advice I’ve been reading through for the past few days has been PRICELESS. My Verapamil doses seem to extremely low compared to what I’ve seen here on the forum! (which is probably why it isn’t working) I’ve been taking ONE 120mg tab a day. Im going to try upping it to 3x a day. I still have not revisited the Immatrex injections, and have just been enduring the “hits” almost daily. The pain level for the past week or so has been about 6/10, so for some reason I keep telling myself that I’m on the final stages of this cycle so just ride it out. Any suggestions on how to request the Oxygen? E tanks, M tanks, masks, tubes, valves, regulators? I’m completely oblivious and this sounds like mechanic talk to me-lol!

New to this forum (As of Today) and very pleased to see tons of useful information, remedies, and dialog! I’ve known too well the pain and inconvenience of these headaches as early as age 11… (I’m 38). After multiple doctors visits, prescriptions, and misdiagnoses - I decided to see a neurologist and was finally properly diagnosed with CH around 2006-07. Since then, during a Cluster Cycle, I would confidently start my “diet” of no alcohol along with a successful Cluster Combo of meds: 7-day tapered dose of Prednisone, Verapamil, and Immatrex injections. This has worked for me 95% of the time, so I’ve never entertained any other options… until my current cycle. I believe I’ve put myself in a Rebound phase from overusing the injections, so now I’m thinking what should I try next?? Oxygen? D3? Busting? I have an appointment with a neurologist in a couple of weeks and have made up my mind that I’m definitely going to request a prescription for an oxygen tank. At least to start with since I’ve abruptly stopped ALL medications in an effort to end this Rebound phase (it’s been terrible)… I don’t really talk about my CH in depth so even though I’m typing on my phone it kinda feels like I’m talking to someone who can relate… any suggestions as of next steps?