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Glenn

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  1. I started taking verapamil to prevent cluster headaches many years ago, and it worked. Well, at least the headaches stopped for the most part. When I developed high blood pressure, since it works for that, too, the dosage was increased -- that was 10 years ago. During that time, never a cluster, only very occasional isolated attacks New doctor, two months ago, took me off verapamil and prescribed a different med for BP, and guess what. I've been in a cluster period ever since. Went back on verapamil, increased dosage, 160 mg. X 3, and duration and severity have decreased since then. Oxygen was delivered today. Haven't ever used that before. I can hardly wait for my next headache, to see how it works! Not. But glad I have this additional tool. Delivery guy told me he has a number of customers who use oxygen for cluster headaches -- which surprised me -- I thought I was the only one. And, he said all these other customers are very pleased with oxygen therapy, so, that's good news. Point is, though, might be best not to go off verapamil. I had thought, why not -- hadn't had a cluster in years! But boom -- big time cluster right after stopping verapamil. Sure wish I had said "No thanks" to the doc who suggested taking something else for blood pressure. Won't make that mistake again.
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